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Using a Capability Approach to Explore How People with Intellectual Disabilities Can Lead Flourishing Lives
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Sara Ryan; Rosaleen O'Brien – Journal of Applied Research in Intellectual Disabilities, 2024
Background: People with intellectual disabilities remain disadvantaged in many aspects of everyday life. Capability approach is an underused approach in social care research and has at its core the importance of having capabilities or opportunities to do what we value. We use this approach to explore how people with intellectual disabilities can…
Descriptors: Intellectual Disability, Quality of Life, Psychological Patterns, Empowerment
Life Satisfaction, Global Health and Mood in Prader-Willi Syndrome: Use of PROMIS and Glasgow Depression Scales
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Lauren Schwartz; Caroline J. Vrana-Diaz; Jessica E. Bohonowych; Lisa Matesevac; Theresa V. Strong – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Prader-Willi syndrome (PWS) is a rare neurodevelopmental disorder with symptoms that impact health and quality of life (QOL). There is limited data on global health, QOL and the relationship with mood in individuals with PWS. Methods: Parents completed three validated assessments, the Glasgow Depression Scale-Carer Supplement (GDS-CS),…
Descriptors: Life Satisfaction, Health, Psychological Patterns, Genetic Disorders
Effects of Positive Behaviour Support Delivered by Direct Staff on Challenging Behaviours and Quality of Life of Adults with Intellectual Disabilities: A Multicentre Cluster-Controlled Trial
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Bruinsma, Eke; van den Hoofdakker, Barbara J.; Hoekstra, Pieter J.; de Kuijper, Gerda M.; de Bildt, Annelies A. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Effects of staff provided positive behaviour support (PBS) for individuals with intellectual disabilities are unclear. Method: Using a multicentre non-randomised cluster controlled design, 26 teams of residential group homes, including 245 staff members of 167 individuals with intellectual disabilities, were allocated to a PBS or…
Descriptors: Adults, Intellectual Disability, Positive Behavior Supports, Allied Health Personnel
Thriving with Down Syndrome: A Qualitative Multiple Case Study
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Thompson, Talia; Talapatra, Devadrita; Hazel, Cynthia E.; Coleman, Jeanine; Cutforth, Nicholas – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Down syndrome (DS) is the most common genetic cause of intellectual disability. Prior research has primarily focused on associated medical problems and skill deficits. This study takes a novel positive psychology approach by examining critical individual characteristics and environmental factors that facilitate exceptional quality of…
Descriptors: Down Syndrome, Case Studies, Adults, Well Being
A Qualitative Study about Quality of Life in Brazilian Families with Children Who Have Severe or Profound Intellectual Disability
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Rodrigues, Stephania A.; Fontanella, Bruno J. B.; Avó, Lucimar R. S.; Germano, Carla M. R.; Melo, Débora G. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study investigated the psychocultural perspectives concerning family quality of life among Brazilian families with children who have severe or profound intellectual disability. Methods: Individual in-depth semi-structured interviews conducted with 15 mothers, selected by convenience, were analysed using a categorical thematic…
Descriptors: Foreign Countries, Quality of Life, Severe Intellectual Disability, Family Environment
Subjective Quality of Life of People with Intellectual Disabilities: The Role of Emotional Competence on Their Subjective Well-Being
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Rey, Lourdes; Extremera, Natalio; Duran, Auxiliadora; Ortiz-Tallo, Margarita – Journal of Applied Research in Intellectual Disabilities, 2013
Background: For decades, the field of quality of life for people with intellectual disabilities has focused on the improving the external life conditions. However, scarce research has examined the contribution of person-related psychological resources such as emotional competence (EC) on well-being in this population. Materials and Methods: Using…
Descriptors: Quality of Life, Well Being, Mental Retardation, Emotional Development
Supported Employment for People with Intellectual Disability: The Effects of Job Breakdown on Psychological Well-Being
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Banks, Pauline; Jahoda, Andrew; Dagnan, Dave; Kemp, John; Williams, Victoria – Journal of Applied Research in Intellectual Disabilities, 2010
Background: This paper focuses on the transition to supported employment for people with intellectual disabilities paying particular attention to the impact of job breakdown on psychological well-being; an issue often omitted from studies. Materials and Methods: Forty-nine people with intellectual disabilities were interviewed within 3 months of…
Descriptors: Supported Employment, Mental Retardation, Quality of Life, Psychology
"I Get by with a Little Help from My Friends": Adults with Intellectual Disability Discuss Loneliness
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McVilly, Keith R.; Stancliffe, Roger J.; Parmenter, Trevor R.; Burton-Smith, Rosanne M. – Journal of Applied Research in Intellectual Disabilities, 2006
Background: This study explored "loneliness" as experienced by adults with intellectual disability, with "intermittent" to "limited" support needs. Method: A measure of loneliness was piloted, and qualitative techniques used to develop a greater understanding of the participants' experience. Results: The Loneliness Scale proved valid and reliable…
Descriptors: Mental Retardation, Quality of Life, Social Networks, Psychological Patterns