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Reliable Assessment of Pain Behaviour in Adults with Profound Intellectual and Multiple Disabilities: The Development of an Instruction Protocol

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Enninga, Annemieke; Waninge, Aly; Post, Wendy J.; van der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2023

Background: Persons with profound intellectual and multiple disabilities (PIMD) are vulnerable when it comes to experiencing pain. Reliable assessment of pain-related behaviour in these persons is difficult. "Aim" To determine how pain items can be reliably scored in adults with PIMD. Methods: We developed an instruction protocol for the…

Descriptors: Test Reliability, Pain, Behavior, Adults

Assessing the Reliability and Validity of a Health-Related Quality of Life Instrument, CPADULT, in a Dutch Sample of Adults with Severe Disabilities Who Are Non-Ambulatory

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Zalmstra, Trees A. L.; Reinders-Messelink, Heleen A.; Elema, Agnes; Van Gils, Willemijn; Van Der Sluis, Corry K.; Van Der Putten, Annette A. J. – Journal of Applied Research in Intellectual Disabilities, 2024

Background: A measure to provide insight regarding health-related quality of life of adults with severe motor and intellectual disabilities was lacking. For this reason, the CPADULT was developed. This measure includes domains relating to an individual's physical, mental, and social functioning. The purpose of this study was to assess the…

Descriptors: Test Validity, Test Reliability, Quality of Life, Adults

Validating GO4KIDDS as a Brief Measure of Adaptive Skills in Special Education Settings for Children with Severe Intellectual Disability

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Pan, Xinyu; Totsika, Vasiliki; Nicholls, Gemma; Paris, Andreas – Journal of Applied Research in Intellectual Disabilities, 2019

Background: Adaptive skills measures tend to be lengthy. The GO4KIDDS (Great Outcomes for Kids Impacted by Severe Developmental Disabilities; (Journal of Applied Research in Intellectual Disabilities, 58, 2015 and 594)) Brief Adaptive Behaviour Scale was developed to provide a brief assessment of adaptive skills. Our study aimed to examine the…

Descriptors: Developmental Disabilities, Test Validity, Test Reliability, Psychometrics