Background: The aim of this study was to explore the current status of end-of-life care and dying of people with intellectual disability based on the experiences of staff in community living services. Materials and Methods: Focus groups and individual interviews were conducted, guided by grounded theory methodology. Results: The current status of…

Background: An increased life expectancy for young adults with Down syndrome has coincided with legislative changes to improve access to housing and employment. This study explores the values and beliefs of mothers of young adults with Down syndrome currently involved in supporting their offspring in the possible transition from dependence to…

Background: Adults with intellectual or developmental disabilities need dietary monitoring but are not likely to be able to provide accurate dietary intake data via traditional methods. Pilot study efforts to meet their support needs with a novel and practical approach to dietary intake data collection are described in this brief report. Materials…

Background: Aspects of daily life have been considered in a population of people with Down syndrome, followed repeatedly from infancy to 21-years old, and again at 30-, 35- and 40-years old. A control sample of non-disabled babies were seen at the same ages. Method: Parents (usually the mothers) and/or carers were interviewed about the people's…