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Gwendoline Desquenne Godfrey; Naomi Downes; Emilie Cappe – Journal of Autism and Developmental Disorders, 2024
This article aims to review the literature on family functioning in the field of autism. The search was conducted in August 2021 in PubMed, PsycINFO, and PubPsy and sixty-two articles were included. Studies were published in English between 1980 and 2021 and provided quantitative data from validated measures of family functioning in families with…
Descriptors: Family Environment, Family Relationship, Children, Autism Spectrum Disorders
Fouad A. Alshaban; Mohammad Aldosari; Iman Ghazal; Hawraa Al-Shammari; Saba ElHag; I. Richard Thompson; Jennifer Bruder; Hibah Shaath; Fatema Al-Faraj; Mohamed Tolefat; Assal Nasir; Eric Fombonne – Journal of Autism and Developmental Disorders, 2025
Purpose: Genetic and environmental risk factors associated with Autism Spectrum Disorders (ASD) continue to be a focus of research worldwide. Consanguinity, the cultural practice of marrying within a family, is common in cultures and societies of the Middle East, North Africa and parts of Asia. Consanguinity has been investigated as a risk factor…
Descriptors: Risk, Symptoms (Individual Disorders), Autism Spectrum Disorders, Environmental Influences
Dai, Yael G.; Carter, Alice S. – Journal of Autism and Developmental Disorders, 2023
Symptoms of autism influence families' participation in daily activities, but few studies have broadly explored the types of accommodations caregivers make to their "family's" routines after their child is diagnosed with autism. The current study used a mixed-methods approach to characterize the rate and types of accommodations made by…
Descriptors: Accessibility (for Disabled), Young Children, Autism Spectrum Disorders, Family Relationship
Hillary K. Schiltz; Elaine Clarke; Nicole Rosen; Sofi Gomez De La Rosa; Nina Masjedi; Kourtney Christopher; Catherine Lord – Journal of Autism and Developmental Disorders, 2024
Although caregiving responsibilities and need for support persist and evolve across the life course in families with autistic youth or youth with other developmental disabilities (DDs), little is known about support during their child's adulthood years. Therefore, the present study used a mixed-methods approach to examine change and stability in…
Descriptors: Family Relationship, Adolescents, Young Adults, Autism Spectrum Disorders
Liat Hamama – Journal of Autism and Developmental Disorders, 2024
The experience of family members of children with autism spectrum disorder (ASD) is not uniform. This study focused on mothers of a child with ASD (Study 1) and typically developing siblings (TDSs) during their emerging adulthood (Study 2). Similarities and differences were explored regarding a proposed model examining the paths of perceived…
Descriptors: Social Support Groups, Well Being, Family Relationship, Children
Scheerer, Nichole E.; Boucher, Troy Q.; Bahmei, Behnaz; Iarocci, Grace; Arzanpour, Siamak; Birmingham, Elina – Journal of Autism and Developmental Disorders, 2022
Decreased sound tolerance (DST) is the most common sensory difficulty experienced by autistic individuals. Parents of 88 autistic children and young adults between the ages of 3 and 30 described coping strategies and physical and emotional responses used to deal with distressing sounds, and their impact on daily activities. Loud, sudden, and…
Descriptors: Experience, Family Relationship, Auditory Perception, Auditory Stimuli
A. M. Kellerman; C. Masters; A. J. Schwichtenberg – Journal of Autism and Developmental Disorders, 2024
To inform parent-mediated intervention models, this study assessed if family affectedness (i.e., elevated autism symptoms in more than one child) was associated with maternal self-reported social difficulties (as indexed by the Social Responsiveness Scale; SRS-2), and social interactions during play. As part of a prospective study, 71 mothers…
Descriptors: Mother Attitudes, Parent Child Relationship, Autism Spectrum Disorders, Symptoms (Individual Disorders)
Damla Eyuboglu; Murat Eyuboglu; Ferhat Yaylaci; Baris Guller; Begum Sahbudak; Aslihan Avunduk; Onur Oktay Dagli; Seval Caliskan Pala; Didem Arslantas – Journal of Autism and Developmental Disorders, 2025
The aim of this study was to examine the reliability and validity of the Turkish version of the AFEQ for Turkish parents of children with ASD. The Turkish-translated version of the AFEQ was administered to 241 parents of children aged 2-12 years with ASD to examine the construct validity and internal consistencies. Parents completed the Autism…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Family Relationship, Questionnaires
Umran Cevik Guner U; Irem Bilkay – Journal of Autism and Developmental Disorders, 2024
The family has a key role in the obesity management of children with autism. This study examines the relationship between the nutrition-physical activity behaviors of autistic children with their families and children's obesity levels during COVID-19 pandemic. The descriptive and cross-sectional study involved 80 parents of autistic children. A…
Descriptors: Children, Autism Spectrum Disorders, Relationship, Family Relationship
Klusek, Jessica; Thurman, Angela John; Abbeduto, Leonard – Journal of Autism and Developmental Disorders, 2022
Broader phenotypes associated with genetic liability, including mild difficulties with pragmatic language skills, have been documented in mothers of children with autism spectrum disorder (ASD) and mothers of children with fragile X syndrome (FXS). This study investigated the relationship between pragmatic difficulties and indicators of maternal…
Descriptors: Mothers, Pragmatics, Language Skills, Autism
Gordillo, Monica L.; Chu, Andrea; Long, Kristin – Journal of Autism and Developmental Disorders, 2022
Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore…
Descriptors: Mothers, Hispanic Americans, Autism Spectrum Disorders, Ethnicity
Ashley N. Murphy; Kathleen Moskowitz; Francesca Fernandez; Heather J. Risser – Journal of Autism and Developmental Disorders, 2025
Rehabilitative and habilitative therapies can help children with disabilities increase independence and overall wellbeing. However, children and their caregivers face many barriers to accessing these therapies and often rely on the school for therapy access. Given the limited resources available within the special education system, increasing…
Descriptors: Parents, Needs, Parent Participation, Children
Drogomyretska, Kateryna; Fox, Robert; Colbert, Dylan – Journal of Autism and Developmental Disorders, 2020
Previous literature has indicated that perceptions of social support (PSS) may be an important predictor of parental stress levels, particularly for parents of children diagnosed with autism spectrum disorders (ASD). The current study implemented structural equation modelling to further investigate the relationship between PSS and parental stress…
Descriptors: Stress Variables, Social Support Groups, Parents, Children
De Clercq, Lana E.; Prinzie, Peter; Warreyn, Petra; Soenens, Bart; Dieleman, Lisa M.; De Pauw, Sarah S. W. – Journal of Autism and Developmental Disorders, 2022
This study examined the family emotional climate as assessed by Five Minute Speech Samples and the relation with parenting stress and parenting behaviors among parents of children (6-17 years, 64.7% boys) with autism spectrum disorder, cerebral palsy, Down syndrome, and without any known disability (n = 447). The large majority of parents (79%)…
Descriptors: Stress Variables, Parent Child Relationship, Cerebral Palsy, Autism
Asbury, Kathryn; Fox, Laura; Deniz, Emre; Code, Aimee; Toseeb, Umar – Journal of Autism and Developmental Disorders, 2021
Parents of children with Special Educational Needs and Disabilities in the UK (n = 241) were asked to describe the impact of COVID-19 on their own mental health and that of their child. An inductive content analysis of the data was undertaken. Both parents and children appear to be experiencing loss, worry and changes in mood and behaviour as a…
Descriptors: COVID-19, Pandemics, Special Needs Students, Special Education