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Gwendoline Desquenne Godfrey; Naomi Downes; Emilie Cappe – Journal of Autism and Developmental Disorders, 2024
This article aims to review the literature on family functioning in the field of autism. The search was conducted in August 2021 in PubMed, PsycINFO, and PubPsy and sixty-two articles were included. Studies were published in English between 1980 and 2021 and provided quantitative data from validated measures of family functioning in families with…
Descriptors: Family Environment, Family Relationship, Children, Autism Spectrum Disorders
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Whitney, Rondalyn Varney – Journal of Autism and Developmental Disorders, 2023
The occupational role of a mother parenting a child with developmental and socially disruptive conduct is unique. How mothers express their experiences is poorly explored in the literature. This study aims to better understand mothers' description of their unique experiences in order to better inform interventions. Using a narrative inquiry…
Descriptors: Mothers, Parent Role, Child Rearing, Child Behavior
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Yu, Yue; Ruble, Lisa; McGrew, John; Murray, Donna – Journal of Autism and Developmental Disorders, 2023
Activation refers to patients' belief, knowledge, ability, and persistence to manage care. The concept is adapted to parent activation in developmental disorders. This study examined the psychometrics of the Parent Activation Measure for Developmental Disabilities (PAM-DD) and factors related to parent activation in ASD. Data from 658 caregivers…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Severity (of Disability), Parent Role
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Kehinde, Olumuyiwa Adekunle; Lindly, Olivia J.; Ntombela, Berrington; Hermann, Caroll – Journal of Autism and Developmental Disorders, 2023
In Nigeria and South Africa, women often have less voice and are less visible given cultural norms and related gender stereotypes. It is important to understand parents' gender roles in the context of caregiving for children with autism spectrum disorder because inequality in caregiving roles may influence the health of children with autism and…
Descriptors: Foreign Countries, Sex Stereotypes, Parent Role, Parent Child Relationship
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Sankey, Carol; Derguy, Cyrielle; Clément, Céline; Ilg, Jennifer; Cappe, Émilie – Journal of Autism and Developmental Disorders, 2019
After being wrongfully blamed for their child's disturbances, French parents of a child with autism spectrum disorder (ASD) are now perceived as essential partners of care professionals. This shift in perspective has encouraged the development of parent training programs in the field of autism. In this paper, we present three programs currently…
Descriptors: Foreign Countries, Children, Autism, Pervasive Developmental Disorders
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Hu, Xiaoyi; Han, Zhuo Rachel; Bai, Liu; Gao, Mengyu M. – Journal of Autism and Developmental Disorders, 2019
Little is known regarding the dynamic interactions between fathers and mothers in families of children with autism spectrum disorder (ASD) during the parenting process. This study used an actor-partner interdependence mediation (APIMeM) model to investigate the intrapersonal and interpersonal effects of emotion dysregulation and parenting stress…
Descriptors: Autism, Pervasive Developmental Disorders, Child Rearing, Stress Variables
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Niemczyk, Justine; Fischer, Roman; Wagner, Catharina; Burau, Alina; Link, Theresa; von Gontard, Alexander – Journal of Autism and Developmental Disorders, 2019
Incontinence, psychological symptoms, parental stress and psychopathology were examined in 51 children (43 boys, mean age = 9.7 years) presented in an outpatient clinic for autism spectrum disorders (ASD) and in 53 matched controls (43 boys, mean age = 10.2 years). All children were clinically assessed for ASD, incontinence and psychopathology…
Descriptors: Symptoms (Individual Disorders), Child Rearing, Stress Variables, Psychopathology
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O'Neill, Linda P.; Murray, Lindsay E. – Journal of Autism and Developmental Disorders, 2016
Adult siblings of individuals with developmental disabilities often experience higher levels of anxiety than individuals in the general population. The present study tested whether perceived parenting could mediate the relationship between attachment styles and anxiety in the sibling group compared to a control group. Little association was found…
Descriptors: Parenting Styles, Anxiety, Attachment Behavior, Adults
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Burkett, Karen; Morris, Edith; Manning-Courtney, Patricia; Anthony, Jean; Shambley-Ebron, Donna – Journal of Autism and Developmental Disorders, 2015
Cultural factors such as health care access and autism spectrum disorder (ASD) symptom interpretations have been proposed as impacting delayed diagnosis and treatment for African American children with ASD. A qualitative study of urban African American families caring for their child with autism was conducted with 24 family members and 28 ASD…
Descriptors: African American Culture, Cultural Influences, African American Children, African Americans
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van Steijn, Daphne J.; Oerlemans, Anoek M.; van Aken, Marcel A. G.; Buitelaar, Jan K.; Rommelse, Nanda N. J. – Journal of Autism and Developmental Disorders, 2014
This study investigated the role of parental Autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD), and depressive symptoms on parenting stress in 174 families with children with ASD and/or ADHD, using generalized linear models and structural equation models. Fathers and mothers reported more stress when parenting with…
Descriptors: Autism, Parents, Parent Role, Pervasive Developmental Disorders