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An Exploratory Study on the Suicidal Behaviours of People with Intellectual Disability or Autism: Examining Their Understanding of Suicide and Death, and the Perceptions of Their Direct Support Staff
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Sarrah Thomas Persechino; Diane Morin; Cécile Bardon – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Individuals with intellectual disability or autism exhibit suicidal behaviours at an equal or greater rate than the general population, yet little is known about associated risk factors. This study explores suicidality in these populations, focusing on their understanding of suicide and death and perceptions of their direct support…
Descriptors: Suicide, Intellectual Disability, Autism Spectrum Disorders, Death
'It Feels Very Weird and Normal at the Same Time': Sibling Perceptions of Their Relationships with an Autistic Brother or Sister with Complex Care Needs
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Louise Rixon; Richard P. Hastings; Hanna Kovshoff – Journal of Applied Research in Intellectual Disabilities, 2025
Background: The impact of having a disabled brother or sister on siblings' psychological well-being and sibling relationships has been the subject of several research studies. However, research which focuses on the relationship between siblings and their autistic brother or sister with an intellectual disability and complex care needs is rare. We…
Descriptors: Autism Spectrum Disorders, Sibling Relationship, Children, Early Adolescents
Childhood and Adulthood Predictors of Community Participation by Autistic Adults with and without Intellectual Disability
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Lauren A. Cameron; Bruce J. Tonge; Patricia Howlin; Stewart L. Einfeld; Roger J. Stancliffe; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Few studies have explored community participation for autistic adults, with or without intellectual disability. This study aims to investigate how autistic adults participate in the community, and the childhood and adulthood factors that predict community participation in adulthood. Method: Eighty-four autistic adults (mean age 34…
Descriptors: Adults, Autism Spectrum Disorders, Intellectual Disability, Predictor Variables
Who Cares? A Scoping Review about the Experiences of Parental Caregivers of Autistic Adults
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Ljungberg, Malin; Schön, Ulla-Karin – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The autistic population is growing and ageing and this also applies to the parents. Despite this, research about parental experiences is still relatively scarce. Even though studies show, compared with adults with other disabilities, parents of autistic adolescents and adults report a decrease in well-being and that caregiving is often…
Descriptors: Autism Spectrum Disorders, Parents, Aging (Individuals), Well Being
Interventions Addressing Challenging Behaviours in Arab Children and Adults with Intellectual Disabilities and/or Autism: A Systematic Review
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Shahad Alarifi; Louise Denne; Nouf Alatifi; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Arabs with intellectual disabilities and/or autism may exhibit challenging behaviour that affects them and their caregivers. Early, appropriate intervention may reduce these effects. This review synthesised and critically appraised challenging behaviour intervention research for this population. Methods: All published empirical…
Descriptors: Arabs, Intellectual Disability, Autism Spectrum Disorders, Behavior Problems
The Identification of Exceptional Skills in School-Age Autistic Children: Prevalence, Misconceptions and the Alignment of Informant Perspectives
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Clark, Trevor; Jung, Jae Yup; Roberts, Jacqueline; Robinson, Ainslie; Howlin, Patricia – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Although autism is commonly described in terms of deficits, many autistic individuals have been found to demonstrate exceptional skills. The shift to a strengths-based approach in the field of autism necessitates increased understanding of these skills. Aims: This study examined (1) rates of exceptional skills in autistic school-age…
Descriptors: Autism Spectrum Disorders, Gifted, Ability, Severity (of Disability)
Perceptual Experiences of Autistic People with an Intellectual Disability and People with Williams Syndrome: A Reflexive Thematic Analysis
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Freya Elise; Brian Irvine; Jana Brinkert; Charlie Hamilton; Emily K. Farran; Elizabeth Milne; Gaia Scerif; Anna Remington – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Autistic people without intellectual disabilities have increased perceptual capacity: they can process more information at any given time compared to non-autistic people. We examined whether increased perceptual capacity is evident across the autistic spectrum (i.e. for autistic people with intellectual disabilities) and whether it is…
Descriptors: Autism Spectrum Disorders, Genetic Disorders, Adults, Intellectual Disability
Understanding Experiences of 'Gig Buddies': A Befriending Scheme for People with Intellectual Disabilities
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Fiona Brand; Katrina Scior; Alana Loewenberger – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Research into befriending for people with intellectual disabilities is limited. This study aimed to explore the impact, mechanisms of change, and limitations of a befriending scheme for adults with intellectual disabilities and/or autism. Methods: Participants were recruited using convenience sampling. Thirteen individuals with…
