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Underemployment among Mothers of Children with Intellectual Disabilities
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Chou, Yueh-Ching; Kröger, Teppo; Pu, Cheng-yun – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Mothers with lifelong care responsibilities might involuntarily be non-employed or work part-time, both of which are defined as "underemployment." This study aimed to investigate who these underemployed mothers are and what are the factors associated with such employment hardship when having a child with intellectual…
Descriptors: Employment Level, Mothers, Intellectual Disability, Correlation
The Stories of Older Parents of Adult Sons and Daughters with Autism: A Balancing Act
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Hines, Monique; Balandin, Susan; Togher, Leanne – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Researchers acknowledge the importance of understanding how families of children with autism cope. Yet, little is known about the experiences of older parents of adults with autism. Materials and Methods: In-depth interviews were conducted with 16 older parents of adults with autism. Narrative analysis was used to gain insights into…
Descriptors: Autism, Parent Attitudes, Interviews, Phenomenology
Caring for a Child with Learning Disabilities over a Prolonged Period of Time: An Exploratory Survey on the Experiences and Health of Older Parent Carers Living in Scotland
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Cairns, Deborah; Brown, Jayne; Tolson, Debbie; Darbyshire, Chris – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The negative health impacts of prolonged caregiving are widely reported. However, there is a paucity of evidence concerning the impacts of a lifetime of caring on older parents of offspring with learning disabilities. Design and Methods: An exploratory postal survey including the Medical Outcome Study (Short Form) 36 version 2…
Descriptors: Foreign Countries, Mental Retardation, Child Rearing, Mail Surveys
The Role and Timing of Palliative Care in Supporting Persons with Intellectual Disability and Advanced Dementia
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McCarron, Mary; McCallion, Philip; Fahey-McCarthy, Elizabeth; Connaire, Kevin – Journal of Applied Research in Intellectual Disabilities, 2011
Aim: To better describe the role and timing of palliative care in supporting persons with intellectual disabilities and advanced dementia (AD). Background: Specialist palliative care providers have focused mostly on people with cancers. Working with persons with intellectual disabilities and AD offers opportunities to expand such palliative care…
Descriptors: Mental Retardation, Dementia, Focus Groups, Interviews
"Being There": The Experiences of Staff in Dealing with Matters of Dying and Death in Services for People with Intellectual Disabilities
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Todd, Stuart – Journal of Applied Research in Intellectual Disabilities, 2013
Background: Research on staffed housing for people with intellectual disability has identified the challenges in achieving positive quality of life outcomes. However, a less well considered dimension of such services is that they are places of living and dying. This paper looks at the experiences of staff in dealing with issues of death and dying.…
Descriptors: Mental Retardation, Death, Caregivers, Coping
Barriers to Caregiver Compliance with Eating and Drinking Recommendations for Adults with Intellectual Disabilities and Dysphagia
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Chadwick, Darren D.; Jolliffe, Jane; Goldbart, Juliet; Burton, Mark H. – Journal of Applied Research in Intellectual Disabilities, 2006
Background: There is scant research on the subject of dysphagia and people with intellectual disabilities. This study explores the barriers which caregivers believe make following Speech and Language Therapists' (SLTs) dysphagia management strategies more difficult. Method: Semi-structured open-ended interviews were conducted with 46 caregivers…
Descriptors: Mental Retardation, Prompting, Caregivers, Compliance (Psychology)