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Damla Eyuboglu; Murat Eyuboglu; Ferhat Yaylaci; Baris Guller; Begum Sahbudak; Aslihan Avunduk; Onur Oktay Dagli; Seval Caliskan Pala; Didem Arslantas – Journal of Autism and Developmental Disorders, 2025
The aim of this study was to examine the reliability and validity of the Turkish version of the AFEQ for Turkish parents of children with ASD. The Turkish-translated version of the AFEQ was administered to 241 parents of children aged 2-12 years with ASD to examine the construct validity and internal consistencies. Parents completed the Autism…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Family Relationship, Questionnaires
Melissa Raspa; Angela Gwaltney; Carla Bann; Jana von Hehn; Timothy A. Benke; Eric D. Marsh; Sarika U. Peters; Amitha Ananth; Alan K. Percy; Jeffrey L. Neul – Journal of Autism and Developmental Disorders, 2025
Rett syndrome is a severe neurodevelopmental disorder that affects about 1 in 10,000 females. Clinical trials of disease modifying therapies are on the rise, but there are few psychometrically sound caregiver-reported outcome measures available to assess treatment benefit. We report on a new caregiver-reported outcome measure, the Rett Caregiver…
Descriptors: Neurodevelopmental Disorders, Genetic Disorders, Females, Test Validity
Elizabeth P. McKernan; Natalie Russo – Journal of Autism and Developmental Disorders, 2024
The current study examined factorial invariance of the Center for Epidemiologic Studies Depression Scale-Revised (CESD-R) and the Depression Anxiety Stress Scales-21 (DASS-21) using a convenience sample of 434 adults surveyed though Amazon Mechanical Turk. Participants were sorted into two groups based on their score on the Autism-Spectrum…
Descriptors: Adults, Autism Spectrum Disorders, Symptoms (Individual Disorders), Severity (of Disability)
Schulz, S. E.; Stevenson, R. A. – Journal of Autism and Developmental Disorders, 2022
Sensory issues are highly prevalent in autism and previous findings support a relationship between questionnaires of sensitivity and autistic symptoms and traits, whereas studies that examine this relationship through behavioural assessments of sensitivity are less consistent. The current study explores these differences and suggests that…
Descriptors: Autism, Symptoms (Individual Disorders), Sensory Experience, Adults
Karl Lundin Remnélius; Sven Bölte – Journal of Autism and Developmental Disorders, 2024
Given that camouflaging has been suggested to contribute to delayed diagnosis and mental health problems among autistic people, validated measures of the construct are needed. This study describes the psychometric evaluation of the Swedish adaptation of the self-reported Camouflaging Autistic Traits Questionnaire (CAT-Q) in autistic (n = 100) and…
Descriptors: Autism Spectrum Disorders, Foreign Countries, Psychometrics, Symptoms (Individual Disorders)
Raven Bureau; Marie Riebel; Luisa Weiner; Romain Coutelle; Julie Dachez; Céline Clément – Journal of Autism and Developmental Disorders, 2024
Purpose: Autistic camouflaging is a collection of strategies used to hide autistic characteristics. It can have serious consequences on autistic people's mental health and needs to be addressed and measured in clinical practice. The purpose of this study is to evaluate the psychometric properties of the French adaptation of the Camouflaging…
Descriptors: Autism Spectrum Disorders, Symptoms (Individual Disorders), Mental Health, Psychometrics
Rebecca M. Pollak; Michael Mortillo; Melissa M. Murphy; Jennifer G. Mulle – Journal of Autism and Developmental Disorders, 2025
3q29 deletion syndrome (3q29del) is associated with a significantly increased risk for neurodevelopmental and neuropsychiatric disorders. However, the full spectrum of behavioral phenotypes associated with 3q29del is still evolving. Individuals with 3q29del (n = 96, 60.42% male) or their guardian completed the Achenbach Child or Adult Behavior…
Descriptors: Genetic Disorders, Neurodevelopmental Disorders, Behavior Disorders, Symptoms (Individual Disorders)
Kazak, Anne; Ramirez, Alejandra Perez; Scialla, Michele A.; Alderfer, Melissa A.; Sewell-Roberts, Carrie; Treadwell-Deering, Diane – Journal of Autism and Developmental Disorders, 2023
Recognizing the multifaceted and chronic demands on families of children with Autism Spectrum Disorder (ASD) and challenges in providing care matched to need, we adapted the Psychosocial Assessment Tool (PAT), a brief caregiver-report screener of family psychosocial risk, for this population. Study methods included literature review, focus groups…
