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Direct linkMcNamara, Beverley; Same, Anne; Rosenwax, Lorna – Journal of Intellectual Disabilities, 2020
Background: People with intellectual disabilities at the end of life are at risk of receiving inadequate and inequitable end-of-life care. This study explores their unmet needs, opportunities for person-centred care and experiences of health service use. Methods: Qualitative interviews with 26 experienced health professionals and carers were used…
Descriptors: Foreign Countries, Intellectual Disability, Self Determination, Individual Power
McAnaney, Donal F.; Wynne, Richard F. – Journal of Intellectual Disabilities, 2016
A key challenge in formative evaluation is to gather appropriate evidence to inform the continuous improvement of initiatives. In the absence of outcome data, the programme evaluator often must rely on the perceptions of beneficiaries and staff in generating insight into what is making a difference. The article describes the approach adopted in an…
Descriptors: Youth Programs, Transitional Programs, Disabilities, Program Evaluation
