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Direct linkMin Ah Kim; Jaehee Yi; Shinyeong Hwang; Jimin Sung; Seong Young Lee; Heejin Kim – Journal of Applied Research in Intellectual Disabilities, 2025
Background: This study sought a holistic understanding of lived experiences of individuals with a sibling who has intellectual and developmental disabilities using photovoice. Methods: Seven adult female siblings of individuals with intellectual and developmental disabilities in South Korea engaged in six weekly photovoice sessions, including an…
Descriptors: Foreign Countries, Females, Siblings, Sibling Relationship
Lee, Chung eun; Burke, Meghan M.; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2020
Background: Given the increasing lifespans of individuals with intellectual and developmental disabilities (IDD), siblings may fulfil multiple caregiving roles simultaneously for their ageing parents, their offspring, and their brother or sister with IDD. Yet, little is known about compound sibling caregivers. The purpose of this study was to…
Descriptors: Siblings, Intellectual Disability, Developmental Disabilities, Adults
Chung Eun Lee; Sehrish Shikarpurya – Journal of Applied Research in Intellectual Disabilities, 2025
Background and Aims: Siblings play a crucial role in shaping and guiding the experiences of their brother or sister with a disability across the lifespan. However, little is known about the positive outcomes of their roles and experiences as siblings. Understanding the positive outcomes challenges stereotypes and the stigma associated with…
Descriptors: Adults, Attitudes toward Disabilities, Intellectual Disability, Sibling Relationship
Brady, Anna M.; Burke, Meghan M.; Landon, Trenton; Oertle, Kathleen – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Siblings of adults with intellectual and developmental disabilities (IDD) often support their brothers and sisters through caregiving and guardianship. Methods: In this qualitative study, the knowledge and views of 10 adult siblings were explored. Results & Conclusions: The tripartite impact of limited knowledge of guardianship and…
Descriptors: Siblings, Sibling Relationship, Adults, Intellectual Disability
Lee, Chung eun; Burke, Meghan; Arnold, Catherine K.; Owen, Aleksa – Journal of Applied Research in Intellectual Disabilities, 2019
Background: As individuals with intellectual and developmental disabilities (IDD) grow older, siblings are likely to become caregivers for their brothers and sisters with IDD. Thus, it is important to identify the correlates of sibling caregiving to facilitate transitions to caregiving roles. Method: This study involved the secondary analysis of a…
Descriptors: Intellectual Disability, Developmental Disabilities, Adults, Siblings
Noonan, Hester; O' Donoghue, Isabelle; Wilson, Charlotte – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Supporting an adult with autism spectrum disorder (ASD) can be associated with family stress but also with personal growth and resilience. Research providing insight into how typically developing siblings make sense of their unique sibling relationships in adulthood remains limited. Method: Using interpretative phenomenological…
Descriptors: Autism, Pervasive Developmental Disorders, Family Relationship, Stress Variables
Carr, Janet – Journal of Applied Research in Intellectual Disabilities, 2005
Background: The families of a population sample of people with Down's syndrome (DS), and of their non-disabled controls, have been followed since early childhood, and the families have now been seen again as their sons and daughters reached age 30 and 35 years. Methods: A semi-structured interview schedule was used, including items from the…
Descriptors: Siblings, Sibling Relationship, Social Life, Quality of Life
