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Bamboo Sibs: Experiences of Taiwanese Non-Disabled Siblings of Adults with Intellectual and Developmental Disabilities across Caregiver Lifestages
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Chun-Yu Chiu – Journal of Developmental and Physical Disabilities, 2022
Non-disabled siblings of individuals with intellectual and developmental disabilities (IDD) usually experience trajectories to gradually intensify their involvement in caregiving. However, non-disabled siblings in Asian countries have been woefully overlooked in research despite the fact that Asian countries hold over half of the world's…
Descriptors: Siblings, Adults, Developmental Disabilities, Intellectual Disability
Promoting Physical Activity Participation among People with Intellectual and Developmental Disabilities in South Korea
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Kyung Mee Kim; Chung Eun Lee – Journal of Developmental and Physical Disabilities, 2023
Background: Physical activities are essential to the quality of life of people with intellectual and developmental disabilities. To promote participation in physical activities, it is critical to identify changeable variables based on the socio-environmental approach. The purpose of this study is to explore the status of physical activity…
Descriptors: Intellectual Disability, Developmental Disabilities, Foreign Countries, Physical Activity Level
Mothers' and Fathers' Parenting and Other Family Context Variables Linked to Developmental Outcomes in Young Children with Intellectual Disability: A Two-Wave Longitudinal Study
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Rosa Vilaseca; Magda Rivero; David Leiva; Fina Ferrer – Journal of Developmental and Physical Disabilities, 2023
Parenting is a key factor for the development of children with intellectual and developmental disabilities. Therefore, early intervention programs should target parenting behaviors to improve children's developmental outcomes. The present study analyzed the effect of parental behaviors and other family factors on the cognitive and linguistic…
Descriptors: Parenting Styles, Parent Child Relationship, Mothers, Fathers
Pain Characteristics in People with Prader-Willi, Williams, and Fragile-X Syndromes: An International Survey of Caregivers' Perspective
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Nanda de Knegt – Journal of Developmental and Physical Disabilities, 2023
Many people with intellectual disabilities (ID) depend on caregivers for pain identification and pain management decisions. Therefore, the aim was to explore caregivers' experience with pain in Prader-Willi syndrome (PWS), Williams syndrome (WS), and Fragile-X syndrome (FXS). A questionnaire was developed to gather third-party reporting of mainly…
Descriptors: Pain, Intellectual Disability, Identification, Caregiver Role
Daily Life and Challenges Faced by Households with Permanent Childhood Developmental Disability in Rural Tanzania -- A Qualitative Study
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Joëlle Castellani; Omari Kimbute; Charles Makasi; Zakayo E. Mrango; Aggie T. G. Paulus; Silvia M. A. A. Evers; Pip Hardy; Tony Sumner; Augusta Keiya; Borislava Mihaylova; Mohammad Abul Faiz; Melba Gomes – Journal of Developmental and Physical Disabilities, 2022
Severe developmental disability in children affects the life of the child and entire household. We conducted a qualitative study to understand how caregivers manage severe developmental disabilities in children in rural Africa. Families and six children (out of 15 children) who had serious permanent sequelae from a cerebral infection in Handeni,…
Descriptors: Foreign Countries, Daily Living Skills, Accessibility (for Disabled), Rural Areas
Sibling Relationships, Disability, Chronic, and Mental Illness: Development of the Siblings' Experience Quality Scale (SEQS)
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Massimiliano Sommantico; Santa Parrello; Barbara De Rosa – Journal of Developmental and Physical Disabilities, 2020
The goal of this study is to propose the Siblings' Experience Quality Scale (SEQS), a measure for the assessment of cognitive, emotional and behavioral experience of adult individuals having a brother or sister with an intellectual/developmental disability, chronic physical illness or mental illness, on five dimensions: Closeness, Conflict,…
Descriptors: Foreign Countries, Siblings, Sibling Relationship, Adults