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Garcia-Lee, Benjamin; Strnadová, Iva; Dowse, Leanne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: In disability studies belonging is emerging as a promising area of study. Inclusive research, based as it is on lived experience perspectives, is likely to provide salient insights into belonging in the lives of people with intellectual disabilities. Method: A systematic review utilising four databases and five leading journals in the…
Descriptors: Sense of Community, Intellectual Disability, Research, Inclusion
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Hewitt, Olivia; Langdon, Peter E.; Tapp, Katherine; Larkin, Michael – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Using inclusive research methods with people with intellectual disabilities is increasingly common. A recent consensus statement identified key elements when conducting and reporting inclusive research with people with intellectual disabilities. This review identifies the range of health and social care research topics using inclusive…
Descriptors: Literature Reviews, Personal Narratives, Inclusion, Intellectual Disability
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Fulton, Lauren; Kinnear, Deborah; Jahoda, Andrew – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Social inclusion has been explored using a wide range of theories and methods. Belonging and reciprocity have been identified as key components of social inclusion. This systematic methodological review identifies and evaluates the theoretical frameworks and qualitative approaches adopted to explore belonging and reciprocity in the…
Descriptors: Sense of Community, Intellectual Disability, Inclusion, Social Environment
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McDonald, Katherine E.; Gibbons, Colleen; Conroy, Nicole; Olick, Robert S. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Adults with intellectual disability experience disparities in social determinants of health and health outcomes. While new knowledge can advance health equity, adults with intellectual disability are frequently excluded from being direct respondents in research. Their inclusion requires addressing scientific and ethical challenges that…
Descriptors: Adults, Intellectual Disability, Research, Sampling
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McFarland, Bridget; Bryant, Lia; Wark, Stuart; Morales-Boyce, Tyson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Historically the voices of people with intellectual disability have been occluded by barriers imposed by research practice. More recently, adaptive research approaches have been proposed to enhance the inclusion of people with intellectual disability in qualitative research. Method: This article presents an adaptive interviewing…
Descriptors: Foreign Countries, Intellectual Disability, Interviews, Adjustment (to Environment)
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Nind, Melanie; Chapman, Rohhss; Seale, Jane; Tilley, Liz – Journal of Applied Research in Intellectual Disabilities, 2016
Background: This study explores the training involved when people with learning disabilities take their place in the community as researchers. This was a theme in a recent UK seminar series where a network of researchers explored pushing the boundaries of participatory research. Method: Academics, researchers with learning disabilities, supporters…
Descriptors: Learning Disabilities, Foreign Countries, Seminars, Participatory Research
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Bigby, Christine; Frawley, Patsie; Ramcharan, Paul – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The inclusion of people with intellectual disability in research is a common requirement of research funding. Little conceptual clarity is available to guide the conduct of inclusive research or judge its fidelity, there is minimal evidence of its impact, and questions remain about its feasibility and rigour. Method: A comprehensive…
Descriptors: Mental Retardation, Inclusion, Participatory Research, Teamwork
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Stevenson, Miriam – Journal of Applied Research in Intellectual Disabilities, 2014
Background: There is comparatively little published research that transparently charts the contribution of people with an intellectual disability to a collaborative research process. This paper illustrates the process of data analysis in a project located within the Emancipatory Disability Research (EDR) paradigm. Materials and Methods: Textual…
Descriptors: Data Analysis, Participatory Research, Down Syndrome, Action Research
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Walmsley, Jan; Hart, Craig; Davies, Ian; Still, Angela; O'Byrne, Catherine – Journal of Applied Research in Intellectual Disabilities, 2014
Background: This paper tells the story of Central England People First's (CEPF) History Project. Method: This was an inclusive research project, owned and controlled by members of CEPF which sought to chart its 21-year history, 1990-2012. Results: It illustrates both the strengths of such a project and some of the challenges. Conclusion: It…
Descriptors: Self Advocacy, Inclusion, Participatory Research, Organizational Objectives
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Bigby, Christine; Frawley, Patsie; Ramcharan, Paul – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Funding bodies in Australia and the United Kingdom require research on issues that affect the lives of people with intellectual disability to be inclusive. Debate continues about the nature and benefits of inclusive research, which has become an umbrella term encompassing a broad spectrum of approaches. Method: This study proposes one…
Descriptors: Participatory Research, Inclusion, Mental Retardation, Self Advocacy
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Chapman, Rohhss – Journal of Applied Research in Intellectual Disabilities, 2014
Background: The role of the support worker in self-advocacy groups for people with intellectual disability is pivotal in setting the scene for empowerment. However, despite the growing importance of the role, it has attracted very little scrutiny. Method: The study developed an inclusive team approach working alongside researchers labelled with…
Descriptors: Self Advocacy, Participatory Research, Inclusion, Mental Retardation
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Strnadová, Iva; Cumming, Therese M.; Knox, Marie; Parmenter, Trevor – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Inclusive research teams typically describe their experiences and analyse the type of involvement of researchers with disability, but the process of building research teams and the need for research training still remain underexplored in the literature. Materials and Method: Four researchers with intellectual disabilities and four…
Descriptors: Skill Development, Team Training, Teamwork, Research Projects
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Kramer, Jessica M.; Kramer, John C.; Garcia-Iriarte, Edurne; Hammel, Joy – Journal of Applied Research in Intellectual Disabilities, 2011
Background: Scholars have called for research approaches that actively include and are driven by people with intellectual disabilities, but the process of inclusive data analysis has been scarcely documented in the literature. This paper demonstrates the process university researchers and a group of self-advocates used to analyse and interpret…
Descriptors: Empowerment, Action Research, Mental Retardation, Research Methodology