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Children with Autism Spectrum Disorder in Times of COVID-19: Examining Emotional and Behavioral Problems, Parental Well-Being, and Resilience
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Donna A. de Maat; Ruth Van der Hallen; Pieter F. A. de Nijs; Kirsten Visser; Dennis Bastiaansen; Femke L. Truijens; Elisabeth H. M. van Rijen; Wietske Ester; Peter Prinzie; Pauline W. Jansen; Linda P. Dekker – Journal of Autism and Developmental Disorders, 2025
This longitudinal study assessed the impact of the COVID-19 pandemic on children with autism spectrum disorder (ASD; n = 62; M[subscript age] = 13 years) by measuring emotional and behavioral problems before and during the pandemic, and by comparing this change to a matched sample of children without ASD (n = 213; M[subscript age] = 16 years).…
Descriptors: COVID-19, Pandemics, Autism Spectrum Disorders, Emotional Problems
Community Priorities for Outcomes Targeted during Professional Supports for Autistic Children and Their Families
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Rhylee Sulek; Chris Edwards; Ruth Monk; Lee Patrick; Sarah Pillar; Hannah Waddington – Journal of Autism and Developmental Disorders, 2025
Purpose: Professional supports play an important role in aiding autistic children's learning, participation, and overall wellbeing. Yet, limited research exists on stakeholders' perspectives and preferences regarding targeted outcomes for children undergoing support facilitated by professionals. This study investigated stakeholder views on the…
Descriptors: Autism Spectrum Disorders, Children, Outcomes of Treatment, Stakeholders
Adaptation and Feasibility of the Mandarin Version of PEERS® for Autistic Adolescents
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Uchong Lao; Yan Li; Wuxia Bai; Yu Wang; Yongmei Li; Yixiang Xie; Xiaoqian Huang; Huilin Zhu; Xiaobing Zou – Journal of Autism and Developmental Disorders, 2024
Purpose: The Program for the Education and Enrichment of Relational Skills (PEERS®) is a group-based social skills training program for adolescents on the autism spectrum. Although the program has been shown to be effective in improving social skills in autistic adolescents, evidence of its effectiveness from the Mandarin-speaking Chinese…
Descriptors: Autism Spectrum Disorders, Adolescents, Interpersonal Competence, Training
Associations between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study
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Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Predictors of Caregiver Strain for Parents of Children with Autism Spectrum Disorder
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Bradshaw, Jessica; Gillespie, Scott; McCracken, Courtney; King, Bryan H.; McCracken, James T.; Johnson, Cynthia R.; Lecavalier, Luc; Smith, Tristram; Swiezy, Naomi; Bearss, Karen; Sikich, Linmarie; Donnelly, Craig; Hollander, Eric; McDougle, Christopher J.; Scahill, Lawrence – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) face higher levels of caregiver strain compared to parents of children with other disabilities. This study examined child clinical features that predict high levels of caregiver strain for 374 parents of children with ASD. Caregiver strain was measured using the Caregiver Strain Questionnaire…
Descriptors: Predictor Variables, Stress Variables, Caregivers, Parents
Experience of Autistic Children and Their Families during the Pandemic: From Distress to Coping Strategies
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Jacques, Claudine; Saulnier, Geneviève; Éthier, Agnès; Soulières, Isabelle – Journal of Autism and Developmental Disorders, 2022
To understand the perspectives and needs of autistic children and their families in the context of an emergency, 109 parents and 56 autistic children (5.75-18 years) from Canada completed an online survey about needs, barriers and facilitators to coping with the pandemic. Parents' concerns about their child's development and difficulties managing…
Descriptors: Autism, Pervasive Developmental Disorders, Children, Adolescents
Associations between Resilience and the Well-Being of Mothers of Children with Autism Spectrum Disorder and Other Developmental Disabilities
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Halstead, Elizabeth; Ekas, Naomi; Hastings, Richard P.; Griffith, Gemma M. – Journal of Autism and Developmental Disorders, 2018
There is variability in the extent to which mothers are affected by the behavior problems of their children with developmental disabilities (DD). We explore whether maternal resilience functions as a protective or compensatory factor. In Studies 1 and 2, using moderated multiple regression models, we found evidence that maternal resilience…
Descriptors: Correlation, Resilience (Psychology), Autism, Pervasive Developmental Disorders
Child and Adult Factors Related to Quality of Life in Adults with Autism
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Moss, Philippa; Mandy, William; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2017
The WHO Quality of Life-Brief questionnaire was used to assess quality of life (QoL) among 52 adults with autism (mean age 49 years) followed-up since childhood. Overall, assessments of QOL were more positive than measures of objective social outcome (jobs, independence, relationships etc.) but correlations between caregiver and self-reports were…
