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Kangwei Xun; Christine Bigby; Tal Araten-Bergman – Journal of Intellectual & Developmental Disability, 2024
Adult siblings without disabilities play important roles in relation to their brothers and sisters with intellectual disabilities. This study reviewed knowledge about adult sibling relationships in Chinese societies, where one sibling has intellectual disability. Five English and two Chinese databases were searched for publications published up to…
Descriptors: Foreign Countries, Adults, Siblings, Sibling Relationship
Ayelet Siman-Tov; Adi Sharabi – Journal of Intellectual & Developmental Disability, 2024
Background: The study examined relations between a number of variables regarding typically-developing adult siblings of individuals with intellectual and developmental disability: involvement in the lives of their siblings with disability, personal resources (self-efficacy and sense of coherence), loneliness, and adjustment. Method: Participants…
Descriptors: Developmental Disabilities, Siblings, Sibling Relationship, Self Efficacy
Caitlin Gray; Helen Leonard; Kingsley Wong; Sally Reed; Kate Schmidt; Rachel Skoss; Jianghong Li; Alison Salt; Jenny Bourke; Emma J. Glasson – Journal of Intellectual & Developmental Disability, 2024
Background: Siblings of children with intellectual disability have unique family experiences, varying by type of disability. Methods: Parents of children with Down syndrome (156) or with Rett syndrome (149) completed questionnaires relating to sibling advantages and disadvantages, experiences of holidays and recreation, and perceived availability…
Descriptors: Intellectual Disability, Children, Genetic Disorders, Siblings
Lemoine, Lise; Schneider, BenoĆ®t – Journal of Intellectual & Developmental Disability, 2022
Background: The increased life expectancy of people with Down syndrome puts pressure on parents, who are usually the main caregivers but who find caring more difficult as they get older. The quality of the support provided by brothers and sisters depends on the intra-family relationships they build when growing up. Methods: 121 adult siblings of…
Descriptors: Down Syndrome, Siblings, Sibling Relationship, Adults
Sangha, Simrit; Anderson, Joanna K.; Burn, Anne-Marie – Journal of Intellectual & Developmental Disability, 2023
Background: Despite a growing body of literature investigating the impact of disabilities on family relationships, the experiences of ethnic minorities remain underexplored. Method: Semi-structured online interviews were conducted with eight young people (aged 18-28 years) with disabled sibling(s) within an immigrant family to understand how this…
Descriptors: Foreign Countries, Disabilities, Young Adults, Siblings
Corsano, Paola; Musetti, Alessandro; Guidotti, Laura; Capelli, Francesca – Journal of Intellectual & Developmental Disability, 2017
Background: Researchers studying siblings of people with an autism spectrum disorder (ASD) suggest that growing up with an individual with disability has positive and negative effects. Method: Qualitative content analysis of semistructured interviews with 14 typically developing (TD) adolescents with a brother with an ASD and their mothers was…
Descriptors: Siblings, Autism, Pervasive Developmental Disorders, Family Environment
Tomeny, Theodore S.; Barry, Tammy D.; Fair, Elizabeth C. – Journal of Intellectual & Developmental Disability, 2017
Background: Typically developing (TD) siblings of individuals with autism spectrum disorder (ASD) often fulfil caregiving roles as children or adults (i.e., parentification, which can be either parent-focused or sibling-focused).Method This study examines how parentification interacts with social support when predicting distress and sibling…
Descriptors: Sibling Relationship, Social Support Groups, Autism, Pervasive Developmental Disorders
Luijkx, Jorien; van der Putten, Annette A. J.; Vlaskamp, Carla – Journal of Intellectual & Developmental Disability, 2016
Background: Many previous family quality of life studies have relied on parental information for understanding if and how having a sibling with profound intellectual and multiple disabilities (PIMD) influences the sibling's quality of life. In the current study, children had the opportunity to describe both positive and negative aspects of having…
Descriptors: Siblings, Severe Intellectual Disability, Multiple Disabilities, Sibling Relationship
Vert, Rachel; Olson, Tracy A.; Kim, Samuel Y.; Stratton, Kasee K.; Hoesch, Hayley M.; Hartshorne, Timothy S. – Journal of Intellectual & Developmental Disability, 2017
Background: We investigated the experience of siblings of children with CHARGE syndrome (n = 29). Siblings of children with a disability are an understudied population, and, to our knowledge, this is the first investigation of the sibling relationship in CHARGE. Method: Participants were asked to complete 5 measures: (a) Sibling Evaluation…
Descriptors: Siblings, Disabilities, Family Environment, Sibling Relationship
Isaacson, Naomi C.; Cocks, Errol; Netto, Julie A. – Journal of Intellectual & Developmental Disability, 2014
Background: A major milestone in the transition to adulthood is leaving the parental home, known as "launching." This study explored the experiences of 2 young people with intellectual disability during launching into individual supported living, including the impact of a Western Australian (WA) funding approach. Method: Two case studies…
Descriptors: Young Adults, Intellectual Disability, Independent Living, Residential Programs
Sage, Kara D.; Jegatheesan, Brinda – Journal of Intellectual & Developmental Disability, 2010
Background: This study examined typically developing children's perceptions of their siblings with autism and their relationships with them in a European American and an Asian American family. Method: Data were drawn from interviews with the siblings using the "draw-and-tell" technique and participant observation in the homes of the 2 families.…
Descriptors: Siblings, Participant Observation, Autism, Parent Role