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Simin He; Feixiang Zhou; Gang Tian; Yiran Cui; Yan Yan – Journal of Autism and Developmental Disorders, 2024
To investigate the association between exposure to anesthesia during three periods of pregnancy, delivery, and childhood and autism spectrum disorder (ASD). PubMed, Scopus, Web of Science, Embase, Google Scholar, PsycArticles, and PsycINFO were searched from the date of database inception to 1 December 2022. Studies reported the association…
Descriptors: Pregnancy, Anesthesiology, Autism Spectrum Disorders, Medical Services
Sabrin Rizk; Emmanuel M. Ngui; Zurisadai Salgado; Dianna L. Bosak; Mary A. Khetani – Journal of Autism and Developmental Disorders, 2025
This scoping review examined current evidence on medical home care and its association with educational services for children and youth on the autism spectrum. We searched five databases and grey literature resulting in 328 publications. Publications meeting inclusion criteria were mapped to medical home care component(s) addressed, type(s) of…
Descriptors: Medical Services, Access to Health Care, Access to Education, Autism Spectrum Disorders
Lauren E. Mazur; Katelyn M. Even; Conrad Krawiec – Journal of Autism and Developmental Disorders, 2025
Children with neurodevelopmental disorders are at risk for burn injury, but the clinical outcomes, particularly mortality, are unknown in this patient population in the United States (U.S.). The main objectives of this study are to evaluate (1) subject characteristics; (2) burn injury type; (3) clinical care provided; and (4) mortality in children…
Descriptors: Children, Neurodevelopmental Disorders, At Risk Persons, Individual Characteristics
Kim, Tierney; Martinez, Kassandra; Cruz, Breanna Lopez; Huang, Jeannie S.; Stadnick, Nicole A. – Journal of Autism and Developmental Disorders, 2023
Limited guidance is available for families of youth with ASD (YASD) to prepare for invasive medical procedures. This study examined caregiver perspectives regarding YASD's gastrointestinal endoscopy (GE) experience to improve the endoscopy experience for YASD. Thirty-four caregivers of YASD, (M = 9.85 years, SD = 4.6) who underwent GE at Rady…
Descriptors: Youth, Autism Spectrum Disorders, Caregiver Attitudes, Medical Services
Brian Barger; Ashley Salmon; Quentin Moore – Journal of Autism and Developmental Disorders, 2024
Developmental monitoring/screening predict early identified autism spectrum disorders (ASD), but studies have not yet robustly controlled for a key health care service impacting early identification: medical home. National Surveys of Children's Health (NSCH; 2016-2020) were used to determine the relationship between medical home, developmental…
Descriptors: Autism Spectrum Disorders, Identification, Screening Tests, Child Development
Litwin, Sasha; Sellen, Kate – Journal of Autism and Developmental Disorders, 2023
Children with autism spectrum disorder (ASD) have more frequent use of healthcare services, including visits to the emergency department (ED). Medical care for children with ASD can be adversely affected by the highly stimulating environment of the ED. In this study, we gained insights from stakeholders with lived experience (parents of children…
Descriptors: Sensory Experience, Equipment, Medical Services, Children
Iannuzzi, Dorothea; Hall, Matt; Oreskovic, Nicolas M.; Aryee, Emmanuel; Broder-Fingert, Sarabeth; Perrin, James M.; Kuhlthau, Karen A. – Journal of Autism and Developmental Disorders, 2022
This study examined emergency department (ED) utilization by adolescents and young adults, 12-30 years of age (AYA) with autism spectrum disorder (ASD) using the 2016 Healthcare Cost and Utilization Project/National Emergency Department Sample (HCUP/NEDS). We investigated the principal reason for an ED visit, presence of an ambulatory care…
Descriptors: Medical Services, Hospitals, Use Studies, Adolescents
Ayhan, Aynur Bütün; Beyazit, Utku; Topuz, Senay; Tunay, Çagla Zeynep; Abbas, Maryam Nazhad; Yilmaz, Serkan – Journal of Autism and Developmental Disorders, 2021
