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Direct linkSamara M. Wolpe; Amanda R. Johnson; Sunny Kim – Journal of Autism and Developmental Disorders, 2025
With many teens having to transition from a mainly educational system of support to a set of health and social service systems (Shattuck et al. in Autism Res Treat https://doi.org/10.1155/2014/924182, 2017), there is a critical need to advance research and support services in the area of autism and transition to aid autistic* individuals and their…
Descriptors: Adolescents, Autism Spectrum Disorders, Transitional Programs, School Role
Connie Anderson; Alan Iampieri; Leah Franklin; Amy Daniels; Katharine Diehl; J. Kiely Law – Journal of Autism and Developmental Disorders, 2024
To explore issues surrounding re-consenting youth in longitudinal studies as they reach legal adulthood interviews were conducted with 46 parents plus 13 autistic teens enrolled in the Simons Foundation Powering Autism Research for Knowledge (SPARK) study. Qualitative analysis focused on family sensitivities regarding guardianship decisions,…
Descriptors: Informed Consent, Pediatrics, Research Methodology, Autism Spectrum Disorders
Van Remmerden, M. C.; Hoogland, L.; Mous, S. E.; Dierckx, B.; Coesmans, M.; Moll, H. A.; Lubbers, K.; Lincken, C. R.; Van Eeghen, A. M. – Journal of Autism and Developmental Disorders, 2020
Little is known about care needs of young adults with Fragile X Syndrome (FXS). Patient-driven information is needed to improve understanding and support of young adults with FXS. A qualitative study was performed in 5 young adult patients (aged 18-30), and 33 parents of young adults. Concerns and care needs were categorized using the…
Descriptors: Genetic Disorders, Intellectual Disability, Young Adults, Classification
Mootz, Carmen A.; Lemelman, Amy; Giordano, Jennifer; Winter, Jamie; Beaumont, Renae – Journal of Autism and Developmental Disorders, 2022
During the Coronavirus Pandemic, many have worried about the adverse impact on the social functioning of children with autism spectrum disorder. Telehealth-delivered group social skills programs offer one way to address this concern. This brief report describes modifications made to the telehealth delivery of the Secret Agent Society group social…
Descriptors: Children, Autism Spectrum Disorders, Caregivers, Interpersonal Competence