Descriptors: Quality of Life, Autism, Pervasive Developmental Disorders, Questionnaires
Predictors of Mental Health in Chinese Parents of Children with Autism Spectrum Disorder (ASD)
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Su, Xueyun; Cai, Ru Ying; Uljarevic, Mirko – Journal of Autism and Developmental Disorders, 2018
The aim of this study was to explore the influence of parental intolerance of Uncertainty (IU), sensory sensitivity (SS) and Broader Autism Phenotype (BAP), as well as the severity of their children's autism symptoms and co-morbid symptoms, on the mental health of Chinese parents of children with autism spectrum disorder (ASD). One hundred and…
Descriptors: Predictor Variables, Mental Health, Parent Child Relationship, Well Being
How Are Child Restricted and Repetitive Behaviors Associated with Caregiver Stress over Time? A Parallel Process Multilevel Growth Model
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Harrop, Clare; McBee, Matthew; Boyd, Brian A. – Journal of Autism and Developmental Disorders, 2016
The impact of raising a child with autism spectrum disorder (ASD) is frequently accompanied by elevated caregiver stress. Examining the variables that predict these elevated rates will help us understand how caregiver stress is impacted by and impacts child behaviors. This study explored how restricted and repetitive behaviors (RRBs) contributed…
Descriptors: Child Behavior, Behavior Problems, Parent Child Relationship, Stress Variables
The Association between Child and Family Characteristics and the Mental Health and Wellbeing of Caregivers of Children with Autism in Mid-Childhood
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Salomone, Erica; Leadbitter, Kathy; Aldred, Catherine; Barrett, Barbara; Byford, Sarah; Charman, Tony; Howlin, Patricia; Green, Jonathan; Le Couteur, Ann; McConachie, Helen; Parr, Jeremy R.; Pickles, Andrew; Slonims, Vicky; Cole-Fletcher, Rachel; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George; Cole-Fletcher, Rachle; Gammer, Isobel; Maxwell, Jessica; Tobin, Hannah; Vamvakas, George – Journal of Autism and Developmental Disorders, 2018
We examined predictors of mental health difficulties and wellbeing in caregivers of children with autism in the Pre-school Autism Communication Trial cohort in middle childhood (N = 104). Child's intellectual disability, daily living skills impairment, elevated emotional and behavioural difficulties, high educational level of caregiver and…
Descriptors: Mental Health, Well Being, Autism, Predictor Variables
Psychological Well-Being of Mothers and Siblings in Families of Girls and Women with Rett Syndrome
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Cianfaglione, Rina; Hastings, Richard P.; Felce, David; Clarke, Angus; Kerr, Michael P. – Journal of Autism and Developmental Disorders, 2015
Few published studies have reported on the psychological well-being of family members of individuals with Rett syndrome (RTT). Eighty-seven mothers of girls and women with RTT completed a questionnaire survey about their daughters' behavioral phenotype, current health, and behavior problems, and their own and a sibling's well-being. Mothers…
Descriptors: Well Being, Mothers, Daughters, Genetic Disorders
Fatigue, Stress and Coping in Mothers of Children with an Autism Spectrum Disorder
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Seymour, Monique; Wood, Catherine; Giallo, Rebecca; Jellett, Rachel – Journal of Autism and Developmental Disorders, 2013
Raising a child with an autism spectrum disorder (ASD) can be exhausting, which has the potential to impact on parental health and wellbeing. The current study investigated the influence of maternal fatigue and coping on the relationship between children's problematic behaviours and maternal stress for 65 mothers of young children (aged…
Descriptors: Fatigue (Biology), Stress Variables, Coping, Well Being
Gender Differences When Parenting Children with Autism Spectrum Disorders: A Multilevel Modeling Approach
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Jones, Leah; Totsika, Vasiliki; Hastings, Richard P.; Petalas, Michael A. – Journal of Autism and Developmental Disorders, 2013
Parenting a child with autism may differentially affect mothers and fathers. Existing studies of mother-father differences often ignore the interdependence of data within families. We investigated gender differences within-families using multilevel linear modeling. Mothers and fathers of children with autism (161 couples) reported on their own…
Descriptors: Autism, Gender Differences, Parent Child Relationship, Hierarchical Linear Modeling
Social Support and Well-Being at Mid-Life among Mothers of Adolescents and Adults with Autism Spectrum Disorders
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Smith, Leann E.; Greenberg, Jan S.; Seltzer, Marsha Mailick – Journal of Autism and Developmental Disorders, 2012
The present study investigated the impact of social support on the psychological well-being of mothers of adolescents and adults with ASD (n = 269). Quantity of support (number of social network members) as well as valence of support (positive support and negative support) were assessed using a modified version of the "convoy model" developed by…
Descriptors: Behavior Problems, Mothers, Autism, Child Behavior
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