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"What if I'm No Longer Around?": An Evaluative Description of a Structured Group Conversation about the Care for Persons with Profound Intellectual and Multiple Disabilities When They Outlive Their Parents
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Kasper Kruithof; Erik Olsman; Dick Willems; Karin Volkers; Bas Kleijwegt; Appolonia Nieuwenhuijse – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Persons with profound intellectual and multiple disabilities (PIMD) increasingly outlive their parents. Therefore, we designed a structured group conversation to support family members and care professionals in exploring together how parental roles may be taken over by others when necessary. Method: We conducted a mixed methods study,…
Descriptors: Severe Intellectual Disability, Multiple Disabilities, Family Needs, Parent Role
A Deviation Too Many? Healthcare Professionals' Knowledge and Attitudes Concerning Patients with Intellectual Disability Disrupting Norms Regarding Sexual Orientation and/or Gender Identity
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Sommarö, Susanna; Andersson, Agneta; Skagerström, Janna – Journal of Applied Research in Intellectual Disabilities, 2020
Background: People with intellectual disability (ID) have few role models for sexual expression and behaviour, and those who identify as LGBTQ experience dual marginalization. The aim of this study is to explore knowledge and attitudes concerning patients with both ID and norm-breaking sexuality and/or gender identity among healthcare…
Descriptors: Intellectual Disability, LGBTQ People, Knowledge Level, Attitudes
"Put Bluntly, They Are Targeted by the Worst Creeps Society Has to Offer": Police and Professionals' Views and Actions Relating to Domestic Violence and Women with Intellectual Disabilities
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McCarthy, Michelle; Bates, Claire; Triantafyllopoulou, Paraskevi; Hunt, Siobhan; Milne Skillman, Karen – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Little is known about the attitudes and practices of key personnel towards the domestic violence experienced by women with intellectual disabilities. Method: An online survey was conducted of Police officers and health and social care professionals. A total of 717 Police and other professionals across a wide variety of UK sites…
Descriptors: Family Violence, Females, Intellectual Disability, Policy
Challenging Behaviours: Views and Preferences of People with Intellectual Disabilities
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Wolkorte, Ria; van Houwelingen, Ingrid; Kroezen, Marieke – Journal of Applied Research in Intellectual Disabilities, 2019
Background: Challenging behaviour is a common problem among people with ID and in services for people with ID. This paper aims to provide an overview of the views and preferences of people with ID on challenging behaviour. Method: Semi-structured interviews were conducted with thirteen adults with mild to moderate ID and seven proxies (family or…
Descriptors: Behavior Problems, Preferences, Attitudes, Mild Intellectual Disability