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Direct linkKruithof, Kasper; Willems, Dick; Etten-Jamaludin, Faridi; Olsman, Erik – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Parents' knowledge of their child with profound intellectual and multiple disabilities (PIMD) is seen as crucial in the support and care for their child. The aim of this study was to explore the nature and transferability of this knowledge. Method: We conducted an interpretative synthesis, searched PubMed, CINAHL, Philosopher's Index…
Descriptors: Parent Child Relationship, Caregiver Role, Children, Intellectual Disability
Northway, Ruth; Jenkins, Robert; Holland-Hart, Daniella – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Despite awareness of the age related health needs of people with intellectual disabilities little is known regarding how residential social care staff are prepared to meet such needs. Methods: Data were gathered via semi-structured interviews from 14 managers of supported living settings. Transcripts were thematically analysed.…
Descriptors: Older Adults, Aging (Individuals), Intellectual Disability, Caregiver Training
Findlay, Laura; Williams, Amanda C. de C.; Baum, Sandra; Scior, Katrina – Journal of Applied Research in Intellectual Disabilities, 2015
Background: Caregivers have an intimate knowledge of the individuals they care for and are therefore an important source of information on pain experiences. They are often relied upon to recognize pain-related behaviours and report them, but little is known as to how they experience their role. Methods: Information was collected from 11 caregivers…
Descriptors: Caregivers, Caregiver Role, Pain, Semi Structured Interviews
Access to Secondary Healthcare for People with Intellectual Disabilities: A Review of the Literature
Backer, Clare; Chapman, Melanie; Mitchell, Duncan – Journal of Applied Research in Intellectual Disabilities, 2009
Background: There is growing evidence that people with intellectual disabilities have greater healthcare needs than the general population and that these needs are often unmet. Recently, increasing attention has been drawn to poor care received by people with intellectual disabilities when admitted to hospital. Method: A literature search was…
Descriptors: Mental Retardation, Hospitals, Physical Environment, Access to Health Care
Dodd, Philip; McEvoy, John; Guerin, Suzanne; McGovern, Elizabeth; Smith, Elaine; Hillery, John – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The influence of grief and bereavement on the lives of people with intellectual disabilities is currently receiving much interest. Many of the long-standing rituals associated with bereavement are still practised in Ireland, probably more than in many other Western countries. The present authors were interested in studying the…
Descriptors: Grief, Mental Retardation, Measures (Individuals), Cultural Differences
