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Melissa Raspa; Angela Gwaltney; Carla Bann; Jana von Hehn; Timothy A. Benke; Eric D. Marsh; Sarika U. Peters; Amitha Ananth; Alan K. Percy; Jeffrey L. Neul – Journal of Autism and Developmental Disorders, 2025
Rett syndrome is a severe neurodevelopmental disorder that affects about 1 in 10,000 females. Clinical trials of disease modifying therapies are on the rise, but there are few psychometrically sound caregiver-reported outcome measures available to assess treatment benefit. We report on a new caregiver-reported outcome measure, the Rett Caregiver…
Descriptors: Neurodevelopmental Disorders, Genetic Disorders, Females, Test Validity
Liliana Wagner; Alison Vehorn; Amy S. Weitlauf; Ambar Munoz Lavanderos; Joshua Wade; Laura Corona; Zachary Warren – Journal of Autism and Developmental Disorders, 2025
The wait for ASD evaluation dramatically increases with age, with wait times of a year or more common as children reach preschool. Even when appointments become available, families from traditionally underserved groups struggle to access care. Addressing care disparities requires designing identification tools and processes specifically for and…
Descriptors: Autism Spectrum Disorders, Preschool Children, Access to Health Care, Access to Education
Marianne Berg Halvorsen; Arvid Nikolai Kildahl; Sabine Kaiser; Brynhildur Axelsdottir; Michael G. Aman; Sissel Berge Helverschou – Journal of Autism and Developmental Disorders, 2025
In recent years, there has been a proliferation of instruments for assessing mental health (MH) among autistic people. This study aimed to review the psychometric properties of broadband instruments used to assess MH problems among autistic people. In accordance with the PRISMA guidelines (PROSPERO: CRD42022316571) we searched the APA PsycINFO via…
Descriptors: Psychometrics, Mental Health, Clinical Diagnosis, Evaluation Methods
Morgan L. McNair; Victoria Mondejar; Erin J. Libsack; Nicole H. Mordekai; Clark McKown; Nicole M. Russo-Ponsaran; Matthew D. Lerner – Journal of Autism and Developmental Disorders, 2025
Social problem solving (SPS) represents a social cognitive reasoning process that gives way to behavior when individuals are navigating challenging social situations. Autistic individuals have been shown to struggle with specific aspects of SPS, which, in turn, has been related to social difficulties in children. However, no previous work has…
Descriptors: Elementary School Students, Autism Spectrum Disorders, Interpersonal Competence, Social Problems
Emily Fourie; Szu-Ching Lu; Jonathan Delafield-Butt; Susan M. Rivera – Journal of Autism and Developmental Disorders, 2025
Autistic individuals often exhibit motor atypicalities, which may relate to difficulties in social communication. This study utilized a smart tablet activity to computationally characterize motor control by testing adherence to the two-thirds power law (2/3 PL), which captures a systematic covariation between velocity and curvature in motor…
Descriptors: Preschool Children, Elementary School Students, Autism Spectrum Disorders, Psychomotor Skills
Kelsey Harkness; Signe Bray; Chelsea M. Durber; Deborah Dewey; Kara Murias – Journal of Autism and Developmental Disorders, 2025
Attention and executive function (EF) dysregulation are common in a number of disorders including autism and attention-deficit/hyperactivity disorder (ADHD). Better understanding of the relationship between indirect and direct measures of attention and EF and common neurodevelopmental diagnoses may contribute to more efficient and effective…
Descriptors: Adolescents, Autism Spectrum Disorders, Attention Deficit Hyperactivity Disorder, Executive Function
Harlee Onovbiona; Lauren Quetsch; Emily-Anne Del Rosario – Journal of Autism and Developmental Disorders, 2025
The goal of the present study was to compare profiles among Black families of autistic youth who were identified Early ([less than or equal to] 2 years of age), Mid (age 3 or 4), and Delayed ([greater than or equal to] 5 years of age) to better identify the characteristics that contribute to early ASD identification and delayed ASD identification.…
Descriptors: Infants, Toddlers, Infant Care, Preschool Children