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Developmental Trajectories of Adaptive Behavior from Toddlerhood to Middle Childhood in Autism Spectrum Disorder
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Tomaszewski, Brianne; Hepburn, Susan; Blakeley-Smith, Audrey; Rogers, Sally J. – American Journal on Intellectual and Developmental Disabilities, 2020
Longitudinal growth modeling was utilized to examine adaptive behavior over eight years across the three time points (i.e., ages 2-10). Seventy-six parents completed the Vineland Adaptive Behavior Scales interviews of adaptive behavior. Child participants completed standardized developmental testing and an executive function task in toddlerhood…
Descriptors: Adjustment (to Environment), Autism, Pervasive Developmental Disorders, Behavior Problems
Multimorbidity and Polypharmacy Are Independently Associated with Mortality in Older People with Intellectual Disabilities: A 5-Year Follow-Up from the HA-ID Study
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Schoufour, Josje D.; Oppewal, Alyt; van der Maarl, Hanne J. K.; Hermans, Heidi; Evenhuis, Heleen M.; Hilgenkamp, Thessa I. M.; Festen, Dederieke A. – American Journal on Intellectual and Developmental Disabilities, 2018
We studied the association between multimorbidity, polypharmacy, and mortality in 1,050 older adults (50+) with intellectual disability (ID). Multimorbidity (presence of = 4 chronic health conditions) and polypharmacy (presence = 5 chronic medication prescriptions) were collected at baseline. Multimorbidity included a wide range of disorders,…
Descriptors: Correlation, Older Adults, Intellectual Disability, Chronic Illness
Attendance at Fragile X Specialty Clinics: Facilitators and Barriers
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Kidd, Sharon A.; Raspa, Melissa; Clark, Renée; Usrey-Roos, Holly; Wheeler, Anne C.; Liu, Jessica A.; Wylie, Amanda; Sherman, Stephanie L. – American Journal on Intellectual and Developmental Disabilities, 2017
The objectives were to describe the demographic characteristics of children with Fragile X syndrome (FXS) and to determine predictors of attendance at Fragile X (FX) clinics. Findings from the Community Support Network (CSN) and Our Fragile X World (OFXW) samples showed that children who attended FX Clinics were mostly male, high-school aged or…
Descriptors: Genetic Disorders, Predictor Variables, Individual Characteristics, Participation
A Longitudinal Follow-Up Study of Affect in Children and Adults with Cornelia de Lange Syndrome
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Nelson, Lisa; Moss, Jo; Oliver, Chris – American Journal on Intellectual and Developmental Disabilities, 2014
Studies of individuals with Cornelia de Lange syndrome (CdLS) have described changes in mood and behavior with age, although no empirical or longitudinal studies have been conducted. Caregivers of individuals with CdLS (N = 67), cri du chat syndrome (CdCS; N = 42), and Fragile X syndrome (FXS; N = 142) completed the Mood, Interest and Pleasure…
Descriptors: Longitudinal Studies, Followup Studies, Children, Adults
Residential Transitions among Adults with Intellectual Disability across 20 Years
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Woodman, Ashley C.; Mailick, Marsha R.; Anderson, Kristy A.; Esbensen, Anna J. – American Journal on Intellectual and Developmental Disabilities, 2014
The present study addresses critical gaps in the literature by examining residential transitions among 303 adults with intellectual disability (ID) over 10 years (Part 1) and 75 adults with Down syndrome over 20 years (Part 2). All adults lived at home at the start of the study, but many moved to a variety of settings. Several characteristics of…
Descriptors: Residential Programs, Adults, Mental Retardation, Down Syndrome
Predictors of Helping Profession Choice and Volunteerism among Siblings of Adults with Mild Intellectual Deficits
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Taylor, Julie Lounds; Shivers, Carolyn M. – American Journal on Intellectual and Developmental Disabilities, 2011
This study examined aspects of the sibling relationship that predicted helping profession choice and volunteerism in siblings of individuals with mild intellectual deficits at 3 points in adulthood: their mid-30s, early 50s, and mid-60s. The 393 respondents were from the Wisconsin Longitudinal Study, a prospective, longitudinal study following…
Descriptors: Siblings, Sibling Relationship, Predictor Variables, Volunteers