Descriptors: Autism Spectrum Disorders, Caregiver Attitudes, Family Environment, Symptoms (Individual Disorders)
Mazurek, Micah O.; Carlson, Coleen; Baker-Ericzén, Mary; Butter, Eric; Norris, Megan; Kanne, Stephen – Journal of Autism and Developmental Disorders, 2020
The Autism Impact Measure (AIM) was designed to track incremental change in frequency and impact of core ASD symptoms. The current study examined the structural and convergent validity of the AIM in a large sample of children with ASD. The results of a series of exploratory and confirmatory factor analyses yielded a final model with five…
Descriptors: Autism, Pervasive Developmental Disorders, Symptoms (Individual Disorders), Test Validity
Sandy L. Birkeneder; Jennifer Bullen; Nancy McIntyre; Matthew C. Zajic; Lindsay Lerro; Marjorie Solomon; Nicole Sparapani; Peter Mundy – Journal of Autism and Developmental Disorders, 2024
Preliminary evidence from the Childhood Joint Attention Rating Scale (C-JARS; Mundy et al., 2017) suggests symptoms related to diminished joint attention and the spontaneous sharing of experience with others can be assessed with a parent-report measure in children and adolescents with autism. This study was designed to expand on the previous study…
Descriptors: Attention, Measures (Individuals), Children, Test Validity
Yang, Shuran; Han, Dong; Zhou, Huizhi; Yang, Chen; Zhang, Kun; Chen, Shi; Yang, Runxu; Cao, Xia; Grodberg, David; Zhao, Xudong; Kang, Chuanyuan – Journal of Autism and Developmental Disorders, 2023
The Autism Mental Status exam (AMSE) has demonstrated excellent sensitivity and specificity in Western high-risk population with suspected autism spectrum disorder (ASD). This study aimed to evaluate the psychometric properties of the AMSE in a sample of high-risk Chinese children, and to determine the optimal cutoff score of the Chinese version…
Descriptors: Validity, Cutting Scores, Accuracy, Diagnostic Tests
Bang, Peter; Strömberg, Maria; Meera, Shoba S.; Igelström, Kajsa – Journal of Autism and Developmental Disorders, 2022
The broad autism phenotype (BAP) is a set of characteristics often observed in typically developing people with a genetic load for autism, such as parents of autistic children. The Broad Autism Phenotypic Questionnaire (BAPQ) is a 36-item questionnaire developed to identify the BAP in first-degree relatives of autistic people. We translated the…
Descriptors: Autism Spectrum Disorders, Disability Identification, Symptoms (Individual Disorders), Psychometrics
Kirsty L. Coulter; Paula Moreno; Marianne Barton; Thyde Dumont-Mathieu; Diana L. Robins; Deborah A. Fein – Journal of Autism and Developmental Disorders, 2024
Racial disparities exist in autism diagnosis, and yet, the development of most diagnostic tools has not explicitly examined measurement equity between racial and ethnic groups. We examined the validity of the Toddler Autism Symptom Inventory (TASI), a semi-structured interview developed for diagnosis of toddlers, in non-Hispanic Black/African…
Descriptors: Toddlers, Autism Spectrum Disorders, Whites, African Americans
Dow, Deanna; Holbrook, Alison; Toolan, Christina; McDonald, Nicole; Sterrett, Kyle; Rosen, Nicole; Kim, So Hyun; Lord, Catherine – Journal of Autism and Developmental Disorders, 2022
Interest in telehealth assessment for autism has increased due to COVID-19 and subsequent expansion of remote psychological services, though options that are easy for clinicians to adopt and available through the lifespan are limited. The Brief Observation of Symptoms of Autism (BOSA) provides a social context with standardized materials and…
Descriptors: Autism Spectrum Disorders, Clinical Diagnosis, Screening Tests, Psychological Services
Bal, Vanessa H.; Maye, Melissa; Salzman, Emma; Huerta, Marisela; Pepa, Lauren; Risi, Susan; Lord, Catherine – Journal of Autism and Developmental Disorders, 2020
Few measures are appropriate to assess autism symptoms in minimally verbal adolescents and adults. The Autism Diagnostic Observation Schedule, 2nd Edition (ADOS-2, Lord et al., in Autism diagnostic observation schedule--2nd edition (ADOS-2). Western Psychological Services, Los Angeles, 2012) Modules 1 and 2 were designed and validated with…
Descriptors: Diagnostic Tests, Autism, Observation, Pervasive Developmental Disorders