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Ljungberg, Malin; Schön, Ulla-Karin – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often…
Descriptors: Autism Spectrum Disorders, Parents, Aging (Individuals), Well Being
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Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
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Rooney, James; Hodge, Rebecca; Smith, Jade; Vanstone, Kelly; Laugharne, Richard; Shankar, Rohit – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Constipation is common in children with intellectual disabilities and/or autism, but poorly researched. This study looks to understand parental knowledge, attitudes and management practices towards constipation in children with intellectual disabilities and/or autism. Methods: A cross-sectional online survey developed with patient…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders