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Associations between Hyperphagia, Symptoms of Sleep Breathing Disorder, Behaviour Difficulties and Caregiver Well-Being in Prader-Willi Syndrome: A Preliminary Study
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Mackay, Jessica; Nixon, Gillian M.; Lafferty, Antony R.; Ambler, Geoff; Kapur, Nitin; Bergman, Philip B.; Schofield, Cara; Seton, Chris; Tai, Andrew; Tham, Elaine; Vora, Komal; Crock, Patricia; Verge, Charles; Musthaffa, Yassmin; Blecher, Greg; Caudri, Daan; Leonard, Helen; Jacoby, Peter; Wilson, Andrew; Choong, Catherine S.; Downs, Jenny – Journal of Autism and Developmental Disorders, 2022
Prader-Willi syndrome (PWS) is a rare genetic disorder characterised by neurodevelopmental delays, hyperphagia, difficulties with social communication and challenging behaviours. Individuals require intensive supervision from caregivers which may negatively affect caregiver quality of life. This study used data collected in the Australasian PWS…
Descriptors: Caregivers, Genetic Disorders, Intellectual Disability, Developmental Disabilities
Predictors of Caregiver Strain for Parents of Children with Autism Spectrum Disorder
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Bradshaw, Jessica; Gillespie, Scott; McCracken, Courtney; King, Bryan H.; McCracken, James T.; Johnson, Cynthia R.; Lecavalier, Luc; Smith, Tristram; Swiezy, Naomi; Bearss, Karen; Sikich, Linmarie; Donnelly, Craig; Hollander, Eric; McDougle, Christopher J.; Scahill, Lawrence – Journal of Autism and Developmental Disorders, 2021
Parents of children with autism spectrum disorder (ASD) face higher levels of caregiver strain compared to parents of children with other disabilities. This study examined child clinical features that predict high levels of caregiver strain for 374 parents of children with ASD. Caregiver strain was measured using the Caregiver Strain Questionnaire…
Descriptors: Predictor Variables, Stress Variables, Caregivers, Parents
Exploring the Moderating Role of Benefit Finding on the Relationship between Child Problematic Behaviours and Psychological Distress in Caregivers of Children with ASD
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Lovell, Brian; Wetherell, Mark A. – Journal of Autism and Developmental Disorders, 2020
Caregivers of children with ASD often find benefits associated with their caregiving role, and benefit finding predicts lower distress. Child problematic behaviours (CPB), which positively predict caregivers' distress, are perceived to be being less problematic, or more manageable, by caregivers who find benefits. Benefit finding therefore might…
Descriptors: Children, Autism, Pervasive Developmental Disorders, Caregivers
Brief Report: Repetitive Behaviour Profiles in Williams Syndrome: Cross Syndrome Comparisons with Prader-Willi and Down Syndromes
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Royston, R.; Oliver, C.; Moss, J.; Adams, D.; Berg, K.; Burbidge, C.; Howlin, P.; Nelson, L.; Stinton, C.; Waite, J. – Journal of Autism and Developmental Disorders, 2018
This study describes the profile of repetitive behaviour in individuals with Williams syndrome, utilising cross-syndrome comparisons with people with Prader-Willi and Down syndromes. The Repetitive Behaviour Questionnaire was administered to caregivers of adults with Williams (n = 96), Prader-Willi (n = 103) and Down (n = 78) syndromes. There were…
Descriptors: Comparative Analysis, Down Syndrome, Intelligence Quotient, Questionnaires
Pediatric Prolonged-Release Melatonin for Sleep in Children with Autism Spectrum Disorder: Impact on Child Behavior and Caregiver's Quality of Life
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Schroder, Carmen M.; Malow, Beth A.; Maras, Athanasios; Melmed, Raun D.; Findling, Robert L.; Breddy, John; Nir, Tali; Shahmoon, Shiri; Zisapel, Nava; Gringras, Paul – Journal of Autism and Developmental Disorders, 2019
A randomized, 13-weeks, placebo-controlled double-blind study in 125 subjects aged 2-17.5 years with Autism Spectrum Disorder or Smith-Magenis syndrome and insomnia demonstrated efficacy and safety of easily-swallowed prolonged-release melatonin mini-tablets (PedPRM; 2-5 mg) in improving sleep duration and onset. Treatment effects on child…
Descriptors: Autism, Pervasive Developmental Disorders, Genetic Disorders, Sleep
Increased Prevalence of Unusual Sensory Behaviors in Infants at Risk For, and Teens With, Autism Spectrum Disorder
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Van Etten, Hannah M.; Kaur, Maninderjit; Srinivasan, Sudha M.; Cohen, Shereen J.; Bhat, Anjana; Dobkins, Karen R. – Journal of Autism and Developmental Disorders, 2017
The current study investigated the prevalence and pattern of unusual sensory behaviors (USBs) in teens with Autism Spectrum Disorder (ASD) and infants (3-36 months) at risk for ASD. From two different sites (UCSD and UConn), caregivers of infants at high (n = 32) and low risk (n = 33) for ASD, and teenagers with (n = 12) and without ASD (n = 11),…
Descriptors: Autism, Pervasive Developmental Disorders, Incidence, Sensory Experience
Continuity and Change in, and Child Predictors of, Caregiver Reported Anxiety Symptoms in Young People with Autism Spectrum Disorder: A Follow-Up Study
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Teh, Elizabeth J.; Chan, Diana Mei-En; Tan, Germaine Ke Jia; Magiati, Iliana – Journal of Autism and Developmental Disorders, 2017
Little is known about continuity, change and predictors of anxiety in ASD. This follow-up study investigated changes in caregiver-reported anxiety in 54 non-referred youth with ASD after 10-19 months. Earlier child predictors of later anxiety were also examined. Anxiety scores were generally stable. Time 1 ASD repetitive behavior symptoms, but not…
Descriptors: Autism, Pervasive Developmental Disorders, Predictor Variables, Anxiety
Caregivers' Agreement and Validity of Indirect Functional Analysis: A Cross Cultural Evaluation across Multiple Problem Behavior Topographies
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Virues-Ortega, Javier; Segui-Duran, David; Descalzo-Quero, Alberto; Carnerero, Jose Julio; Martin, Neil – Journal of Autism and Developmental Disorders, 2011
The Motivation Assessment Scale is an aid for hypothesis-driven functional analysis. This study presents its Spanish cross-cultural validation while examining psychometric attributes not yet explored. The study sample comprised 80 primary caregivers of children with autism. Acceptability, scaling assumptions, internal consistency, factor…
Descriptors: Behavior Problems, Autism, Scaling, Caregivers
Time Demands of Caring for Children with Autism: What Are the Implications for Maternal Mental Health?
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Sawyer, Michael G.; Bittman, Michael; La Greca, Annette M.; Crettenden, Angela D.; Harchak, Taylor F.; Martin, Jon – Journal of Autism and Developmental Disorders, 2010
This study examined the relationship between maternal mental health problems and both caregiving time and experience of time pressure for 216 mothers of children with autism. Data describing caregiving time was obtained using 24-h time-diaries. Standard questionnaires were used to assess time pressure, social support, children's emotional and…
Descriptors: Mothers, Autism, Well Being, Caregivers
Development and Validation of an Inventory to Assess Mealtime Behavior Problems in Children with Autism
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Lukens, Colleen Taylor; Linscheid, Thomas R. – Journal of Autism and Developmental Disorders, 2008
To date, no standardized measures have been developed to evaluate the mealtime behavior of children with autism. The Brief Autism Mealtime Behavior Inventory (BAMBI) was designed to measure mealtime behavior problems observed in children with autism. Caregivers of 40 typically developing children and 68 children with autism completed the BAMBI,…
Descriptors: Behavior Problems, Autism, Caregivers, Validity