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Damien Wright; Aisling Kenny; Lindsay A. M. Mizen; Andrew G. McKechanie; Andrew C. Stanfield – American Journal on Intellectual and Developmental Disabilities, 2024
This study aimed to describe the behavioral profile of individuals with SYNGAP1-ID. Parents/carers of 30 individuals aged 3-18 years old with a diagnosis of SYNGAP1-ID and 21 typically developing individuals completed the Vineland-3 Adaptive Behavior Scale and the Child Behavior Checklist. We found that those with SYNGAP1-ID showed fewer adaptive…
Descriptors: Behavior Problems, Age Differences, Epilepsy, Comorbidity
Amanallah Soltani; Deborah J. Fidler; Lina Patel; Kellie Voth; Anna J. Esbensen – American Journal on Intellectual and Developmental Disabilities, 2025
This study explored how caregiver-reported executive functioning domains, assessed by the BRIEF2 at baseline, predicted behavioral challenges reported by caregivers using the CBCL six months later. The sample included 94 youth with Down syndrome, aged 6 to 18 years. Results of hierarchical regression analyses revealed that, after controlling for…
Descriptors: Youth, Children, Adolescents, Down Syndrome
Lorang, Emily; Hong, Jinkuk; DaWalt, Leann Smith; Mailick, Marsha – American Journal on Intellectual and Developmental Disabilities, 2022
This study investigated the bidirectional effects of change in maladaptive behaviors among adolescents and adults with fragile X syndrome (FXS) and change in their intergenerational family relationships over a 7.5-year period. Indicators of the intergenerational family relationship between premutation carrier mothers and their adolescent or adult…
Descriptors: Behavior Problems, Adolescents, Adults, Genetic Disorders
Shively, Kelsey B.; Tassé, Marc J. – American Journal on Intellectual and Developmental Disabilities, 2022
The Nisonger Child Behavior Rating Form (NCBRF) was developed to specifically screen psychopathology and problem behavior in children and adolescents with IDD. This study aimed to update the NCBRF to the "Diagnostic and Statistical Manual of Mental Disorders, 5th Edition" (DSM-5) and screen for the most prevalent psychopathologies that…
Descriptors: Delphi Technique, Child Behavior, Behavior Rating Scales, Psychopathology
Hannah Singer; Elaine B. Clarke; Hillary K. Schiltz; Catherine Lord – American Journal on Intellectual and Developmental Disabilities, 2025
This 10-year study followed 134 caregivers of young adults with autism and intellectual disability, examining the effects of caregivers' coping strategies, sociodemographic features, and young adult symptomatology on caregiver well-being and depression. Lower caregiver education and higher young adult externalizing behaviors predicted lower…
Descriptors: Caregivers, Coping, Developmental Disabilities, Young Adults
Esbensen, Anna J.; Hoffman, Emily K.; Shaffer, Rebecca C.; Patel, Lina R.; Jacola, Lisa M. – American Journal on Intellectual and Developmental Disabilities, 2021
The current study evaluates the concurrent relationship between parent ratings of executive functioning and maladaptive behavior among children and adolescents with Down syndrome and then repeats this evaluation using teacher reports. Parents and teachers of 63 school-age children with Down syndrome rated the child's executive functioning…
Descriptors: Executive Function, Behavior Problems, Children, Adolescents
Martin, Francien; van Rijn, Sophie; Bierman, Marit; Swaab, Hanna – American Journal on Intellectual and Developmental Disabilities, 2021
Klinefelter syndrome (47,XXY) is associated with problems in social interaction and behavioral adaptation. Sixteen adolescents and adult men with 47,XXY enrolled in a pilot-study evaluating the effectiveness of Social Management Training (SMT), a novel neurocognitive-behavioral treatment program targeted at improving social, emotional, and…
Descriptors: Genetic Disorders, Adolescents, Adults, Males
Quebles, Irina; Solomon, Olga; Smith, Kathryn A.; Rao, Sowmya R.; Lu, Frances; Allen, Colleen; Anaya, Grace; Yin, Larry – American Journal on Intellectual and Developmental Disabilities, 2020
We examined racial and ethnic differences in the prevalence of behavioral problems measured by the Child Behavioral Checklist (CBCL), sleep disturbances measured by the Child Sleep Habits Questionnaire (CSHQ), and medication use among children with Autism Spectrum Disorders (ASD). We analyzed data from the Autism Treatment Network (ATN) dataset…
