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Direct linkVargas Londono, Fabiola; Lim, Nataly; Barnett, Monique R.; Hampton, Lauren H.; Falcomata, Terry S. – Journal of Autism and Developmental Disorders, 2023
Parents are the primary source of support for their children and can become principal interventionists for preventing and treating their child's challenging behavior. Yet, providing adequate and adapted training for culturally diverse families can be difficult due to the increase of international migration and the diversity of languages spoken…
Descriptors: Child Caregivers, Behavior Problems, Child Behavior, Diversity
Wei, Qi; Machalicek, Wendy; Zhu, Jinlan – Journal of Autism and Developmental Disorders, 2023
The present study evaluated treatment acceptability for behavioral interventions addressing challenging behaviors with Chinese caregivers of children with autism spectrum disorder. Factors influencing treatment acceptability (i.e., severity of challenging behavior and Chinese child-rearing values) were investigated. Caregivers of children aged…
Descriptors: Foreign Countries, Child Caregivers, Children, Autism Spectrum Disorders
Katey Hayes; Haley C. Adams; Mackenzie Robeson; Kimberly R. Zlomke – Journal of Autism and Developmental Disorders, 2024
Caregivers of children with autism spectrum disorder (ASD) often report higher rates of depression and the related negative thought patterns that may precede a clinical diagnosis. These negative thought patterns are referred to as depressive cognitions. Depressive cognitions are exacerbated by child problem behaviors (CPB) but may be impacted by…
Descriptors: Resilience (Psychology), Child Behavior, Behavior Problems, Child Caregivers
Noemi Alice Spinazzi; Alyssa Bianca Velasco; Drew James Wodecki; Lina Patel – Journal of Autism and Developmental Disorders, 2024
This study aimed to learn about the experiences of families of individuals with a dual diagnosis of Down syndrome (DS) and autism spectrum disorder (ASD) (DS-ASD), and to document the journey from early concerns to diagnosis and intervention. Caregivers completed an online survey describing their journey raising a child with DS-ASD. Survey…
Descriptors: Autism Spectrum Disorders, Down Syndrome, Family Attitudes, Caregiver Attitudes
Andersen, Allan M.; Law, J. Kiely; Marvin, Alison R.; Lipkin, Paul H. – Journal of Autism and Developmental Disorders, 2020
The Interactive Autism Network (IAN) administered a survey to caregivers of children with Autism Spectrum Disorder (ASD) on their interventions for elopement behavior (EB). Data from 526 respondents were analyzed. Most families reported multiple interventions for EB and rated interventions overall as effective but burdensome. Several interventions…
Descriptors: Autism, Pervasive Developmental Disorders, Child Caregivers, Children
Lovell, Brian; Wetherell, Mark A. – Journal of Autism and Developmental Disorders, 2020
Caregivers of children with ASD often find benefits associated with their caregiving role, and benefit finding predicts lower distress. Child problematic behaviours (CPB), which positively predict caregivers' distress, are perceived to be being less problematic, or more manageable, by caregivers who find benefits. Benefit finding therefore might…
Descriptors: Children, Autism, Pervasive Developmental Disorders, Caregivers
Adams, Haley C.; Zlomke, Kimberly R.; Rossetti, Kristina G. – Journal of Autism and Developmental Disorders, 2023
Female caregivers of children with autism spectrum disorder (ASD) often report higher levels of psychological distress related to increased levels of caregiver strain, as well as frequency and severity of child problem behaviors (CPB). However, despite reported distress, caregivers have also reported benefits. A sample of n = 259 female caregivers…
Descriptors: Parent Child Relationship, Parenting Styles, Autism Spectrum Disorders, Females
Antezana, Ligia; Albright, Jordan; Scarpa, Angela; Richey, John A.; Laugeson, Elizabeth A.; Factor, Reina S. – Journal of Autism and Developmental Disorders, 2023
PEERS® for Preschoolers (P4P) is a social skills group program for young autistic children and their caregivers, which provides everyday tools for interacting and communicating with others. Twenty-two caregiver-child dyads participated and completed pre-treatment, post-treatment, and follow-up measures (4-16 weeks after). Using single-subject…
Descriptors: Preschool Children, Interpersonal Competence, Child Caregivers, Autism Spectrum Disorders
Kazak, Anne; Ramirez, Alejandra Perez; Scialla, Michele A.; Alderfer, Melissa A.; Sewell-Roberts, Carrie; Treadwell-Deering, Diane – Journal of Autism and Developmental Disorders, 2023
Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups…
Descriptors: Autism Spectrum Disorders, Caregiver Attitudes, Family Environment, Symptoms (Individual Disorders)
Gillespie-Smith, Karri; McConachie, Doug; Ballantyne, Carrie; Auyeung, Bonnie; Goodall, Karen – Journal of Autism and Developmental Disorders, 2023
Caregivers of a child with a neurodevelopmental disability are more vulnerable to mental health difficulties. These difficulties are influenced by the child's challenging behaviours, and the caregiver's coping strategies; factors impacted by the COVID-19 pandemic. An online mixed methods survey was conducted on caregivers of children with…
Descriptors: Foreign Countries, Children, Neurodevelopmental Disorders, Child Caregivers
Stadnick, Nicole; Chlebowski, Colby; Brookman-Frazee, Lauren – Journal of Autism and Developmental Disorders, 2017
Children with autism spectrum disorder (ASD) exhibit high rates of challenging behaviors that impair functioning and represent the primary presenting problem in mental health (MH) services. Obtaining symptom reports from multiple informants is critical for treatment planning. This study evaluated caregiver-teacher concordance of ratings of the…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Behavior Problems
Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Bradshaw, Jessica; Gillespie, Scott; McCracken, Courtney; King, Bryan H.; McCracken, James T.; Johnson, Cynthia R.; Lecavalier, Luc; Smith, Tristram; Swiezy, Naomi; Bearss, Karen; Sikich, Linmarie; Donnelly, Craig; Hollander, Eric; McDougle, Christopher J.; Scahill, Lawrence – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) face higher levels of caregiver strain compared to parents of children with other disabilities. This study examined child clinical features that predict high levels of caregiver strain for 374 parents of children with ASD. Caregiver strain was measured using the Caregiver Strain Questionnaire…
Descriptors: Predictor Variables, Stress Variables, Caregivers, Parents
Royston, R.; Oliver, C.; Moss, J.; Adams, D.; Berg, K.; Burbidge, C.; Howlin, P.; Nelson, L.; Stinton, C.; Waite, J. – Journal of Autism and Developmental Disorders, 2018
This study describes the profile of repetitive behaviour in individuals with Williams syndrome, utilising cross-syndrome comparisons with people with Prader-Willi and Down syndromes. The Repetitive Behaviour Questionnaire was administered to caregivers of adults with Williams (n = 96), Prader-Willi (n = 103) and Down (n = 78) syndromes. There were…
Descriptors: Comparative Analysis, Down Syndrome, Intelligence Quotient, Questionnaires
Schroder, Carmen M.; Malow, Beth A.; Maras, Athanasios; Melmed, Raun D.; Findling, Robert L.; Breddy, John; Nir, Tali; Shahmoon, Shiri; Zisapel, Nava; Gringras, Paul – Journal of Autism and Developmental Disorders, 2019
A randomized, 13-weeks, placebo-controlled double-blind study in 125 subjects aged 2-17.5 years with Autism Spectrum Disorder or Smith-Magenis syndrome and insomnia demonstrated efficacy and safety of easily-swallowed prolonged-release melatonin mini-tablets (PedPRM; 2-5 mg) in improving sleep duration and onset. Treatment effects on child…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Sleep
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