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Grace Rutherford; Rafat Hussain; Kathleen Tait – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Non-communicable diseases (NCDs), also known as chronic diseases, now constitute a major proportion of ill-health across most adult and older populations including in people with intellectual disability. The current paper is a comparative analysis of prevalence of NCDs across mid-aged and older-aged people with mild intellectual…
Descriptors: Comorbidity, Adults, Older Adults, Intellectual Disability
Rebecca J. Anderson-Kittow; Richard Keagan-Bull; Jo Giles; Irene Tuffrey-Wijne – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Increasing numbers of older adults with intellectual disabilities are living with ageing parents. These families need support to plan for the future to avoid crisis interventions following parental death. Method: Interviews and focus groups were conducted with people with intellectual disabilities (aged 40+) (N = 9), parents (N = 11)…
Descriptors: Family (Sociological Unit), Older Adults, Long Range Planning, Intellectual Disability
Stephanie Corrigan; Mary McCarron; Philip McCallion; Éilish Burke – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Negative mental health implications of menopause found in the general population, combined with high rates of mental health conditions found in women with intellectual disabilities, provide rationale to examine the existing literature to determine the impact of menopause on women with intellectual disabilities. Methods: The review was…
Descriptors: Adults, Females, Intellectual Disability, Aging (Individuals)
Irene Tuffrey-Wijne; Andrea Bruun; Elizabeth Tilley; Jo Giles; Sarah Gibson; Amanda Cresswell; Richard Keagan-Bull; Leon Jordan; Gemma Allen; Sarah Swindells; Nicola Payne; Rhidian Hughes; Rebecca Anderson-Kittow – Journal of Applied Research in Intellectual Disabilities, 2025
Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…
Descriptors: Terminal Illness, Older Adults, Planning, Intellectual Disability
Peter Baker; Josephine Chishty-Collins; Nick Gore – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The psychological wellbeing of staff who provide support to people with intellectual and developmental disabilities is one of the crucial factors in determining the quality of provision offered. An understanding of the current status and influencing variables of staff psychological wellbeing is considered to be vital in this respect.…
Descriptors: Adults, Intellectual Disability, Employees, Caregivers
Janet Finlayson; Nick Gore; Paul Ord; Fiona Roche; John Butcher; Ryan Kean; Dawn A. Skelton – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Between 26% and 52% of adults with intellectual disability experience urinary incontinence (UI). Little is known about the implications of urinary tract infections (UTIs) for this group. The aim was to screen for UTIs in a sample of adults with intellectual disability and UI. Method: Twenty adults with intellectual disability and UI…
Descriptors: Communicable Diseases, Adults, Intellectual Disability, Human Body
Sophie C. Westrop; Laura Maenhout; Craig A. Melville; Arlene M. McGarty – Journal of Applied Research in Intellectual Disabilities, 2024
Background: There is a paucity of theory-informed physical activity research with adults with intellectual disabilities. This study aimed to address this by synthesising existing literature and applying the COM-B model to understand capabilities, opportunities and motivations. Methods: A qualitative evidence synthesis was conducted and reported in…
Descriptors: Adults, Intellectual Disability, Physical Activities, Opportunities
Verity Chester; Medha Cherukat; Nicholas Smith; Elizabeth Patteril; Indermeet Sawhney; Asif Zia; Regi Alexander – Journal of Applied Research in Intellectual Disabilities, 2025
Introduction: Hypothyroidism is a chronic health condition which causes physical, cognitive and psychiatric symptoms. The prevalence of hypothyroidism in adults with intellectual disabilities is under researched. Method: Hypothyroidism was examined among 463 patients within an outpatient intellectual disability psychiatric team. Clinic records…
Descriptors: Intellectual Disability, Physiology, Metabolism, Adults
Louise Lynch; Mary McCarron; Philip McCallion; Eilish Burke – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The positive impact of physical activity on health is widely known. A comparison between activPAL objective measures and International Physical Activity Questionnaire short form (IPAQ-SF) self-reported activity levels was completed with older adults with intellectual disability. Understanding differences between the two methodologies…
Descriptors: Physical Activities, Questionnaires, Older Adults, Intellectual Disability
Helena, Taubner; Magnus, Tideman; Carin, Staland-Nyman – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Swedish employment rates are disproportionately low among people with intellectual disability and research on employment sustainability in this group is scarce. This study investigated employment sustainability among people with intellectual disability, with a focus on identifying facilitators. Method: Fifteen persons with intellectual…
Descriptors: Intellectual Disability, Employment, Sustainability, Foreign Countries
Altman, Carmit; Avraham, Ilanit; Meirovich, Shlomit Shnitzer; Lifshitz, Hefziba – Journal of Applied Research in Intellectual Disabilities, 2022
Individuals with intellectual disability may have limited narrative skills. The novelty of this study lies in the examination of strengths and weaknesses which may enable a more facilitative approach to narrative and other storytelling-based methodologies among adults with intellectual disability who study in an academic enrichment program in…
Descriptors: Intellectual Disability, Students with Disabilities, Story Telling, Adult Students
Kim J. V. Sanders; Roy G. Elbers; Luc P. Bastiaanse; Michael A. Echteld; Heleen M. Evenhuis; Dederieke A. M. Festen – Journal of Applied Research in Intellectual Disabilities, 2024
Background: We investigated the prevalence of swallowing difficulties and associated factors in people with intellectual disability. Methods: We included people aged 50+ receiving care for people with intellectual disabilities. The Dysphagia Disorder Survey (DDS) was used to assess swallowing difficulties. We determined the agreement between the…
Descriptors: Older Adults, Intellectual Disability, Psychomotor Skills, Human Body
Ashley Scott; Ryan Gould; Liam Quidore; Keryden Koeut-Futch; Emily Bock; Prisha Sujin Kumar; Staci Christensen; Augusta Edouard; Benjamin Golden; Eden Rapp; Kaethe Sigelko; Alexis Sokoloff; Caley Versfelt; Eric Rubenstein – Journal of Applied Research in Intellectual Disabilities, 2025
Background: At least half of children and adults with Down syndrome have a major mental health concern during their life but few studies ask people with Down syndrome directly about their experience. We used a co-research model to explore anxiety, stress, and coping in adults with Down syndrome. Methods: Our group of researchers and adults with…
Descriptors: Down Syndrome, Adults, Stress Variables, Anxiety
Vascelli, Luca; Berardo, Federica; Iacomini, Silvia; Scorza, Maristella; Cavallini, Francesca – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Social communication skills are critical for full participation in social activities in primary life contexts for adolescents and young adults with neurodevelopmental disorders. Method: Two young adults with Prader Willi syndrome participated in an online socialisation programme with elderly and adolescent conversational partners. We…
Descriptors: Communication Skills, Interpersonal Communication, Young Adults, Genetic Disorders
Lianne Bakkum; Célinde Paalman; Annelieke Müller; Agnies van Eeghen; Carlo Schuengel – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Experience sampling may be useful for mental health research with people with intellectual disability, and evidence of the potential benefits is starting to emerge. This multiple-method study identified potential avenues for tailoring this method to the needs of people with intellectual disability. Method: A scoping review was…
Descriptors: Mental Health, Research Methodology, Intellectual Disability, Adults