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Natalie Ong; Kelsie Boulton; Jacqueline Milne; Gail Tomsic; Adam Guastella; Natalie Silove; Janelle Weise; Janet Long; Merrilyn Walton; Annette Burgess – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Children and young people with intellectual disability have poor healthcare and are at risk of patient safety events due to lack of staff training and consensus on competencies for safe and quality care. For the adoption of reasonable adjustments in mainstream paediatric healthcare clinical competencies needed to be adapted to an…
Descriptors: Intellectual Disability, Children, Adolescents, At Risk Persons
Natasha A. Spassiani; Anna Higgins; Stephan Tait; Aaron Hume; Sam Abdulla; Ruth Paterson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: There is little research that has examined what support strategies are effective to help adults with intellectual disabilities take their prescribed medication correctly. The aim of the study was to gain an understanding of the barriers and supports that contribute to adults with intellectual disabilities self-managing their prescribed…
Descriptors: Drug Therapy, Health Behavior, Adults, Intellectual Disability
Alison Devitt; Melissa Nott; Stephanie Nelson; Julia Sgarlata; Michelle Gray; Srilaxmi Balachandran; Asma Taskin – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The COVID-19 pandemic precipitated a rapid roll-out of virtual health care services to people with intellectual disabilities. Limited evidence is available for clinicians to guide virtual care delivery. Method: Twenty-three studies were identified through systematic searching of 16 databases. Extracted data were mapped to the NSW…
Descriptors: COVID-19, Pandemics, Access to Health Care, Program Effectiveness
A. Miceli; L. Lucassen; R. Rinaldi; N. Van Ooteghem; D. Walter; M. Perau; C. Kahwaji; A. Mayart; E. Batselé – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study investigates the healthcare needs and experiences of adults with intellectual disabilities, focusing on identifying areas for improvement. Its innovation lies in including individuals with intellectual disabilities as co-researchers in the research process. Method: Thematic analysis was performed on five focus groups with 30…
Descriptors: Foreign Countries, Adults, Intellectual Disability, Health Needs
Helena Wythe; Raj Attavar; Julia Jones; Jackie Kelly; Claire Palmer; Louise Jenkins; Romanie Dekker; Debra Fearns; Scott Watkins; Anne Hunt; Natalie Pattison – Journal of Applied Research in Intellectual Disabilities, 2024
Aim: To explore the usefulness of a co-designed wordless book showing processes of receiving COVID-19 vaccines designed by, and for, adults with intellectual disabilities. Methods: A qualitative evaluation of the resource using mixed methods. Semi-structured interviews were conducted with people with intellectual disabilities, carers and health…
Descriptors: Picture Books, Adults, Intellectual Disability, COVID-19
Nienke M. Siebelink; Annemarije Gaasterland; Marieke Gielissen; Sanne Weegen; Brigitte Boon; Agnes Poel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Implementation issues often hinder reaching the potential of care technology to improve daily lives of people with intellectual disabilities. We investigated barriers to and facilitators of implementing different technology modalities (app/social robot/sensor/domotics) in long-term care. Method: Care professionals (N = 83) from 12…
Descriptors: Barriers, Affordances, Intellectual Disability, Assistive Technology
Wilding, Clare; Young, Kimberleigh; Cummins, Caroline; Bowler, Craig; Dean, Trent; Lakhani, Ali; Blackberry, Irene – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Empathy is a critical skill required by disability workers. Virtual reality may increase access to staff training to foster empathy. Method: A mixed methods feasibility study investigated a custom-built virtual reality program, IMercyVE, which aimed to immerse a disability worker in a first-person perspective of having intellectual…
Descriptors: Allied Health Personnel, Caregivers, Intellectual Disability, Program Evaluation
