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Who Cares? A Scoping Review about the Experiences of Parental Caregivers of Autistic Adults
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Ljungberg, Malin; Schön, Ulla-Karin – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often…
Descriptors: Autism Spectrum Disorders, Parents, Aging (Individuals), Well Being
Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children with Intellectual Disabilities and/or Who Are Autistic
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Daniel Sutherland; Samantha Flynn; Joanna Griffin; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…
Descriptors: Developmental Disabilities, Children, Early Adolescents, Family Environment
'Different Things at Different Times': Wellbeing Strategies and Processes Identified by Parents of Children Who Have an Intellectual Disability or Who Are Autistic, or Both
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Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders