ERIC Number: EJ1388191
Record Type: Journal
Publication Date: 2023-Sep
Pages: 11
Abstractor: As Provided
ISBN: N/A
ISSN: ISSN-1360-2322
EISSN: EISSN-1468-3148
Available Date: N/A
Who Cares? A Scoping Review about the Experiences of Parental Caregivers of Autistic Adults
Ljungberg, Malin; Schön, Ulla-Karin
Journal of Applied Research in Intellectual Disabilities, v36 n5 p929-939 Sep 2023
Background: The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often a lifelong commitment. Method: This scoping review maps, synthesises and identifies gaps in previous research as regards the experiences of parental caregivers of adult autistic children. The review was based on Arksey and Malley's framework and six databases were searched. Results: The results show how the research has focused on the well-being and consequences of daily caregiving for an American middle-class mother who co-resides with an adult son. Conclusion: To enhance knowledge about formal services and service needs, more research is necessary on different welfare regimes and social contexts.
Descriptors: Autism Spectrum Disorders, Parents, Aging (Individuals), Well Being, Adults, Children, Experience
Wiley. Available from: John Wiley & Sons, Inc. 111 River Street, Hoboken, NJ 07030. Tel: 800-835-6770; e-mail: cs-journals@wiley.com; Web site: https://www.wiley.com/en-us
Publication Type: Journal Articles; Information Analyses
Education Level: N/A
Audience: N/A
Language: English
Sponsor: N/A
Authoring Institution: N/A
Grant or Contract Numbers: N/A
Author Affiliations: N/A