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de Verdier, Kim; Fernell, Elisabeth; Ek, Ulla – Journal of Autism and Developmental Disorders, 2018
The prevalence of autism in children with blindness is much higher than in the general population. There are many challenges regarding the school situation for children with this complex dual disability. This study explored challenges and successful strategies in school for a sample of six Swedish children with blindness and autism, with and…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Blindness
Reiff, Marian; Bugos, Eva; Giarelli, Ellen; Bernhardt, Barbara A.; Spinner, Nancy B.; Sankar, Pamela L.; Mulchandani, Surabhi – Journal of Autism and Developmental Disorders, 2017
Despite increasing utilization of chromosomal microarray analysis (CMA) for autism spectrum disorders (ASD), limited information exists about how results influence parents' beliefs about etiology and prognosis. We conducted in-depth interviews and surveys with 57 parents of children with ASD who received CMA results categorized as pathogenic,…
Descriptors: Autism, Pervasive Developmental Disorders, Parent Attitudes, Attitudes toward Disabilities
Sirin, Nursinem; Tekin-Iftar, Elif – Journal of Autism and Developmental Disorders, 2016
Safety skills instruction should be regarded as one of the important teaching areas. A descriptive study was designed to reveal the opinions of Turkish parents and teachers of children with autism spectrum disorders regarding safety skills instruction. Data were collected through interview and analyzed descriptively. Findings showed that (a) both…
Descriptors: Parents, Foreign Countries, Parent Attitudes, Teacher Attitudes
Arnell, Susann; Jerlinder, Kajsa; Lundqvist, Lars-Olov – Journal of Autism and Developmental Disorders, 2018
Adolescents with an autism spectrum disorder (ASD) are less physically active compared to typically developing peers. The reasons for not being physically active are complex and depend on several factors, which have not been comprehensively described from the adolescent's perspective. Therefore, the aim was to describe how adolescents with an ASD…
Descriptors: Autism, Pervasive Developmental Disorders, Adolescents, Attitude Measures
Fox, Fiona; Aabe, Nura; Turner, Katrina; Redwood, Sabi; Rai, Dheeraj – Journal of Autism and Developmental Disorders, 2017
Increasing recognition of autism in Somali migrant communities means that appropriate support services are needed. Attitudes to autism and barriers related to help-seeking in these communities are poorly understood. We aimed to assess what families affected by autism need, and how health, education and social care services can support them. In…
Descriptors: Autism, Pervasive Developmental Disorders, Immigrants, Foreign Countries
Rubenstein, Eric; Edmondson Pretzel, Rebecca; Windham, Gayle C.; Schieve, Laura A.; Wiggins, Lisa D.; DiGuiseppi, Carolyn; Olshan, Andrew F.; Howard, Annie G.; Pence, Brian W.; Young, Lisa; Daniels, Julie – Journal of Autism and Developmental Disorders, 2017
Autism spectrum disorder (ASD) diagnosis relies on parent-reported and clinician-observed instruments. Sometimes, results between these instruments disagree. The broader autism phenotype (BAP) in parent-reporters may be associated with discordance. Study to Explore Early Development data (N = 712) were used to address whether mothers with BAP and…
Descriptors: Autism, Pervasive Developmental Disorders, Genetics, Mothers
Hannon, Michael D.; Hannon, LaChan V. – Journal of Autism and Developmental Disorders, 2017
Sixteen fathers of individuals with autism were interviewed to develop a grounded theory explaining how they learned about their children's autism diagnosis. Results suggest the orientation process entails at least two phases: orienting oneself and orienting others. The orienting oneself phase entailed fathers having suspicion of developmental…
Descriptors: Fathers, Parent Attitudes, Autism, Clinical Diagnosis
Zainal, Hani; Magiati, Iliana; Tan, Julianne Wen-Li; Sung, Min; Fung, Daniel S.; Howlin, Patricia – Journal of Autism and Developmental Disorders, 2014
Despite high rates of clinically elevated anxiety difficulties in children and adolescents with autism spectrum disorders (ASDs), very few studies have systematically examined the usefulness of commonly used caregiver report anxiety screening tools with this population. This study investigated the use of the Spence Children's Anxiety…
