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Assessing the Reliability and Validity of a Health-Related Quality of Life Instrument, CPADULT, in a Dutch Sample of Adults with Severe Disabilities Who Are Non-Ambulatory
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Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024
Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…
Descriptors: Test Validity, Test Reliability, Quality of Life, Adults
Development and Sensibility Assessment of a Health-Related Quality of Life Instrument for Adults with Severe Disabilities Who Are Non-Ambulatory
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Zalmstra, Trees A. L.; Elema, Agnes; van Gils, Willemijn; Reinders-Messelink, Heleen A.; van der Sluis, Corry K.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Insight in health-related quality of life (HRQoL) of adults with severe disabilities who are non-ambulatory is important, but a measure is lacking. The aim was to develop a HRQoL measure for this group. Method: The developmental process consisted of the adaptation process of a proxy HRQoL measure for children with severe disabilities…
Descriptors: Quality of Life, Adults, Severe Disabilities, Physical Disabilities
'We Can't Do It Alone': Perceived Social Support in Parents of Children with a Significant Cognitive and Motor Developmental Delay
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Van Keer, Ines; Van Leeuwen, Karla; Maes, Bea – Journal of Applied Research in Intellectual Disabilities, 2022
Background: It is generally acknowledged that parent social support is an important target for intervention. To explore the specific needs of parents of young children with a significant cognitive and motor developmental delay (SDD), we aim to chart the sources and perceived sufficiency of the social support they receive. Method: Within the…
Descriptors: Parent Attitudes, Social Support Groups, Intellectual Disability, Developmental Delays
Postural Care for People with Intellectual Disabilities and Severely Impaired Motor Function: A Scoping Review
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Robertson, Janet; Baines, Susannah; Emerson, Eric; Hatton, Chris – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Poor postural care can have severe and life-threatening complications. This scoping review aims to map and summarize existing evidence regarding postural care for people with intellectual disabilities and severely impaired motor function. Method: Studies were identified via electronic database searches (MEDLINE, CINAHL, PsycINFO and…
Descriptors: Human Posture, Intellectual Disability, Physical Disabilities, Severe Disabilities