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The Behavioral Profile of SYNGAP1-Related Intellectual Disability
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Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
Stakeholder Informed Development of the Emotion Awareness and Skills Enhancement Team-Based Program (EASE-Teams)
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Beck, Kelly B.; Northrup, Jessie B.; Breitenfeldt, Kaitlyn E.; Porton, Shannon; Day, Taylor N.; MacKenzie, Kristen T.; Conner, Caitlin M.; Mazefsky, Carla A. – Autism: The International Journal of Research and Practice, 2022
Emotion dysregulation (ED) underlies psychiatric symptoms and impedes adaptive responses in autistic individuals. The Emotion Awareness and Skills Enhancement (EASE) program was the first mindfulness-based intervention designed to target emotion dysregulation in autistic adolescents (12-17 years old). This project partnered with stakeholders to…
Descriptors: Stakeholders, Program Development, Emotional Response, Autism
Parents' Perceptions of Risk and Protective Factors for Problematic Sexual Behaviour in Young Korean Individuals with Developmental Disabilities
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Eunyoung Son; Donghyun Ahn; Johanna Inhyang Kim; Sojung Kim – Journal of Intellectual & Developmental Disability, 2024
Background: Limited data exist on problematic sexual behaviour (PSB) in youth with developmental disabilities in South Korea. Method: Sixty-one parents of children with intellectual disabilities or autism spectrum disorder (aged 13-30) reported children's PSB and emotional, behavioural, cognitive, and interpersonal factors. The frequency of PSB in…
Descriptors: Foreign Countries, Behavior Problems, Sexuality, Developmental Disabilities
Rapid Eye-Tracking Evaluation of Language in Children and Adolescents Referred for Assessment of Neurodevelopmental Disorders
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Frazier, Thomas W.; Hauschild, Kathryn M.; Klingemier, Eric; Strauss, Mark S.; Hardan, Antonio Y.; Youngstrom, Eric A. – Journal of Intellectual & Developmental Disability, 2020
Background: Language assessment is a key element of evaluations of children and adolescents with neurodevelopmental disorders (NDDs). The present study examined the validity of a gaze-based receptive language index (RLI) in predicting language test results.Method: Participants included toddlers, pre-school, and school age children and adolescents…
Descriptors: Children, Adolescents, Neurological Impairments, Evaluation Methods
Vision Care among School-Aged Children with Autism Spectrum Disorder in North America: Findings from the Autism Treatment Network Registry Call-Back Study
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Lindly, Olivia J.; Chan, James; Fenning, Rachel M.; Farmer, Justin G.; Neumeyer, Ann M.; Wang, Paul; Swanson, Mark; Parker, Robert A.; Kuhlthau, Karen A. – Autism: The International Journal of Research and Practice, 2021
Children with autism spectrum disorder have a high risk of vision problems yet little is known about their vision care. This cross-sectional survey study, therefore, examined vision care among 351 children with autism spectrum disorder ages 6-17 years in the United States or Canada who were enrolled in the Autism Treatment Network Registry. Vision…
Descriptors: Autism, Pervasive Developmental Disorders, Foreign Countries, Access to Health Care