We aimed to examine the opinions of parents' having a child with ASD, on genetic testing, in a Turkish sample. 951 parents' attitudes towards genetic testing were included. 89.1% of the parents did not take a genetic test during pregnancy. 87.6% of the parents agreed to take a genetic test if it could explain the cause of ASDs. 93% agreed to take…
Descriptors: Foreign Countries, Autism, Pervasive Developmental Disorders, Children
Katerina Dounavi; Meral Koldas – Journal of Autism and Developmental Disorders, 2025
Autism Spectrum Disorder (ASD) is a prevalent neurodevelopmental condition for which no prenatal or early life screening tests exist. Early life recognition of ASD is key to accessing behavioral intervention when brain plasticity is at its peak. The purpose of our study was to systematically review the literature researching parental perspectives…
Descriptors: Parent Attitudes, Screening Tests, Genetics, Autism Spectrum Disorders
Liddle, Melissa; Sonnentag, Tammy L. – Journal of Autism and Developmental Disorders, 2021
Children with developmental disabilities require more medical experiences than typically-developing children and struggle to cooperate with healthcare encounters. Adaptive care plans, delivered by child life specialists, are individualized patient-centered plans created to address the challenges that children with developmental disabilities…
Descriptors: Children, Adolescents, Developmental Disabilities, Patients
Megan Micheletti; Briana H. Brukilacchio; Haley Hooper-Boyle; Tajudeen Basiru; Meredith I. Brinster; Sheri Ravenscroft; Jeffrey D. Shahidullah – Journal of Autism and Developmental Disorders, 2025
Given existing barriers to a timely autism diagnosis, this study compares the efficiency and equity of diagnoses conducted in-person vs. telehealth in a developmental behavioral pediatrics setting. The transition to telehealth was prompted by the COVID-19 pandemic. Eleven months of clinic data in electronic medical records were retrospectively…
Descriptors: Program Evaluation, Program Effectiveness, Autism Spectrum Disorders, Clinical Diagnosis
Kouo, Jennifer L.; Kouo, Theodore S. – Journal of Autism and Developmental Disorders, 2021
Individuals with an autism spectrum disorder (ASD) have a greater number of healthcare provider interactions than individuals without ASD. The obstacles to patient-centered care for this population, which include inflexibility of hospital environments, limited resources, and inadequate training, has been documented. However, there is little…
Descriptors: Patients, Autism, Pervasive Developmental Disorders, Medical Services
Hong, Minha; Lee, Sang Min; Park, Saengryeol; Yoon, Seok-Jun; Kim, Young-Eun; Oh, In-Hwan – Journal of Autism and Developmental Disorders, 2020
The prevalence of autism spectrum disorder (ASD) is increasing worldwide. We investigated the economic burden of ASD in South Korea using a nationally representative data source. The direct medical and non-medical costs, and indirect costs resulting from ASD were estimated. The total prevalence was 5.04 (per 100,000) in 2008, and 10.97 in 2015.…
Descriptors: Health Insurance, Autism, Pervasive Developmental Disorders, Costs
Garrick, Alice; Lee, Marie L.; Scarffe, Carrington; Attwood, Tony; Furley, Kirsten; Bellgrove, Mark A.; Johnson, Beth P. – Journal of Autism and Developmental Disorders, 2022
Parents of children with ASD who had attended an Australian emergency department (ED; n = 421) completed a questionnaire relating to their experiences in the ED, including (1) child's reason for presentation and existing comorbidities, (2) quality of care during the visit (3) child's behaviour during visit, e.g. sensory responses to the ED…
Descriptors: Foreign Countries, Children, Autism, Pervasive Developmental Disorders
Adams, Dawn – Journal of Autism and Developmental Disorders, 2022
Children on the autism spectrum miss more school than their peers, but limited work has explored why this may be. This study aimed to document the frequency at which children on the autism spectrum miss half and full days of school and the reasons for these absences. Parents of 106 school-aged children on the autism spectrum completed online…
Descriptors: Autism, Pervasive Developmental Disorders, Students with Disabilities, Attendance