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From Assistive to Inclusive? A Systematic Review of the Uses and Effects of Technology to Support People with Pervasive Support Needs
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Lotte Piekema; Annet ten Brug; Aly Waninge; Annette van der Putten – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Although particular technologies can enhance the quality of life (QoL) of people with profound intellectual and multiple disabilities (we use the term pervasive support needs), their objectives and outcomes are understudied. A systematic literature review was therefore conducted to explore this topic. Method: A search of four databases…
Descriptors: Quality of Life, Disabilities, Intellectual Disability, Assistive Technology
Increased Life Expectancy of People with Profound Intellectual and Multiple Disabilities: What Does It Change for Parents?
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Karine Baumstarck; Sibylle Del Duca; Houria El Ouazzani; Ilyes Hamouda; Any Beltran Anzola; Marie-Anastasie Aim; Marie-Christine Rousseau – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Advancements in medicine have increased the life expectancy of the people with profound intellectual and multiple disabilities. The hypothesis is that as parents get older, they worry about no longer being there for their child. This paper explores the extent to which the experiences of older parents may differ from that of younger…
Descriptors: Quality of Life, Severe Disabilities, Multiple Disabilities, Intellectual Disability
A Systematic Review of Research on Staff Training as an Intervention to Develop Communication in Children and Adults with Profound Intellectual and Multiple Disabilities
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Jean Ware; Susan Buell; Darren D. Chadwick; Jill Bradshaw; Juliet Goldbart – Journal of Applied Research in Intellectual Disabilities, 2024
Introduction: This paper aims to identify to what extent staff training interventions are successful in enhancing the development of communication skills in people with profound intellectual and multiple disabilities. Methods: A systematic review was undertaken, conforming to PRISMA guidelines. English language, peer reviewed, empirical studies of…
Descriptors: Children, Adults, Intellectual Disability, Severe Disabilities
'Different Things at Different Times': Wellbeing Strategies and Processes Identified by Parents of Children Who Have an Intellectual Disability or Who Are Autistic, or Both
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Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Survey of Parents of Children with Intellectual Disabilities and/or Autism Who Experience Chronic Constipation
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Rooney, James; Hodge, Rebecca; Smith, Jade; Vanstone, Kelly; Laugharne, Richard; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Constipation is common in children with intellectual disabilities and/or autism, but poorly researched. This study looks to understand parental knowledge, attitudes and management practices towards constipation in children with intellectual disabilities and/or autism. Methods: A cross-sectional online survey developed with patient…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
Parents' Knowledge of Their Child with Profound Intellectual and Multiple Disabilities: An Interpretative Synthesis
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Kruithof, Kasper; Willems, Dick; Etten-Jamaludin, Faridi; Olsman, Erik – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. Method: We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index…
Descriptors: Parent Child Relationship, Caregiver Role, Children, Intellectual Disability
Stakeholder-Driven Approach to Developing a Peer-Mentoring Intervention for Young Adults with Intellectual/Developmental Disabilities and Co-Occurring Mental Health Conditions
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Schwartz, Ariel E.; Kramer, Jessica M.; Rogers, E. Sally; McDonald, Katherine E.; Cohn, Ellen S. – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers. Methods: We conducted exploratory…
Descriptors: Mentors, Intervention, Program Development, Peer Relationship
Identifying Perception Behaviours in People with Profound Intellectual and Multiple Disabilities
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Roemer, Miriam; Verheul, Ellen; Velthausz, Frank – Journal of Applied Research in Intellectual Disabilities, 2018
Background: To support people with profound intellectual and multiple disabilities (PIMD), it is essential to understand how they experience their environment. Insight into perception behaviour may provide an entry point for improved understanding. Materials and Methods: A random sample of a 30-min video registration of five participants with PIMD…
Descriptors: Intellectual Disability, Multiple Disabilities, Perception, Video Technology
Making Sense of Bereavement in People with Profound Intellectual and Multiple Disabilities: Carer Perspectives
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Young, Hannah; Hogg, James; Garrard, Brenda – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities are thought to have a reduced capacity for understanding death. Drawing on cognitive theory, researchers have suggested that those with profound intellectual and multiple disabilities mainly perceive loss as a mismatch between past and present experiences. However, very little research has…
Descriptors: Grief, Intellectual Disability, Death, Severe Intellectual Disability
Peer Interactions among Children with Profound Intellectual and Multiple Disabilities during Group Activities
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Nijs, Sara; Penne, Anneleen; Vlaskamp, Carla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2016
Background: Children with profound intellectual and multiple disabilities (PIMD) meet other children with PIMD in day care centres or schools. This study explores the peer-directed behaviours of children with PIMD, the peer interaction-influencing behaviour of the direct support workers and the children's positioning. Method: Group activities for…
Descriptors: Group Activities, Multiple Disabilities, Intellectual Disability, Children