It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of…

Despite an abundance of research on interventions to improve social skills of young children with intellectual disabilities (ID), there is limited research on interventions aimed at improving social skills of adults with ID. The purpose of this single-subject study was to evaluate the outcomes of the Behavioral Opportunities for Social Skills…

Children with a significant cognitive and motor developmental delay (SDD) are vulnerable for the development of (future) behavioral and mental health problems. This paper aims to assess the social-emotional functioning of these children, both globally and in various domains. Semi-structured interviews with one or more primary caregiver(s) of 45…

This international, mixed-methods study revealed parents' perceptions (N = 82) of the effectiveness of classroom accommodations for students diagnosed with Pediatric Acute-onset Neuropsychiatric Syndrome (PANS). PANS can transform a child's function suddenly and dramatically. These students demonstrate abrupt deficits in previously intact school…

This secondary analysis examined the impact of respondent-level factors on scores on the "Supports Intensity Scale--Children's Version" (SIS-C) for children and youth with intellectual disability to determine if there were any significant differences in the SIS-C scores by different respondent pairs when considering children's age,…

Background: There is relatively little published data that report the experiences and views of family carers of people with intellectual disabilities who display challenging behaviour who are prescribed psychotropic medication. Materials and methods: An online structured questionnaire was created by the Challenging Behaviour Foundation, a UK…

Paraprofessionals report spending a substantial amount of time addressing challenging behavior in a range of school environments, yet identify behavioral intervention as a high-priority training area. The purpose of this meta-analysis was to systematically review and summarize single-case intervention studies involving paraprofessional-delivered…

Objectives: To understand the views of qualified medical practitioners regarding "reasonable adjustments" and the quality of the care and treatment provided to adults with intellectual disabilities when admitted to acute hospitals as inpatients. Methods: Semi-structured interviews took place with 14 medical practitioners, seven from each…

Individuals with Autism Spectrum Disorder (ASD) and/or intellectual and developmental disabilities (DD) often struggle with behavior management and emotion-regulation (ER). In this manuscript, we describe the results of a chart review examining a group treatment program designed to address ER deficits in youth with ASD and/or DD. The intensive…

Background: Adults with intellectual disabilities (ID) commonly live in specialised residential settings. Data collected from these adults are often nested. The aim of this study is to examine the impact of this data structure. Method: Referent caregivers completed the Reiss Screen for Maladaptive Behaviour for each of the 571 adults with ID who…

Introduction: Despite the high prevalence of mental health issues for young people with intellectual disability (ID), young people with ID can struggle to receive the mental health support they need. The aim of this study was to examine a new community-based, clinical mental health service for young people (12-25 years) with co-occurring ID and…

Students with intellectual and developmental disabilities (IDD) require intensive supports, including those that target behavior, to make progress on literacy goals. In this study, we investigated whether computer-assisted instruction (CAI) may be one effective method to decrease challenging behavior and increase academic engagement. Participants…

Positive behaviour support (PBS) has become well established as an intervention approach for individuals with intellectual disability and challenging behaviour. However, what remains unexplored is the relationship between PBS and the medical and social models of disability, which historically are the dominant conceptual frameworks put forward in…

Background: A cohort of 11 patients with an intellectual disability and a psychiatric diagnosis present severe behavioural disorders in psychiatric hospital of Quebec in 2009. Control-measure use for this clientele has now been reduced. How do management personnel, families and care teams explain the changes? What clinical interventions did…

Individuals with intellectual disability (ID) experience high rates of psychiatric disorders, and coinciding high rates of emergency service use. The current study seeks to explore strategies to improve outcomes by reporting a one-year prospective investigation among 41 individuals (Mean age = 32 years, SD = 12) with ID and mental health needs who…