Background: People with intellectual disabilities are rarely involved in end-of-life decisions. This study investigated and further developed approaches and resources to enable inclusive end-of-life care planning. Methods: A multi-centre, multi-method four-phase study, involving 195 researchers, participants, advisors and co-design members,…

Background: People with an intellectual disability prefer more choice with employment options and more community facing roles rather than just traditional supported employment roles. However, data reveal that transition rates from supported to open employment in Australia remain very low and these findings are also found internationally. Method:…

Background: People with intellectual disabilities are rarely involved in research on quality of life. The study sought to answer the question: what do people with intellectual disabilities believe improves or hinders their quality of life? Method: Using an inclusive, accessible research design, 18 participants met in small groups to answer the…

Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions. Method: This scoping review…

Background: People with intellectual disability who require cancer services face several barriers and inequities, including delayed or unrecognised cancer diagnosis and inadequate attention paid to their specific concerns, needs and preferences about care. Methods: In this case report, we present a case report of a 33-year-old male with severe…

Background: Cognitive reserve (CR) has not been studied in people with Intellectual Developmental Disability, a population with a high incidence of dementia. Commonly adopted CR proxies should be adapted to reflect more specifically the experiences of people with Intellectual Developmental Disability. Method: This scoping review intended to…

Inclusive research emphasizes the importance of researchers with intellectual and developmental disabilities playing active roles in all phases of research, including research and information dissemination. This article explores how contemporary literature and practical application of inclusive practices in the academic setting of a University…

Background: People with intellectual disabilities in Flanders (Belgium) often rely on their direct support professionals (DSPs) to engage in meaningful activities. While structured approaches exist to guide engagement, limited insight is available into the specific support DSPs need in practice. Methods: A descriptive qualitative study was…

The 2014 U.S. Centers for Medicare and Medicaid Services "Settings Rule," which took effect in 2023, restricts Home and Community Based Services funding for adults with intellectual disabilities to small integrated settings and person-centered supports. The Settings Rule responds to the fact that community services, mandated by the…

Background: People with intellectual disabilities have equal rights to explore their sexuality and access sexual and reproductive healthcare, yet little is known about their needs and wants when accessing health education. The current study sought to learn about the sexual health interests, attitudes, and educational needs of Special Olympics (SO)…

Background: People with intellectual disabilities commonly experience multiple barriers to 'going out'. Aims: This paper explores what barriers prevented people from going out, and if the extent and nature of going out changed over time for people with intellectual disabilities as the COVID-19 pandemic progressed. Methods: Data are drawn from a…

Meaningful progress in improving employment outcomes for people with intellectual and developmental disabilities continues to be elusive, despite 40 years of investment in research, policy, and supports. This article reviews the current state of employment for individuals with intellectual and developmental disabilities (IDD) and describes policy,…

Research shows that students with mild to moderate intellectual disabilities (MMID) transition to post-secondary educational environments and the real-world experience more barriers than their typical peers (Banks, 2014). However, limited research includes the voices of students with MMID and their parents/guardians as they describe their…

Background: Assistive technology (AT) has been successfully used by researchers and practitioners to increase task completion and independence in work and home environments for individuals with intellectual and developmental disabilities. While prior research has shown increased outcomes of incorporating AT into daily tasks, research has also…

Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…