ERIC Number: EJ1278144
Record Type: Journal
Publication Date: 2020-Dec
Pages: 12
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1934-9491
EISSN: N/A
Available Date: N/A
Quality of Life Outcome and Support Disparities among People with More Severe Impairments
Friedman, Carli
Intellectual and Developmental Disabilities, v58 n6 p513-524 Dec 2020
People with intellectual and developmental disabilities (IDD) with more severe impairments often face service disparities. The aim of this study was to explore not only disparities in quality of life outcomes for people with IDD with severe impairments, but also disparities in the supports they receive from disability service organizations. Our analysis of Personal Outcome Measures interviews from 1,300 people revealed people with severe impairments experienced quality of life disparities in most domains, attributed to the fact that they also received fewer organizational supports than people with less severe impairments. By paying attention to person-centered outcomes, including these disparities, organizations' roles can shift from just providing services to supporting people to achieve the outcomes that are truly important to them.
Descriptors: Quality of Life, Severe Disabilities, Intellectual Disability, Developmental Disabilities, Community Programs, Agency Role
American Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: https://meridian.allenpress.com/aaidd
Publication Type: Journal Articles; Reports - Research
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A