Sarah H. Ailey; Molly Bathje; Renáta Tichá; Brian Abery; Belle K. Khuu; Lisa Angel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual and developmental disabilities are among the most underserved in an inequitable healthcare system. Methods: Using Arksey and O'Malley's methodology and a social determinants of health framework, we conducted a scoping review of literature on the state of practice in education of healthcare professionals in the…
Descriptors: Allied Health Personnel, Intellectual Disability, Developmental Disabilities, Access to Health Care
Selick, Avra; Durbin, Janet; Salonia, Chanelle; Volpe, Tiziana; Orr, Erin; Hermans, Heather; Zaretsky, Lauren; Malhas, Mais; Lunsky, Yona – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Direct support professionals (DSP) are instrumental in supporting the health care of individuals with intellectual disabilities, yet receive little training and support for this role. We implemented a capacity building intervention for DSPs in a community agency in Ontario, Canada. This study evaluated the perceived value and…
Descriptors: Health Services, Intellectual Disability, Capacity Building, Allied Health Personnel
Smith, Ian C.; Huws, Jaci C.; Appleton, Kim; Cooper, Sally-Ann; Dagnan, Dave; Hastings, Richard P.; Hatton, Chris; Jones, Robert S. P.; Melville, Craig; Scott, Katie; Williams, Chris; Jahoda, Andrew – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Health professionals were trained to deliver adapted psychological interventions for depression to people with learning disabilities and depression alongside a supporter. Exploring the delivery of psychological interventions can help increase access to therapy. Method: Twenty-seven participants took part in six focus groups, and the…
Descriptors: Allied Health Personnel, Adults, Depression (Psychology), Intellectual Disability
Eleanor McKillop; Alison Spencer; Cathryn Marrington – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Eye Movement Desensitisation and Reprocessing therapy (EMDR) is a NICE recommended treatment for post-traumatic stress disorder within the general population. Ongoing research is now investigating the use of EMDR for individuals with intellectual disability. Alongside quantitative research efforts, it is beneficial to explore the…
Descriptors: Eye Movements, Sensory Experience, Therapy, Intellectual Disability
Karni-Vizer, Nirit; Shamai Kaplan, Michal; Snir, Sharon – Journal of Applied Research in Intellectual Disabilities, 2023
Background: This study examined how siblings and siblings-in-law of persons with intellectual disabilities experience the establishment of and processes within the couple relationship. Method: In-depth semi-structured interviews with 12 siblings and 12 siblings-in-law of persons with intellectual disabilities were analysed using thematic analysis.…
Descriptors: Intellectual Disability, Siblings, Marriage, Spouses
Langdon, Peter E.; Thompson, Paul A.; Shepstone, Lee; Perez-Olivas, Gisela; Melvin, Clare L.; Barnoux, Magali; Alexander, Regi; Roy, Ashok; Devapriam, John – Journal of Applied Research in Intellectual Disabilities, 2023
Background: We examined whether a series of variables were related to the number of psychiatric inpatients using publicly available data about English psychiatric bed utilisation and NHS workforce. Method: Using linear regression, with auto-regressive errors, we examined relationships between variables over time using data from December 2013 to…
Descriptors: Foreign Countries, Psychiatric Hospitals, Psychiatry, Patients
Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Effects of staff provided positive behaviour support (PBS) for individuals with intellectual disabilities are unclear. Method: Using a multicentre non-randomised cluster controlled design, 26 teams of residential group homes, including 245 staff members of 167 individuals with intellectual disabilities, were allocated to a PBS or…
Descriptors: Adults, Intellectual Disability, Positive Behavior Supports, Allied Health Personnel
Kendra Thomson; Sarah Davis; Sarah Ludmilla Bernier; Carly Magnacca; Steve Noone; Yona Lunsky – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Staff supporting people with intellectual disabilities may experience work-related stress that adversely impacts their wellbeing and capacity to provide support. Acceptance and Commitment Training interventions like Promotion of Acceptance in Carers and Teachers (PACT) have been shown to be effective for reducing stress and promoting…
Descriptors: Well Being, Adults, Intellectual Disability, Allied Health Personnel