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The Meaning of Adulthood for Emerging Adults with Down Syndrome: Parent Perspectives on Relevant Skills
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Katherine L. Long; Atefeh Karimi; Antonella Mini; Dionne P. Stephens; Eliza L. Nelson – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Parents' conceptualizations of adulthood for their emerging adults with Down syndrome have the potential to impact the transition planning process as families prepare for life after graduation. Aims: This study aimed to explore parent perceptions of the meaning of adulthood for their emerging adults with Down syndrome. Methods: In this…
Descriptors: Parent Attitudes, Young Adults, Down Syndrome, Adolescent Development
Transition to Adulthood of Adolescents with Profound Intellectual and Multiple Disabilities: Content Validation of the SGU-PIMD to Support Families
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Luitwieler, Nicole; Luijkx, Jorien; Stege, Heleen A.; Grootoonk, Anneke; Schans, Cees P.; Putten, Annette A. J.; Waninge, Aly – Journal of Applied Research in Intellectual Disabilities, 2024
Background: For families with adolescent children, the transition to adulthood is usually challenging. This period may be extra demanding for families with a child with profound intellectual and multiple disabilities due to the child's strong and persistent support needs. To support these families during this phase and to facilitate the transition…
Descriptors: Adolescents, Adolescent Development, Family Role, Severe Intellectual Disability
Experiences of Family Carers in Providing Care to Children with Intellectual Disabilities in India: A Qualitative Evidence Synthesis
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Kumaresan Cithambaram; D. Corby; Shankar Shanmugam Rajendran – Journal of Applied Research in Intellectual Disabilities, 2024
Background: India has a significant prevalence of people with intellectual disabilities. Despite their higher prevalence, they receive poor support. Therefore, this review aims to explore the experiences of family carers in providing care for children with intellectual disabilities in India. Methods: A qualitative evidence synthesis was…
Descriptors: Foreign Countries, Intellectual Disability, Family Role, Caregivers
Transition of Adolescents with Intellectual Disability from Schools for Learners with Special Educational Needs: Parents' Views for the Preparedness
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Malapela, Rakgadi Grace; Thupayagale-Tshweneagae, Gloria; Mashalla, Yohana – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Studies on preparedness of parents of adolescents living with intellectual disabilities transitioning from school to adulthood are scarce in sub-Saharan Africa. This study explored views of parents on their preparedness to handle adolescents transitioning from special schools to adulthood. Methods: Descriptive qualitative method was…
Descriptors: Foreign Countries, Adolescent Development, Adolescents, Adults
Constructing Adulthood in Discussions about the Futures of Young People with Moderate-Profound Intellectual Disabilities
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Murphy, Elizabeth; Clegg, Jennifer; Almack, Kathryn – Journal of Applied Research in Intellectual Disabilities, 2011
Background: This study examines how those planning futures for young people with moderate-profound intellectual disabilities invoke, deploy and interpret contrasting definitions of adulthood and perceived capacity for autonomy and self-determination. Methods: Twenty-eight young people were followed through transition from children: s to adult…
Descriptors: Mental Retardation, Young Adults, Adults, Self Determination
Perceived Benefits and Negative Impact of Challenges Encountered in Caring for Young Adults with Intellectual Disabilities in the Transition to Adulthood
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Rapanaro, Cher; Bartu, Anne; Lee, Andy H. – Journal of Applied Research in Intellectual Disabilities, 2008
Background: This study investigated the perceived benefits and negative impact associated with stressful events and chronic caregiving demands encountered by parents caring for young adults with an intellectual disability in the period of transition to adulthood. Methods: A sample of 119 parents of young adults described these outcomes in a…
Descriptors: Mental Retardation, Young Adults, Content Analysis, Stress Management