Background: This study aims to introduce direct support staff (DSS) working with adults with intellectual disabilities to the Holistic Support Model (HSM) and assess its influence on their perceptions of their professional role. The HSM, grounded in humanistic principles, guides the support process, prioritising autonomy and meaningful living.…

Background: In this study, agents working in positions of authority within health sector organisations shared their perspectives concerning both the involvement of experts by experience with intellectual disabilities within their own organisations and their recommendations as to how best to involve experts by experience in policy and practice.…

Background: Fetal alcohol spectrum disorder (FASD) is a highly prevalent neurodevelopmental disability caused by prenatal alcohol exposure (PAE). Healthcare professionals (HCP) are key in prevention, diagnosis, and supporting individuals with FASD. This study explored the FASD knowledge, attitudes, and practices among HCP in Aotearoa, New Zealand…

Background: The attitudes, perceptions and inherent biases of healthcare professionals (HCPs) have the potential to influence and inform health outcomes of people with intellectual disability. This review aimed to identify what educational interventions have been conducted to improve the attitude, knowledge, and confidence of HCPs in caring for…

Purpose: To examine current practices and recommendations regarding clinical supervision from the perspective of Positive Behaviour Support (PBS) practitioners in Australia. Methods: A qualitative study design consisting of semi-structured interviews with 14 PBS practitioners. Results: Positive supervision experiences revealed the importance of…

Background: The aim of this study was to investigate the demographic, clinical characteristics, and service systems of patients with autism spectrum disorder (ASD) and/or intellectual disability presenting to a large paediatric hospital emergency department (ED) with behaviours of concern (BOC) over a two-year period. Method: Retrospective audit…

Background: Since COVID-19, remote consultation (by telephone and video) has become widespread. This study investigated the experience of using remote consultation in Specialist Intellectual Disability Community services. Method: A total of 126 health staff working across eight Specialist Intellectual Disability Community teams in the NHS Health…

Background: Direct support professionals' (DSPs') attitudes toward nutrition are important for supporting a healthy lifestyle of persons with intellectual disabilities. However, there are no instruments to measure it. The aim of this study was to compose a questionnaire and determine its internal validity. Method: The previously validated Health…

Background: Research suggests that women with intellectual and developmental disabilities are at increased risk for adverse pregnancy outcomes. Further, they report unmet perinatal care needs. This qualitative study examined clinician perspectives on barriers to providing perinatal care to women with intellectual and developmental disabilities.…

Background: Support from staff plays an important role in quality of life for people with intellectual disability. This study focuses on service users' views of Active Support as good support and whether Active Support increases the quality of everyday support in group homes. Method: Nine service users were interviewed at baseline and at follow-up…

Background: It is highly recommended that professionals promote caregivers' capacity-building to use intervention strategies to support children with developmental delays or disabilities in natural learning environments, particularly in the earliest years of life. There is a gap, however, in understanding the extent to which these professionals…

Background: People with intellectual disability (ID) have higher risk of mental morbidity and specialised training may be required in their management. We explored the training needs and knowledge as well as perceptions of care of such patients among residents and non-residents working in psychiatry. Method: The study was conducted as an anonymous…

Background: The ability of women with an intellectual disability (ID) to fulfill their role as mothers is also influenced by medical personnel. This exploratory research study's objective was to investigate medical personnel's knowledge, attitudes, and experiences with regard to mothers with ID. Method: The survey was completed by 175 medical…

Background: Studies incorporating staff-rated or observational measures of practice leadership have shown that where practice leadership is stronger, active support is better implemented. The study aim was to compare measures of practice leadership used in previous research to determine the extent of their correspondence. Method: A subset of data…

Background: The COVID-19 pandemic significantly affected families who have children with intellectual disabilities (ID). Our aim was to explore the pandemic's impact on Dutch migrant families who have children with ID, by interviewing these families' support workers. Method: A descriptive qualitative methodology was employed, which resulted in…