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Direct linkJia-Qi Xu; Kean Poon; Mimi S. H. Ho – Journal of Autism and Developmental Disorders, 2025
The pandemic induced a radical shift to online learning with increased parental involvement. This study investigates the challenges that students with specific learning difficulties (SpLD) encountered during the pandemic and the mediating role of parental stress. A total of 294 parents of children with SpLD (mean age = 10.6; SD = 1.5) were…
Descriptors: COVID-19, Pandemics, Online Courses, Barriers
Bolbocean, Corneliu; Rhidenour, Kayla B.; McCormack, Maria; Suter, Bernhard; Holder, J. Lloyd – Journal of Autism and Developmental Disorders, 2023
Between July 2020 and January 2021, 230 principal caregivers completed a questionnaire to measure proxy-assessed health-related quality of life outcomes (HRQoL), behavioral outcomes in children with syndromic autism spectrum disorders and COVID-19 induced changes to lifestyle and environments. HRQoL and behavioral outcomes reported earlier during…
Descriptors: COVID-19, Pandemics, Quality of Life, Health
Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Rivard, Mélina; Morin, Diane; Coulombe, Patrick; Morin, Marjorie; Mello, Catherine – Journal of Autism and Developmental Disorders, 2023
During the diagnostic evaluation period for autism or intellectual disability (ID), families of young children are at risk for poor adjustment. The present study aimed to document family quality of life (FQOL), along with associated risk and protective factors, during this critical step of families' services trajectory. FQOL was measured in a…
Descriptors: Young Children, Family Relationship, Quality of Life, Risk
Schroder, Carmen M.; Malow, Beth A.; Maras, Athanasios; Melmed, Raun D.; Findling, Robert L.; Breddy, John; Nir, Tali; Shahmoon, Shiri; Zisapel, Nava; Gringras, Paul – Journal of Autism and Developmental Disorders, 2019
A randomized, 13-weeks, placebo-controlled double-blind study in 125 subjects aged 2-17.5 years with Autism Spectrum Disorder or Smith-Magenis syndrome and insomnia demonstrated efficacy and safety of easily-swallowed prolonged-release melatonin mini-tablets (PedPRM; 2-5 mg) in improving sleep duration and onset. Treatment effects on child…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Sleep
Øien, Roald; Eisemann, Martin R. – Journal of Autism and Developmental Disorders, 2016
Parents of children with Autism spectrum disorders often report elevated levels of stress, depression and anxiety compared to parents of children with other developmental disorders. The present study investigated experiences of mothers of children with autistic disorder, both boys and girls. The results show that mothers report problems related to…
Descriptors: Autism, Pervasive Developmental Disorders, Mothers, Communication Problems
Nuske, Heather Joy; Hedley, Darren; Tseng, Chen Hsiang; Begeer, Sander; Dissanayake, Cheryl – Journal of Autism and Developmental Disorders, 2018
Children with autism experience challenges with emotion regulation. It is unclear how children's management of their emotions is associated with their family's quality of life. Forty-three preschoolers with autism and 28 typically developing preschoolers were coded on emotion regulation strategies used during low-level stress tasks. Parents…
Descriptors: Self Control, Preschool Children, Quality of Life, Autism
Shea, N.; Payne, E.; Russo, N. – Journal of Autism and Developmental Disorders, 2018
Individuals with ASD often display externalizing behaviors, which have been associated with lower quality of life in adulthood. Social difficulties have been hypothesized to underlie externalizing problems among individuals with ASD (Klin and Volkmar in "Asperger Syndrome," 340-366, 2000), but this has never been tested empirically. We…
Descriptors: Pervasive Developmental Disorders, Autism, Behavior Problems, Quality of Life
Wong, Venus; McGrew, John; Ruble, Lisa – Journal of Autism and Developmental Disorders, 2020
The transition outcomes for individuals with autism spectrum disorder (ASD) and their families are less than desirable. A survey of parent stressors, resources, coping/appraisals, and adaptation to transition was completed by 226 parents. The mediating mechanisms between stressors and parent outcomes were identified. At the indicator level, three…
Descriptors: Prediction, Coping, Emotional Response, Stress Variables
Rattaz, Cécile; Michelon, Cécile; Roeyers, Herbert; Baghdadli, Amaria – Journal of Autism and Developmental Disorders, 2017
The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two-third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults' level of adaptive skills, as well as to symptom severity and the…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Young Adults
Moss, Philippa; Mandy, William; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2017
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Questionnaires
Taylor, Julie Lounds; DaWalt, Leann Smith – Journal of Autism and Developmental Disorders, 2017
This study examined vocational/educational disruption in the 2-3 years after high school for 36 youth with autism spectrum disorder (ASD). Data were collected three times from parents: during youth's last year of high school and two times after high school exit. Data were coded into categories indicating any versus no disruptions in postsecondary…
Descriptors: Autism, Pervasive Developmental Disorders, High School Graduates, Data Collection
Totsika, Vasiliki; Felce, David; Kerr, Michael; Hastings, Richard P. – Journal of Autism and Developmental Disorders, 2010
The evidence base on outcomes associated with autism in older adulthood is limited. The expected increase in the prevalence of older adults with autism highlights the need to describe their profiles and service needs. Adults 50 years or older with an intellectual disability (ID) and the triad of impairments characteristic of autism spectrum…
Descriptors: Behavior Problems, Mental Retardation, Autism, Quality of Life
Kuhlthau, Karen; Orlich, Felice; Hall, Trevor A.; Sikora, Darryn; Kovacs, Erica A.; Delahaye, Jennifer; Clemons, Traci E. – Journal of Autism and Developmental Disorders, 2010
We examined data collected as a part of the Autism Treatment Network, a group of 15 autism centers across the United States and Canada. Mean Health-Related Quality of Life (HRQoL) scores of the 286 children assessed were significantly lower than those of healthy populations (according to published norms). When compared to normative data from…
Descriptors: Autism, Pervasive Developmental Disorders, Quality of Life, Foreign Countries