Descriptors: Racial Differences, Ethnicity, Incidence, Behavior Problems
Chan, Wai; Smith, Leann E.; Greenberg, Jan S.; Hong, Jinkuk; Mailick, Marsha R. – American Journal on Intellectual and Developmental Disabilities, 2017
The present investigation explored long-term relationships of behavioral symptoms of adolescents and adults with developmental disabilities with the mental health of their mothers. Fragile X premutation carrier mothers of an adolescent or adult child with fragile X syndrome (n = 95), and mothers of a grown child with autism (n = 213) were…
Descriptors: Behavior Problems, Adolescents, Adults, Genetic Disorders
Dieleman, Lisa M.; De Pauw, Sarah S. W.; Soenens, Bart; Van Hove, Geert; Prinzie, Peter – American Journal on Intellectual and Developmental Disabilities, 2018
This study aimed to describe problem behaviors and psychosocial strengths, examine the problem-strength interrelations, and evaluate profiles of problems and strengths in youth with Down syndrome (DS). The community-based sample consisted of 67 parents of children with DS aged between 4 and 19 years. Parents reported about the developmental age…
Descriptors: Down Syndrome, Behavior Problems, Child Behavior, Children
Lyons, Gregory L.; Huber, Heartley B.; Carter, Erik W.; Chen, Rui; Asmus, Jennifer M. – American Journal on Intellectual and Developmental Disabilities, 2016
Although enhancing the social competence of students with severe disabilities has long remained a prominent focus of school-based intervention efforts, relatively little attention has focused on identifying the most critical social and behavioral needs of students during high school. We examined the social skills and problem behaviors of 137…
Descriptors: High School Students, Adolescents, Severe Disabilities, Interpersonal Competence
Klein-Tasman, Bonita P.; Lira, Ernesto N.; Li-Barber, Kirsten T.; Gallo, Frank J.; Brei, Natalie G. – American Journal on Intellectual and Developmental Disabilities, 2015
Problem behavior of 52 children with Williams syndrome ages 6 to 17 years old was examined based on both parent and teacher report. Generally good inter-rater agreement was found. Common areas of problem behavior based both on parent and teacher report included attention problems, anxiety difficulties, repetitive behaviors (e.g., obsessions,…
Descriptors: Behavior Problems, Genetic Disorders, Children, Adolescents
Greenberg, Jan S.; Seltzer, Marsha Mailick; Baker, Jason K.; Smith, Leann E.; Warren, Steven F.; Brady, Nancy; Hong, Jinkuk – American Journal on Intellectual and Developmental Disabilities, 2012
We examine how the family environment is associated with aspects of the Fragile X syndrome phenotype during childhood, adolescence, and adulthood. Mothers of children (n = 48), adolescents (n = 85), and adults (n = 34) with Fragile X syndrome participated in a multisite study. For children and adults with Fragile X syndrome, the presence of warmth…
Descriptors: Behavior Problems, Adolescents, Criticism, Family Environment
Smith, Leann E.; Barker, Erin T.; Seltzer, Marsha Mailick; Abbeduto, Leonard; Greenberg, Jan S. – American Journal on Intellectual and Developmental Disabilities, 2012
The present study explored the behavioral profile of individuals with fragile X syndrome during adolescence and adulthood. Individuals with both fragile X syndrome and autism (n = 30) were compared with (a) individuals diagnosed with fragile X syndrome (but not autism; n = 106) and (b) individuals diagnosed with autism (but not fragile X syndrome;…
Descriptors: Behavior, Profiles, Genetic Disorders, Mental Retardation
Gray, Kylie; Keating, Caroline; Taffe, John; Brereton, Avril; Einfeld, Stewart; Tonge, Bruce – American Journal on Intellectual and Developmental Disabilities, 2012
High rates of behavior and emotional problems have been consistently reported in children and adolescents with autism. Elevated rates of mental health problems have also been reported in adults with autism. Little is known, however, about the longitudinal development of behavior and emotional problems in autism. This study followed a cohort of…
Descriptors: Emotional Problems, Autism, Adolescents, Behavior Problems
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