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Rozanna Lilley; Hannah Rapaport; Rebecca Poulsen; Michael Yudell; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
There has been intense debate within the autistic and autism communities about the use of autism biobanks -- repositories containing biological and phenotypic materials -- and of genomic autism research more broadly. Here, we sought to understand the views and experiences of those contributing to one specific biobank, the Australian Autism…
Descriptors: Autism Spectrum Disorders, Research, Genetics, Databases
Hannah Rapaport; Hayley Clapham; Jon Adams; Wenn Lawson; Kaska Porayska-Pomsta; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
'Autistic inertia' is part of the Autistic community's everyday lexicon, yet the condition has received scant attention in the academic literature. The little attention it has received has focused on the disabling impact of 'inertial rest' (difficulty initiating tasks), with minimal exploration of the potential benefits of inertial motion…
Descriptors: Adults, Autism Spectrum Disorders, Motion, Experience
Ru Ying Cai; Gabrielle Hall; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
Many autistic adults are likely to experience poor financial wellbeing and hardship due to unemployment and under-employment. Research in the general population demonstrates that subjective financial wellbeing--how people perceive their financial situation--influences quality of life. There is no research, however, examining the subjective…
Descriptors: Adults, Autism Spectrum Disorders, Well Being, Financial Problems
Lorcan Kenny; Anna Remington; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
There is a long tradition of research into autistic people's executive function skills. Yet, despite decades of research on EF in autism, the existing literature remains contradictory and 'confusing', with a large -- and unresolved -- discrepancy between small-to-moderate effect sizes demonstrated on laboratory-based EF tasks and large effect…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Adolescents, Mothers
Nathan Caruana; Patrick Nalepka; Glicyr A. Perez; Christine Inkley; Courtney Munro; Hannah Rapaport; Simon Brett; David M. Kaplan; Michael J. Richardson; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
Autistic people often experience difficulties navigating face-to-face social interactions. Historically, the empirical literature has characterised these difficulties as cognitive 'deficits' in social information processing. However, the empirical basis for such claims is lacking, with most studies failing to capture the complexity of social…
Descriptors: Autism Spectrum Disorders, Attention, Nonverbal Communication, Eye Movements
Elizabeth Pellicano; Gabrielle Hall; Ru Ying Cai – Autism: The International Journal of Research and Practice, 2024
Financial wellbeing is an important component of people's overall wellbeing, reflecting the capacity to live a comfortable and fulfilling life. Yet virtually nothing is known about this topic for autistic people. This study addressed this gap using a two-phase sequential mixed-methods design. Here, we report on findings from the Phase 2…
Descriptors: Autism Spectrum Disorders, Adults, Financial Literacy, Well Being
Aspasia Stacey Rabba; Jodie Smith; Gabrielle Hall; Vanessa Alexander; Kate Batty; Poulomee Datta; Emma Goodall; Melanie Heyworth; Siobhan Lamb; Wenn Lawson; Rozanna Lilley; Katy Reid; Najeeba Syeda; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Successful partnerships between families and schools can substantially improve children's success in and out of school. Yet parents of autistic children often report considerable challenges with their children's education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences…
Descriptors: Autism Spectrum Disorders, Mothers, Parent Attitudes, Parent School Relationship
Jade Davies; Rachel Melinek; Adam Livesey; Estelle Killick; Evelyn Sam; Anna Melissa Romualdez; Elizabeth Pellicano; Anna Remington – Autism: The International Journal of Research and Practice, 2025
Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their…
Descriptors: Foreign Countries, Adults, Autism Spectrum Disorders, Job Satisfaction
Jade Davies; Anna Melissa Romualdez; Elizabeth Pellicano; Anna Remington – Autism: The International Journal of Research and Practice, 2024
Many autistic people are unemployed. Of those who are employed, many are in roles that do not reflect their skills, qualifications and/or capabilities, and little is known about how autistic people progress throughout their careers. This study aimed to review and synthesise the existing evidence about career progression for autistic people. In…
Descriptors: Autism Spectrum Disorders, Employment Opportunities, Equal Opportunities (Jobs), Promotion (Occupational)
Diana Weiting Tan; Marion Rabuka; Tori Haar; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2024
In recent years, the number of autistic people entering university has increased in Australia and worldwide. While an encouraging trend, autistic students' completion rates remain much lower than non-autistic students in Australia. Perhaps unsurprisingly, numerous studies investigating autistic people's experiences at universities have identified…
Descriptors: Autism Spectrum Disorders, Student Experience, Foreign Countries, College Students
Amanda Timmerman; Vasiliki Totsika; Valerie Lye; Laura Crane; Audrey Linden; Elizabeth Pellicano – Autism: The International Journal of Research and Practice, 2025
Autistic people are more likely to have co-occurring mental health conditions compared to the general population, and mental health interventions have been identified as a top research priority by autistic people and the wider autism community. Autistic adults have also communicated that quality of life is the outcome that matters most to them in…
Descriptors: Adults, Autism Spectrum Disorders, Quality of Life, Randomized Controlled Trials
Elisabeth Øverland; Åshild Lappegard Hauge; Stian Orm; Merete Glenne Øie; Erik Winther Skogli; Elizabeth Pellicano; Per Normann Andersen – Autism: The International Journal of Research and Practice, 2024
Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives.…
Descriptors: Autism Spectrum Disorders, Quality of Life, Young Adults, Interpersonal Relationship
Clare Truman; Laura Crane; Patricia Howlin; Elizabeth Pellicano – International Journal of Inclusive Education, 2024
Extreme demand avoidance (EDA) is increasingly described as part of the autism spectrum and is sometimes diagnosed as Pathological Demand Avoidance (PDA). Yet little is known, about the educational experiences of children with and without EDA behaviours. Using an online survey collecting both quantitative and qualitative data, 211 parents reported…
Descriptors: Autism Spectrum Disorders, Behavior Problems, Incidence, Students with Disabilities
Laura Gray; Vivian Hill; Elizabeth Pellicano – Autism & Developmental Language Impairments, 2023
Background and aims: Children and young people on the autism spectrum frequently report a range of negative educational experiences and face disproportionally high rates of school non-attendance, including school avoidance and permanent exclusion, which can have a significant impact on their well-being as well as educational and broader life…
Descriptors: Foreign Countries, Autism Spectrum Disorders, Student Experience, Attendance
Jodie Smith; Aspasia Stacey Rabba; Poulomee Datta; Emma Dresens; Rena Wang; Lin Cong; Ngoc Dang; Gabrielle Hall; Melanie Heyworth; Wenn Lawson; Patricia Lee; Rozanna Lilley; Emily Ma; Hau T. T. Nguyen; Kim-Van Nguyen; Phuc Nguyen; Chong Tze Yeow; Elizabeth Pellicano – Autism & Developmental Language Impairments, 2023
Background and aims: Participatory research involves academic partners working together with the community that is affected by research to make decisions about that research. Such approaches often result in research that is more respectful of, and responsive to, community preferences -- and is vital in the context of autism research with…
Descriptors: Autism Spectrum Disorders, Parents, Parent Attitudes, Children
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