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Marta Volgyesi-Molnar; Miklos Gyori; Valsamma Eapen; Zsofia Borsos; Agnes Havasi; Zoltan Jakab; Laszlone Janoch; Vivien Nemeth; Tamasne Oszi; Agota Szekeres; Krisztina Stefanik – Journal of Autism and Developmental Disorders, 2025
Purpose: Parents of autistic individuals have been known to have a lower overall quality of life (QQL) than those of typically developing children. We present the first Hungarian large-sample study whose objective was to explore the differences in QOL between parents of autistic individuals (AS) and those of neurotypical (NT) persons. Methods:…
Descriptors: Parents, Quality of Life, Children, Autism Spectrum Disorders
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Sonido, Marisse T.; Hwang, Ye In; Srasuebkul, Preeyaporn; Trollor, Julian N.; Arnold, Samuel R. C. – Journal of Autism and Developmental Disorders, 2022
Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in…
Descriptors: Predictor Variables, Quality of Life, Caregivers, Adults
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Jia-Qi Xu; Kean Poon; Mimi S. H. Ho – Journal of Autism and Developmental Disorders, 2025
The pandemic induced a radical shift to online learning with increased parental involvement. This study investigates the challenges that students with specific learning difficulties (SpLD) encountered during the pandemic and the mediating role of parental stress. A total of 294 parents of children with SpLD (mean age = 10.6; SD = 1.5) were…
Descriptors: COVID-19, Pandemics, Online Courses, Barriers
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Moira Whelan; Jane McGillivray; Nicole J. Rinehart – Journal of Autism and Developmental Disorders, 2024
Life Course Theory contends that school transitions can interrupt academic and wellbeing trajectories, depending on child, family, and school factors. Hierarchical regression analyses examined how autistic traits were associated with school transition outcomes. Autistic traits explained 12% of the variance in Quality of Life (QOL), 24% of the…
Descriptors: Autism Spectrum Disorders, Individual Characteristics, Transitional Programs, Quality of Life
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Bohadana, Gal; Morrissey, Shirley; Paynter, Jessica – Journal of Autism and Developmental Disorders, 2019
The double ABCX model of adaptation has been used to predict parental outcomes in parents of children with autism spectrum disorder (ASD), with predictors including child characteristics, pile up of demands, external resources, coping, parental perceptions, and internal resources. This study investigated whether self-compassion is a unique…
Descriptors: Autism, Pervasive Developmental Disorders, Parents, Children
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Leader, Geraldine; Grennan, Susan; Chen, June L.; Mannion, Arlene – Journal of Autism and Developmental Disorders, 2018
Samson et al. ("Journal of Autism and Developmental Disorders" 41:475-483, 2011) conducted the first empirical investigation examining the fear of being laughed at (gelotophobia) and its prevalence in individuals with high-functioning autism spectrum disorder (hfASD). The present research examined gelotophobia in relation to social…
Descriptors: Fear, Interpersonal Competence, Life Satisfaction, Quality of Life
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Hong, Jinkuk; Bishop-Fitzpatrick, Lauren; Smith, Leann E.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
We examined factors related to subjective quality of life (QoL) of adults with autism spectrum disorder (ASD) aged 25-55 (n = 60), using the World Health Organization Quality of Life measure (WHOQOL-BREF). We used three different assessment methods: adult self-report, maternal proxy-report, and maternal report. Reliability analysis showed that…
Descriptors: Quality of Life, Adults, Autism, Pervasive Developmental Disorders
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Timmons, Lisa; Willis, Kelcie D.; Pruitt, Megan M.; Ekas, Naomi V. – Journal of Autism and Developmental Disorders, 2016
Mothers of children with autism spectrum disorder (n = 70) completed online measures of global constructs (i.e., stable individual characteristics measured at time 1), which included resilience, depressive symptoms, and family functioning, followed by 14 daily questionnaires assessing relationship quality and affect on a given day. The global…
Descriptors: Predictor Variables, Pervasive Developmental Disorders, Mothers, Online Surveys
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Bishop-Fitzpatrick, Lauren; Hong, Jinkuk; Smith, Leann E.; Makuch, Renee A.; Greenberg, Jan S.; Mailick, Marsha R. – Journal of Autism and Developmental Disorders, 2016
This study aims to extend the definition of quality of life (QoL) for adults with autism spectrum disorder (ASD, n = 180, ages 23-60) by: (1) characterizing the heterogeneity of normative outcomes (employment, independent living, social engagement) and objective QoL (physical health, neighborhood quality, family contact, mental health issues); and…
Descriptors: Quality of Life, Pervasive Developmental Disorders, Normalization (Disabilities), Adults
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Eskow, Karen Goldrich; Chasson, Gregory S.; Summers, Jean Ann – Journal of Autism and Developmental Disorders, 2015
State-specific 1915(c) Medicaid Home and Community-Based Services waiver programs have become central in the provision of services specifically tailored to children with autism spectrum disorders (ASD). Using propensity score matching, 130 families receiving waiver services for a child with ASD were matched with and compared to 130 families…
Descriptors: Autism, Pervasive Developmental Disorders, Scores, Independent Living
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McStay, Rebecca L.; Trembath, David; Dissanayake, Cheryl – Journal of Autism and Developmental Disorders, 2014
Past research has supported the utility of the Double ABCX model of family adaptation for parents raising a child with autism spectrum disorder (ASD). What remains unclear is the impact of family-related variables on outcomes in both mothers and fathers within the same family. We explored the potential predictors of maternal and paternal stress…
Descriptors: Stress Variables, Quality of Life, Family Environment, Parents