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Anke J. E. De Veer; Hille Voss; Anneke L. Francke; Y. Man – Journal of Applied Research in Intellectual Disabilities, 2024
Background: To improve the quality of palliative care, six evidence-based tools were implemented in 10 care services specialised in care for people with intellectual disabilities. Contextual differences were taken into account by using a participatory action research approach. Method: The RE-AIM framework (Reach, Effectiveness, Adoption,…
Descriptors: Intellectual Disability, Intervention, Program Effectiveness, Health Services
Gil-Llario, María Dolores; Fernández-García, Olga; Flores-Buils, Raquel; Huedo-Medina, Tania B.; Morell-Mengual, Vicente; Ballester-Arnal, Rafael – Journal of Applied Research in Intellectual Disabilities, 2023
Background: A positive conception of sexuality among people with intellectual disabilities is crucial and relies on several social and interpersonal contexts. The goal of this study is to analyse the interaction and impact of three different contextual groups: individuals with intellectual disabilities, their parents, and professionals working…
Descriptors: Intellectual Disability, Sexuality, Attitudes, Adults
Ellen H. Steffensen; Stephanie L. Santoro; Lars H. Pedersen; Ida Vogel; Stina Lou – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The meanings of neurodevelopmental conditions are socially and culturally defined. We explored how parents of a child with Down syndrome experienced public and professional understandings of Down syndrome. Method: Qualitative interviews with 25 parents of a child with Down syndrome living in Denmark. From a reflexive thematic analysis,…
Descriptors: Down Syndrome, Parents, Professional Personnel, Knowledge Level
Blamires, Kate; Forrester-Jones, Rachel; Murphy, Glynis – Journal of Applied Research in Intellectual Disabilities, 2017
Background: This small, qualitative study sought to develop a richer understanding of the way in which the deprivation of liberty safeguards (DOLS) were being used for people with intellectual disabilities. It is important to note that this study was completed prior to the changes resulting from the P "v" Cheshire West and Chester…
Descriptors: Qualitative Research, Civil Rights, Intellectual Disability, Court Litigation