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Emergency Medical Services Providers' Perspective of End-of-Life Decision Making for People with Intellectual Disabilities
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McGinley, Jacqueline; Waldrop, Deborah P.; Clemency, Brian – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Emergency medical services (EMS) providers are often called to rapidly determine and act upon patients' wishes for end-of-life care. People with intellectual disabilities are living increasingly longer with complex conditions leading to international calls for person-centred advance care planning. Yet, best estimates suggest that very…
Descriptors: Emergency Programs, Medical Services, Allied Health Personnel, Death
Providing End-Of-Life Care in Disability Community Living Services: An Organizational Capacity-Building Model Using a Public Health Approach
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Grindrod, Andrea; Rumbold, Bruce – Journal of Applied Research in Intellectual Disabilities, 2017
Background: There is broad consensus within the disability field that the end-of-life care offered to people with intellectual disabilities should be of a quality consistent with that advocated by contemporary palliative care. In practice, however, various barriers are encountered when applying palliative care strategies to the end-of-life care of…
Descriptors: Foreign Countries, Death, Medical Services, Intellectual Disability
People with Intellectual Disabilities at the End of Their Lives: The Case for Specialist Care?
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Forrester-Jones, Rachel; Beecham, Jennifer K.; Barnoux, Magali; Oliver, David; Couch, Elyse; Bates, Claire – Journal of Applied Research in Intellectual Disabilities, 2017
Background: People with intellectual disabilities have a shorter life expectancy, but healthcare improvements mean that they are beginning to live longer, with associated health difficulties. This means that there is an urgent need to focus research on ageing as well as end-of-life care. This study aimed to explore a specialist intellectual…
Descriptors: Intellectual Disability, Aging (Individuals), Death, Older Adults
Caring for a Child with Learning Disabilities over a Prolonged Period of Time: An Exploratory Survey on the Experiences and Health of Older Parent Carers Living in Scotland
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Cairns, Deborah; Brown, Jayne; Tolson, Debbie; Darbyshire, Chris – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The negative health impacts of prolonged caregiving are widely reported. However, there is a paucity of evidence concerning the impacts of a lifetime of caring on older parents of offspring with learning disabilities. Design and Methods: An exploratory postal survey including the Medical Outcome Study (Short Form) 36 version 2…
Descriptors: Foreign Countries, Mental Retardation, Child Rearing, Mail Surveys