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Emergency Medical Services Providers' Perspective of End-of-Life Decision Making for People with Intellectual Disabilities
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McGinley, Jacqueline; Waldrop, Deborah P.; Clemency, Brian – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very…
Descriptors: Emergency Programs, Medical Services, Allied Health Personnel, Death
Stakeholders' Perspectives towards the Use of the Comprehensive Health Assessment Program (CHAP) for Adults with Intellectual Disabilities in Manitoba
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Shooshtari, Shahin; Temple, Beverley; Waldman, Celeste; Abraham, Sneha; Ouellette-Kuntz, Héléne; Lennox, Nicholas – Journal of Applied Research in Intellectual Disabilities, 2017
Background: No standardized tool is used in Canada for comprehensive health assessments of adults with intellectual disabilities. This study was conducted to determine the feasibility of implementing the Comprehensive Health Assessment Program (CHAP) in Manitoba, Canada. Method: This was a qualitative study using a purposive sample of physicians,…
Descriptors: Adults, Intellectual Disability, Intervention, Foreign Countries
Validity and Reliability of the Korean Version of the Behaviour Problems Inventory
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Jeong, Byounglock; Yoo, Eunyoung; Jung, Minye; Kang, Daehyuk; Park, Soyeon; Park, Soo Hyun – Journal of Applied Research in Intellectual Disabilities, 2013
Background: The aim of this study was to establish the psychometric properties of the Korean Behaviour Problems Inventory (BPI-01). Methods: Fifty-five allied professionals completed a content validity questionnaire about the Korean BPI-01. To examine reliability, 52 individuals with intellectual disabilities residing in a medium-sized residential…
Descriptors: Test Validity, Test Reliability, Foreign Countries, Questionnaires
How Do Women with an Intellectual Disability Experience the Support of a Doula during Their Pregnancy, Childbirth and after the Birth of Their Child?
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McGarry, Alison; Stenfert Kroese, Biza; Cox, Rachel – Journal of Applied Research in Intellectual Disabilities, 2016
Background: With increasing numbers of people with an intellectual disability choosing to become parents, the right support is imperative for effective parenting (Macintyre & Stewart2011]). The aim of this study was to gain insight into the experiences of parents who received support from Doulas during pregnancy, birth and following the birth…
Descriptors: Foreign Countries, Females, Mothers, Pregnancy
Knowledge of Mental Capacity Issues in Community Teams for Adults with Learning Disabilities
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Willner, Paul; Jenkins, Rosemary; Rees, Paul; Griffiths, Vanessa J.; John, Elinor – Journal of Applied Research in Intellectual Disabilities, 2011
Background: The aim of this study was to evaluate the state of knowledge of mental capacity issues among health and social services professionals working in community teams supporting people with learning disabilities. Methods A structured interview was constructed around three scenarios, based on actual cases, concerning a financial/legal issue,…
Descriptors: Adults, Learning Disabilities, Health Personnel, Social Work
Developing Guidelines for Disclosure or Non-Disclosure of Bad News around Life-Limiting Illness and Death to People with Intellectual Disabilities
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Tuffrey-Wijne, Irene; Giatras, Nikoletta; Butler, Gary; Cresswell, Amanda; Manners, Paula; Bernal, Jane – Journal of Applied Research in Intellectual Disabilities, 2013
Background: There is insufficient evidence to guide decisions around (non-)disclosure of bad news of life-limiting illness and death to people with intellectual disabilities. Aim: The aim of this study was to develop guidelines for decisions about (non-)disclosure of bad news around life-limiting illness and death to people with intellectual…
Descriptors: Guidelines, Disclosure, Diseases, Death
Hurting No-One Else's Body but Your Own: People with Intellectual Disability Who Self Injure in a Forensic Service
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Duperouzel, Helen; Fish, Rebecca – Journal of Applied Research in Intellectual Disabilities, 2010
Background: This paper details the experiences of nine people with mild/moderate intellectual disability who self injure; looking beyond the clinical presentations in an attempt to capture the perceptions these people have of their care in a medium secure unit. Methods: A phenomenological approach was used, and during in-depth interviews, the…
Descriptors: Mental Retardation, Health Personnel, Injuries, Coping
"When Your Child Dies You Don't Belong in that World Any More"--Experiences of Mothers Whose Child with an Intellectual Disability Has Died
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Reilly, Deirdre E.; Huws, Jaci C.; Hastings, Richard P.; Vaughan, Frances L. – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Individuals with intellectual disability are at higher risk of premature death compared with individuals without intellectual disability, and therefore parents of people with intellectual disability are more likely to outlive their children. However, there has been relatively little research investigating the bereavement experiences of…
Descriptors: Mothers, Mental Retardation, Coping, Death