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Direct linkPeters, Vincent J. T.; Bok, Levinus A.; de Beer, Lieke; Rooij, Joyce J. M.; Meijboom, Bert R.; Bunt, Jan Erik H. – Journal of Applied Research in Intellectual Disabilities, 2022
Background: Transitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition. Method: A qualitative study was…
Descriptors: Down Syndrome, Parents, Health Personnel, Parent Attitudes
Taylor, Whitney D.; Cobigo, Virginie; Ouellette-Kuntz, Hélène – Journal of Applied Research in Intellectual Disabilities, 2019
Background: This study explored the way families support self-determination in young adults with intellectual and developmental disabilities (IDD) during life transitions. Method: Qualitative case studies were conducted with two Canadian families who participated in semi-structured interviews and ethnographic observations every quarter for one…
Descriptors: Family Involvement, Self Determination, Young Adults, Intellectual Disability
Gauthier-Boudreault, Camille; Couture, Mélanie; Gallagher, Frances – Journal of Applied Research in Intellectual Disabilities, 2018
Background: At age 21, access to specialised services for youth with profound intellectual disability is reduced. Few studies have focused on parents' views concerning potential solutions to ease the transition to adulthood, and most existing solutions target young adults with less severe intellectual disability. The aim of this study is to…
Descriptors: Young Adults, Severe Intellectual Disability, Parent Attitudes, Semi Structured Interviews
McKenzie, Katherine; Ouellette-Kuntz, Hélène; Blinkhorn, Ashleigh; Démoré, Ashley – Journal of Applied Research in Intellectual Disabilities, 2017
Background: The transition period out of the educational system can be a source of stress for parents of young adults with intellectual and developmental disabilities, as families lose the support and respite offered by schools. Materials and Methods: Using a before and after design nested within a 24-month follow-up study of parents seeking adult…
Descriptors: Young Adults, Developmental Disabilities, Transitional Programs, Intellectual Disability
Docherty, Julie; Reid, Kate – Journal of Applied Research in Intellectual Disabilities, 2009
Background: An increased life expectancy for young adults with Down syndrome has coincided with legislative changes to improve access to housing and employment. This study explores the values and beliefs of mothers of young adults with Down syndrome currently involved in supporting their offspring in the possible transition from dependence to…
Descriptors: Mothers, Down Syndrome, Young Adults, Equal Opportunities (Jobs)
Clegg, Jennifer; Murphy, Elizabeth; Almack, Kathryn; Harvey, Anna – Journal of Applied Research in Intellectual Disabilities, 2008
Background: Inclusion is one of four policies for people with disabilities in the UK. Criticisms of its three key attributes--mainstreaming, independent living and employment--are reviewed. Methods: This study of 28 young people, most with severe intellectual disabilities, investigated engagement with inclusion at their transition to adult…
Descriptors: Employment Level, Mainstreaming, Independent Living, Severe Mental Retardation
