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Kristen T. MacKenzie; Kelly B. Beck; Shaun M. Eack; Katharine N. Zeglen; Caitlin M. Conner; Carla A. Mazefsky – Journal of Autism and Developmental Disorders, 2025
Employment, social relationships, and autonomy are priorities to people with intellectual and developmental disabilities (IDDs). However, few validated measures exist to systematically assess these key adult outcomes in this population. This research includes first steps to develop self- and proxy report measures of life outcomes for adults with…
Descriptors: Developmental Disabilities, Adults, Intellectual Disability, Employment
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Nesreen Fathi Mahmoud; Zeinab Mohammed; Hassnaa Othman Mohammed; Alshimaa Mohsen Mohamed Lotfy – Journal of Autism and Developmental Disorders, 2025
Children with developmental disabilities have different feeding and swallowing problems. The purposes of the present study were to develop an Arabic version of the FHI-C and to evaluate its validity, consistency, and reliability in Arabic children with developmental disabilities for assessing how feeding and swallowing problems impair the…
Descriptors: Test Validity, Test Reliability, Media Adaptation, Young Children
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Hou, Yujia; Yan, Tingrui; Deng, Meng – Journal of Autism and Developmental Disorders, 2023
Parental involvement plays a vital role in the transition from kindergarten to primary school among children with intellectual and developmental disabilities (IDDs); this study aims to explore Chinese parents' experiences of parental involvement during this period. Informed by interpretive phenomenological analysis, semi-structured, one-on-one…
Descriptors: Parent Participation, Students with Disabilities, Intellectual Disability, Developmental Disabilities
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Sandra Marquis; N. Esmé Marquis; Yona Lunsky; Kimberlyn M. McGrail; Jennifer Baumbusch – Journal of Autism and Developmental Disorders, 2025
Purpose: The purpose of this study was to compare antipsychotic use by youth with intellectual/developmental disabilities to youth without IDD as they transitioned from pediatric to adult health care services. In addition, antipsychotic use was compared between youth with different types of IDD (autism, Fetal Alcohol Syndrome, Down syndrome and…
Descriptors: Drug Therapy, Intellectual Disability, Developmental Disabilities, Autism Spectrum Disorders
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Lindsey Sneed; Ryan Taylor; Ian Cook; Michelle Befi; Brianna Fitchett; Doreen Samelson; Vincent Bemmel – Journal of Autism and Developmental Disorders, 2025
Purpose: Wellbeing refers to a person's overall happiness and satisfaction with life. Wellbeing for people with Intellectual and Developmental Disabilities (I/DD) and their families is historically significantly lower compared to the general population. It is important in the context of behavioral health treatment to not only measure the…
Descriptors: Psychometrics, Measures (Individuals), Well Being, Intellectual Disability
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Pereira, Tatiana; Lousada, Marisa – Journal of Autism and Developmental Disorders, 2023
This review aimed to analyze the psychometric properties of standardized instruments that are used to measure pragmatic intervention effects in children with developmental language disorder. Following PRISMA structure, a comprehensive literature research was conducted in five electronic indexing databases: Central, PubMed, Medline, Web of Science…
Descriptors: Psychometrics, Standardized Tests, Intervention, Students with Disabilities
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Hayden, Nikita K.; Hastings, Richard P.; Kassa, Clare; Danylec, Frances – Journal of Autism and Developmental Disorders, 2023
Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings' mental distress,…
Descriptors: Poverty, Siblings, Caregivers, Adults
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Shabnam, Srushti; Swapna, N. – Journal of Autism and Developmental Disorders, 2023
Children with developmental disabilities (DD) exhibit feeding and swallowing difficulties, which can have an impact on nutritional, developmental, and psychological aspects. The existing tools assess the nature of feeding problems and behaviors only. The present study aimed to assess the physical, functional, and emotional domains in children with…
