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Moshier, M. S.; York, T. P.; Silberg, J. L.; Elsea, S. H. – Journal of Intellectual Disability Research, 2012
Background: Smith-Magenis syndrome (SMS) is a neurodevelopmental disorder that affects approximately one out of 25 000 births worldwide. To date, no research has been conducted to investigate how having an individual with SMS in a family is a positive or negative influence on siblings. Methods: To investigate this question we conducted a study…
Descriptors: Sibling Relationship, Siblings, Mental Retardation, Developmental Disabilities
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Heller, Tamar; Kramer, John – Intellectual and Developmental Disabilities, 2009
This study examined factors influencing involvement of siblings of individuals with developmental disabilities in future planning and their expectation of future caregiving. The sample consisted of 139 adult siblings recruited from an online sibling list and a sibling conference. Results indicated that few families made plans or involved siblings…
Descriptors: Social Support Groups, Siblings, Printed Materials, Developmental Disabilities