Descriptors: Screening Tests, Pervasive Developmental Disorders, Autism, Caregiver Attitudes
Majoko, Tawanda – Journal of Autism and Developmental Disorders, 2016
The current significantly high prevalence rates of autism spectrum disorder (ASD) coupled with the paradigm shift from exclusive to inclusive education warrants research on inclusion of children with ASD in mainstream classrooms in Zimbabwe. A qualitative methodology was used to interview 21 regular primary school teachers regarding social…
Descriptors: Autism, Pervasive Developmental Disorders, Inclusion, Mainstreaming
Seung, HyeKyeung; Ji, Juye; Kim, Soo-Jin; Sung, Inkyung; Youn, Young-Ah; Hong, Gyunghun; Lee, Hyeonjin; Lee, Young Hwan; Lee, Hyunsuk; Youm, Hyun Kyung – Journal of Autism and Developmental Disorders, 2015
The study examined the clinical utility and psychometric properties of the Korean Modified Checklist of Autism in Toddlers (K-M-CHAT)-2. A sample of 2300 parents of 16- to 36-month-old children was recruited across South Korea. A phone interview was utilized to follow up with participants who initially screened positive for autism spectrum…
Descriptors: Psychometrics, Autism, Check Lists, Toddlers
Grinker, Roy R.; Kang-Yi, Christina D.; Ahmann, Chloe; Beidas, Rinad S.; Lagman, Adrienne; Mandell, David S. – Journal of Autism and Developmental Disorders, 2015
In order to connect with families and influence treatment trajectories, outreach materials should address cultural perceptions of the condition, its causes, and post-diagnostic care. This paper describes the cultural adaptation and translation of the Autism Speaks First 100 Days Kit into Korean for the purpose of improving autism spectrum disorder…
Descriptors: Translation, Autism, Pervasive Developmental Disorders, Cultural Awareness
Shepherd, Cody A.; Waddell, Charlotte – Journal of Autism and Developmental Disorders, 2015
Canadian autism policy has been unusually contentious, with parents resorting to litigation to secure services for their children in several provinces. To ascertain whether consensus was possible on improving services, we conducted an in-depth qualitative interview study with 39 parents, policymakers and researchers across the country. Parents…
Descriptors: Qualitative Research, Autism, Educational Policy, Interviews
Zwaigenbaum, Lonnie; Nicholas, David B.; Muskat, Barbara; Kilmer, Christopher; Newton, Amanda S.; Craig, William R.; Ratnapalan, Savithiri; Cohen-Silver, Justine; Greenblatt, Andrea; Roberts, Wendy; Sharon, Raphael – Journal of Autism and Developmental Disorders, 2016
This study aimed to characterize the perspectives of health professionals who care for children with autism spectrum disorder (ASD) in the emergency department (ED) and to determine what strategies could optimize care. Ten physicians and twelve nurses were interviewed individually. Questions related to experiences, processes, clinical…
Descriptors: Health Services, Caregiver Attitudes, Pervasive Developmental Disorders, Emergency Programs
Timberlake, Maria T.; Leutz, Walter N.; Warfield, Marji Erickson; Chiri, Giuseppina – Journal of Autism and Developmental Disorders, 2014
This study investigated families' experience of choice within a participant-directed Medicaid waiver program for young children with autism. Fourteen parents or grandparents participated in in-depth interviews about their experience of choosing personnel, directing in-home services, and managing the $25,000 annual allocation. Key findings…
Descriptors: Health Insurance, Young Children, Autism, Parent Attitudes
Freedman, Brian H.; Kalb, Luther G.; Zablotsky, Benjamin; Stuart, Elizabeth A. – Journal of Autism and Developmental Disorders, 2012
Despite speculation about an 80% divorce rate among parents of children with an Autism Spectrum Disorder (ASD), very little empirical and no epidemiological research has addressed the issue of separation and divorce among this population. Data for this study was taken from the 2007 National Survey of Children's Health, a population-based,…
Descriptors: Divorce, Parent Attitudes, Autism, Pervasive Developmental Disorders
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