Descriptors: Eating Habits, Health Behavior, Food, Developmental Disabilities
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Carli Friedman – Journal of Autism and Developmental Disorders, 2024
This study's aim was to examine the impact of pandemic emergency Home- and Community-Based Services (HCBS) payments on the continuity and security of people with intellectual and developmental disabilities (IDD). Using a multilevel logistic regression, we analyzed secondary Personal Outcome Measures interviews from 738 people with IDD (March 2020…
Descriptors: Intellectual Disability, Developmental Disabilities, Pandemics, COVID-19
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Li, Kuokuo; Fang, Zhenghuan; Zhao, Guihu; Li, Bin; Chen, Chao; Xia, Lu; Wang, Lin; Luo, Tengfei; Wang, Xiaomeng; Wang, Zheng; Zhang, Yi; Jiang, Yi; Pan, Qian; Hu, Zhengmao; Guo, Hui; Tang, Beisha; Liu, Chunyu; Sun, Zhongsheng; Xia, Kun; Li, Jinchen – Journal of Autism and Developmental Disorders, 2022
The clinical similarity among different neuropsychiatric disorders (NPDs) suggested a shared genetic basis. We catalogued 23,109 coding de novo mutations (DNMs) from 6511 patients with autism spectrum disorder (ASD), 4,293 undiagnosed developmental disorder (UDD), 933 epileptic encephalopathy (EE), 1022 intellectual disability (ID), 1094…
Descriptors: Mental Disorders, Genetics, Patients, Autism
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Ferrari, Elisabetta; Butti, Niccolò; Gagliardi, Chiara; Romaniello, Romina; Borgatti, Renato; Urgesi, Cosimo – Journal of Autism and Developmental Disorders, 2023
According to current accounts of social cognition, the emergence of verbal and non-verbal components of social perception might rely on the acquisition of different cognitive abilities. These components might be differently sensitive to the pattern of neuropsychological impairments in congenital neurodevelopmental disorders. Here, we explored the…
Descriptors: Patients, Intellectual Disability, Developmental Disabilities, Congenital Impairments
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Muharib, Reem; Walker, Virginia L.; Alresheed, Fahad; Gerow, Stephanie – Journal of Autism and Developmental Disorders, 2021
In this review, we summarized and meta-analyzed 35 single-case intervention studies that involved the use of multiple schedules of reinforcement with 78 individuals with intellectual and developmental disabilities. Based on Tau-U calculations, multiple schedules of reinforcement produced an overall large effect for appropriate communicative…
Descriptors: Reinforcement, Intellectual Disability, Developmental Disabilities, Scheduling
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Agarwal, Rumi; Heron, Laura; Naseh, Mitra; Burke, Shanna L. – Journal of Autism and Developmental Disorders, 2021
Transitioning to post-secondary education is often challenging for students with intellectual and developmental disabilities (IDD). To address this, Florida International University, specifically FIU Embrace, piloted the Embrace Mentoring Program (EMP), which provided unique role-specific workshops to both faculty/staff mentors, and student…
Descriptors: Mentors, Students with Disabilities, Intellectual Disability, Developmental Disabilities
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Rah, Sung Sil; Hong, Soon-Beom; Yoon, Ju Young – Journal of Autism and Developmental Disorders, 2021
As the prevalence of developmental disorders (DDs) has increased, many OECD countries provide a national screening examination for early detection and intervention for DDs. This study examined effects of the National Health Screening Program in Korea. 65,334 children (39%) were DD-screened and 35,466 children (21%) received a false negative among…
Descriptors: Screening Tests, Health Services, National Programs, Developmental Disabilities
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Olive Healy; Elaine Reilly; Joanna Davies; Victoria Lovett; Phil Reed – Journal of Autism and Developmental Disorders, 2024
Primary reflexes are highly stereotypical, automatic movements comprising much of the motor repertoire of newborns. The current study examined rates of presence of five primary reflexes (snout, visual rooting, sucking, tactile rooting, and grasp) and variables predictive of their persistence for children with ASD (n = 35), developmental disability…
Descriptors: Motor Reactions, Autism Spectrum Disorders, Developmental Disabilities, Incidence
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