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Julia Wynn; Anna Karlsen; Benjamin Huber; Alina Levine; Amanie Salem; L. Casey White; Marti Luby; Ekaterina Bezborodko; Sabrina Xiao; Wendy K. Chung; Robert L. Klitzman; Paul S. Appelbaum – Journal of Autism and Developmental Disorders, 2025
Genetic testing is recommended as part of an autism assessment, and most parents support genetic testing for their minor children. However, the impact on parents of receiving a monogenetic/ copy number variant diagnosis for autism in their child is not well understood. To explore this, we surveyed and interviewed parents of children in the SPARK…
Descriptors: Genetics, Screening Tests, Parent Attitudes, Parent Child Relationship
Brillet, Leïla; Peries, Marianne; Vernhet, Christelle; Rattaz, Cécile; Michelon, Cécile; Baghdadli, Amaria – Journal of Autism and Developmental Disorders, 2023
Autism spectrum disorder (ASD) has a significant impact on the quality of life (QoL) of families. This study aimed to examine, for parents of children with ASD, the dyadic effect of each parent's coping strategy on the perception of the impact of ASD on their QoL. In total, 164 couples completed self-report questionnaires, including the…
Descriptors: Coping, Autism Spectrum Disorders, Children, Parents
Cheng, Sanyin; Yang, Yuqin; Deng, Meng – Journal of Autism and Developmental Disorders, 2022
This study mainly explored psychological stress caused by the COVID-19 among parents in developmental disabilities and how it was related to parents' views of school success in mainland China. The Psychological Stress Questionnaire and Views of Social and Academic Success were administered to 1919 parents of children with developmental…
Descriptors: Psychological Patterns, Stress Variables, Academic Achievement, Students with Disabilities
Brinkman, Aurora H.; Barry, Tammy D.; Lindsey, Rebecca A. – Journal of Autism and Developmental Disorders, 2023
Caregivers of children with autism spectrum disorder (ASD) experience greater stress, expressed emotion (EE), and affiliate stigma than caregivers of children without ASD. Siblings of children with ASD often experience greater negative functioning than siblings of individuals without ASD. The current study found significant interrelations among…
Descriptors: Parents, Parent Attitudes, Siblings, Anxiety
Cynthia E. Brown; Lauren B. Quetsch; Lindsey S. Aloia; Stephen M. Kanne – Journal of Autism and Developmental Disorders, 2024
Youth with autism spectrum disorder (ASD) often experience difficulties related to aggression, disruptive behavior, and regulation of emotions that precipitate these behaviors (i.e., anger). The extent to which aggression, disruptive behaviors, and anger dysregulation are correlated with distinct or overlapping factors has not yet been explored.…
Descriptors: Autism Spectrum Disorders, Psychological Patterns, Predictor Variables, Youth
Marija Ljubicic; Sonja Šare; Ivana Kolcic – Journal of Autism and Developmental Disorders, 2025
Background: Sleep deprivation can decrease parental well-being and degrade mental and physical health in parents of children with chronic illness. The aim of this study was to explore the associations of sleep quality, psychological stress perception, and evening salivary cortisol concentration with self-esteem, optimism and happiness in parents…
Descriptors: Sleep, Physiology, Developmental Disabilities, Diabetes
Sivan George-Levi; Roni Laslo-Roth; Lital Ben-Yaakov – Journal of Autism and Developmental Disorders, 2024
Mothers and fathers of children on the autism spectrum may differ in their perception of their interpersonal resources and risk factors. Fathers (114) and mothers (507) of children on the autism spectrum participated in the study. Fathers (vs. mothers) reported lower interpersonal resources (interpersonal emotion regulation and perceived support…
Descriptors: Mothers, Fathers, Children, Autism Spectrum Disorders
Lee, Meen Hye; Min, Ari; Park, Chang; Kim, Inah – Journal of Autism and Developmental Disorders, 2023
Sleep disturbance is prevalent in caregivers and associated with negative physical, mental, and functional outcomes. This study examined the effects of sleep disturbance on daytime functions (sleepiness, fatigue, mood, cognitive alertness), care-related quality of life, and daily parenting interactions in 20 mothers of children with autism…
