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Direct linkIrene Tuffrey-Wijne; Andrea Bruun; Elizabeth Tilley; Jo Giles; Sarah Gibson; Amanda Cresswell; Richard Keagan-Bull; Leon Jordan; Gemma Allen; Sarah Swindells; Nicola Payne; Rhidian Hughes; Rebecca Anderson-Kittow – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…
Descriptors: Terminal Illness, Older Adults, Planning, Intellectual Disability
Tuffrey-Wijne, Irene; Finlayson, Janet; Bernal, Jane; Taggart, Laurence; Lam, Claire Kar Kei; Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Illness and death are part of life for everyone, including people with intellectual disabilities. This study investigated the extent to which staff communicate about death with people with intellectual disability facing terminal illness or bereavement. Method: Staff who support people with intellectual disability in the UK (n = 690)…
Descriptors: Death, Adults, Terminal Illness, Grief