Descriptors: Friendship, Intellectual Disability, Autism Spectrum Disorders, Adults
Behavioural Interventions to Treat Anxiety in Adults with Autism and Moderate to Severe Intellectual Disabilities: The BEAMS-ID Feasibility Study
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Peter E. Langdon; Magdalena M. Apanasionok; Emma Scripps; Alastair Barrowcliff; Asit Biswas; Karen Bunning; Cheryl Burbidge; Katherine Byron-Daniel; Alex Cookson; Sarah Croom; Malwina Filipczuk; David Gillespie; Richard P. Hastings; Andrew Jahoda; Rachel McNamara; Lawrence Patterson; Dheeraj Rai; Robyn Steward; Kylie M. Gray – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The aim of this feasibility study was to adapt and model a behavioural intervention for anxiety with autistic adults with moderate to severe intellectual disabilities. Method: Twenty-eight autistic adults with moderate or severe intellectual disabilities, 37 carers, and 40 therapists took part in this single-group non-randomised…
Descriptors: Autism Spectrum Disorders, Adults, Severe Intellectual Disability, Moderate Intellectual Disability
Australian Registered Nurse's' Awareness of Key Issues, Ambivalence and Education Related to the Health of People with Intellectual Disability and/or Autism
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A. Cashin; A. Pracilio; T. Buckley; K. Griffin; J. Trollor; N. J. Wilson – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Health outcomes of people with Autism Spectrum Disorder and/or Intellectual Disability are poor. Yet there is a paucity of nurse education and preparation to care for people with Autism Spectrum Disorder and Intellectual Disability. Method: A cross sectional survey of Australian Registered Nurses related to their educational…
Descriptors: Autism Spectrum Disorders, Nurses, Intellectual Disability, Nursing Education
Schizophrenia in Autistic People with Intellectual Disabilities: Symptom Manifestations and Identification
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Bakken, Trine Lise; Kildahl, Arvid Nikolai; Ludvigsen, Linn Beate; Bjørgen, Tale Gjertine; Dalhaug, Caroline; Hellerud, Jane Margrete Askeland; Hove, Oddbjørn; Solheim-Inderberg, Ann Magritt; Karlsen, Kjersti; Helverschou, Sissel Berge – Journal of Applied Research in Intellectual Disabilities, 2023
Background: The assessment of schizophrenia in autistic people with intellectual disabilities is challenging. This study aimed to explore the identification of schizophrenia in this population. Methods: Using data from a clinical multi-centre study, reported symptoms in 26 autistic individuals with intellectual disabilities diagnosed with…
Descriptors: Schizophrenia, Autism Spectrum Disorders, Intellectual Disability, Mental Disorders
Who is at Risk? Adults with Intellectual Disability at Risk of Admission to Mental Health Inpatient Care
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Marianne Durand; Rajan Nathan; Sophie Holt; Sharleen Nall-Evans; Ceri Woodrow – Journal of Applied Research in Intellectual Disabilities, 2024
Background: NHS England's "Transforming Care" agenda aims to reduce the number of adults with intellectual disabilities and autistic adults in mental health hospitals. The aim was to understand the demographic and clinical characteristics of those most at risk of admission. Method: A cohort, retrospective study of adults using community…
Descriptors: Intellectual Disability, Adults, Mental Health, Health Services
Programme Recipient and Facilitator Experiences of Positive Family Connections for Families of Children with Intellectual Disabilities and/or Who Are Autistic
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Daniel Sutherland; Samantha Flynn; Joanna Griffin; Richard P. Hastings – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Family members of children with developmental disabilities on average report poorer family functioning and mental health. Positive Family Connections is a co-produced, positively-oriented, family-systems support programme for families of children with developmental disabilities aged 8-13. We investigated experiences of Positive Family…
Descriptors: Developmental Disabilities, Children, Early Adolescents, Family Environment
'Different Things at Different Times': Wellbeing Strategies and Processes Identified by Parents of Children Who Have an Intellectual Disability or Who Are Autistic, or Both
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Griffin, Joanna; Gore, Nick – Journal of Applied Research in Intellectual Disabilities, 2023
Background: Most parents of children with an intellectual disability or who are autistic identify positives in their family life and their own wellbeing, in addition to reported mental health challenges. Several models and interventions have been developed in relation to parent carer wellbeing. Few studies have asked parent carers how they support…
Descriptors: Parents, Children, Intellectual Disability, Autism Spectrum Disorders
The Impact of COVID-19 Pandemic on Jobs for People with Intellectual Disabilities and Autism in Wales
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Elisa Vigna; Andrea Meek; Stephen Beyer – Journal of Applied Research in Intellectual Disabilities, 2024
Background: The study reports the impact of the COVID-19 pandemic and lockdowns on jobs for people with intellectual disabilities and autism. The study focuses on the impact of the first and the fire-break lockdowns and the actions taken to support young people. Method: Data was collected from the cohort of young people currently working in Wales,…
Descriptors: Foreign Countries, Youth, Autism Spectrum Disorders, Intellectual Disability
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