Descriptors: Sleep, Executive Function, Quality of Life, Parent Role
George-Levi, Sivan; Laslo-Roth, Roni – Journal of Autism and Developmental Disorders, 2021
The interplay between sense of entitlement and hope might have a unique contribution to mothers of children with developmental disabilities (DD) life satisfaction. Seventy-three mothers of children with DD and 47 mothers of children without DD participated in the study. Mothers of children with DD (vs. without DD) experienced low levels of life…
Descriptors: Parent Attitudes, Psychological Patterns, Life Satisfaction, Mothers
Adams, Haley C.; Zlomke, Kimberly R.; Rossetti, Kristina G. – Journal of Autism and Developmental Disorders, 2023
Female caregivers of children with autism spectrum disorder (ASD) often report higher levels of psychological distress related to increased levels of caregiver strain, as well as frequency and severity of child problem behaviors (CPB). However, despite reported distress, caregivers have also reported benefits. A sample of n = 259 female caregivers…
Descriptors: Parent Child Relationship, Parenting Styles, Autism Spectrum Disorders, Females
Koukouriki, Evangelia; Athanasopoulou, Evangelini; Andreoulakis, Elias – Journal of Autism and Developmental Disorders, 2022
Loneliness has been associated with several adverse psychosocial outcomes in childhood and adolescence. The present study aimed to investigate feelings of loneliness and social dissatisfaction in school-aged typically-developing (TD) siblings of children with an autism spectrum disorder (ASD). For this purpose, 118 siblings of children with ASD…
Descriptors: Autism Spectrum Disorders, Psychological Patterns, Siblings, Correlation
Jina Chun; Sarah L. Curtiss; Constance Richard; Kaiqi Zhou; Yazmin Castruita Rios; Sara Park; Jaeyong Kim; Muharrem Koc – Journal of Autism and Developmental Disorders, 2025
The post-secondary transition for autistic youth is a complex process, with hopes and expectations serving as malleable mediators often overlooked in research and practice. Career awareness, exploration, and counseling services play a critical role in facilitating vocational transition, but the vocational hopes and expectations of autistic youth…
Descriptors: Psychological Patterns, Expectation, Career Planning, Transitional Programs
Salomone, Erica; Settanni, Michele; Ferrara, Federica; Salandin, Arianna – Journal of Autism and Developmental Disorders, 2019
We investigated the mechanism of impact of poor communication skills and emotional and behavioural problems in children with ASD (22-61 months) on parental psychological distress. Participants were dyads enrolled in two pilot intervention studies; the dataset includes cross-sectional data at baseline (N = 82). We postulated an indirect effect of…
Descriptors: Communication Skills, Emotional Problems, Behavior Problems, Autism
Kimberly S. Ellison; Elzbieta Jarzabek; Scott L. J. Jackson; Adam Naples; James C. McPartland – Journal of Autism and Developmental Disorders, 2024
There has been a heightened awareness of an increased risk of suicidality among individuals with autism spectrum disorder (ASD) due to high rates of suicidal ideation (SI) in this population (11-66%). The current study investigated the rate of parent-endorsed SI and associated clinical features in 48 youths with ASD (Age; M: 12.97 years, SD:…
Descriptors: Suicide, Autism Spectrum Disorders, Symptoms (Individual Disorders), At Risk Persons
Céleste Dubé; Alexandre J.S. Morin; István Tóth-Király; Elizabeth Olivier; Danielle Tracey; Victoria Smodis McCune; Rhonda G. Craven; Christophe Maïano – Journal of Autism and Developmental Disorders, 2024
This study investigates the nature of the social interaction profiles observed among youth with intellectual disabilities (ID), defined while considering their relationships with their parents, peers, and teachers, as well as the implication of these profiles for self-esteem, aggressive behaviors, and prosocial behaviors. A sample of 393 youth…
Descriptors: Intellectual Disability, Youth, Profiles, Interpersonal Relationship