ERIC Number: EJ1435660
Record Type: Journal
Publication Date: 2024-Sep
Pages: 15
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: N/A
Experiences of Family Carers in Providing Care to Children with Intellectual Disabilities in India: A Qualitative Evidence Synthesis
Kumaresan Cithambaram; D. Corby; Shankar Shanmugam Rajendran
Journal of Applied Research in Intellectual Disabilities, v37 n5 e13269 2024
Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was undertaken, searching databases such as MEDLINE, CINAHL, Web of Science, and PsycInfo up to October 2023. Grey literature was also searched for unpublished studies, with two reviewers assessing methodological quality. Eleven eligible studies, mostly qualitative in design, were included in the review. The data synthesis followed a thematic approach. Results: The synthesis found five themes representing family carers' experiences and perspectives. These were 'resilience and acceptance', 'parental response', 'care dynamic', 'preparing for transition to adulthood' and 'parental advocacy'. Conclusion: Family carers hold diverse views, while almost all consider providing care complex and challenging, with few positive experiences.
Descriptors: Foreign Countries, Intellectual Disability, Family Role, Caregivers, Children, Resilience (Psychology), Family Attitudes, Parent Role, Adolescent Development, Advocacy
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Identifiers - Location: India
Grant or Contract Numbers: N/A
Author Affiliations: N/A