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Thessa Hilgenkamp; Amy Bodde; Sarah Mann; Brain Helsel; Joseph Sherman; Jessica Danon; Lauren Ptomey – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Online exercise interventions can improve access to tailored programmes for individuals with intellectual disabilities (including Down syndrome). This paper aimed to describe best practices and provide recommendations for online physical activity or exercise programmes for this population. Method: Two research teams with extensive…
Descriptors: Intervention, Intellectual Disability, Down Syndrome, Exercise
Kady F. Sternberg; Joanna G. Cloutier; Kaitlyn Ahlers; Christina Moore; Kathleen A. Koth; Takahiro Soda; Narpinder Kaur Malhi; Shikha Verma; Lisa C. Yeh; Jennifer L. McLaren – Journal of Applied Research in Intellectual Disabilities, 2025
Background: Little research has been conducted solely exploring gender diversity in people with intellectual disabilities. This review explores the literature, discusses the prevalence, and identifies clinical best practices for people at the intersection of gender diversity and intellectual disability. Method: A scoping review was conducted…
Descriptors: Intellectual Disability, Incidence, LGBTQ People, Diversity
Maeve Goodall; Kate Irving; Mary Nevin – Journal of Applied Research in Intellectual Disabilities, 2024
Background: Pain recognition and assessment in individuals with profound intellectual disabilities are challenging. Exploring effective methods of addressing this is essential. This study aims to discover current nursing practice in this area of care as the first of a four-phased appreciative inquiry study, to inform further research and practice.…
Descriptors: Pain, Severe Intellectual Disability, Nurses, Role
Hughes-McCormack, Laura; Greenlaw, Nicola; McSkimming, Paula; McCowan, Colin; Ross, Kevin; Allan, Linda; Henderson, Angela; Melville, Craig; Morrison, Jill; Cooper, Sally-Ann – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Quality of primary healthcare impacts on health outcomes. This study aimed to quantify trends in good practice and the healthcare inequalities gap. Method: Indicators of best-practice management of long-term conditions and health promotion were extracted from primary healthcare records on 721 adults with intellectual disabilities in…
Descriptors: Primary Health Care, Intellectual Disability, Adults, Best Practices
Hussain, Rafat; Parmenter, Trevor; Wark, Stuart; Janicki, Matthew; Knox, Marie; Hayhoe, Nicola – Journal of Applied Research in Intellectual Disabilities, 2021
Background: Although a 'person-centred focus' is a legislated objective for both aged-care and disability services sectors in Australia, evidence suggests limited translation into systems and practices due to entrenched silos. This paper proposes a Best Practice Framework to mitigate these silos. Methods: Mixed-methods research comprising key…
Descriptors: Foreign Countries, Older Adults, Health Services, Disabilities
Smith, Megan V. A.; Adams, Danielle; Carr, Claudia; Mengoni, Silvana E. – Journal of Applied Research in Intellectual Disabilities, 2019
Background: People with intellectual disabilities are more likely to experience poor health than the general population and are frequently prescribed multiple medications. Therefore, it is important that people with intellectual disabilities understand their medication and potential adverse effects. Method: A scoping review explored people with…
Descriptors: Intellectual Disability, Drug Therapy, Access to Information, Best Practices
Ouellette-Kuntz, Hélène; Martin, Lynn; Burke, Eilish; McCallion, Philip; McCarron, Mary; McGlinchey, Eimear; Sandberg, Magnus; Schoufour, Josje; Shooshtari, Shahin; Temple, Bev – Journal of Applied Research in Intellectual Disabilities, 2019
Background: While higher rates and earlier onset of frailty have been reported among adults with intellectual and developmental disabilities (IDD), research on how best to support these individuals is lacking. Method: An international consultation relied on three consensus building methods--the Nominal Group Technique, an NIH consensus conference…
Descriptors: Intellectual Disability, Best Practices, Aging (Individuals), Safety
Coates, Bethany; Jones, Tim – Journal of Applied Research in Intellectual Disabilities, 2020
Background: This paper explores the experience of staff employed within forensic disability across Victoria in an attempt to better understand service needs in this field. The complex needs of individuals with disabilities involved in the criminal justice system or presenting with offence-related behaviours suggest that there is a requirement to…
Descriptors: Foreign Countries, Crime, Disabilities, Employees
Di Lorito, Claudio; Bosco, Alessandro; Birt, Linda; Hassiotis, Angela – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Co-research with people with intellectual disability is a distinct form of patient and public involvement (PPI). This systematic review summarize published studies and protocols to report on the process of co-research in social and healthcare research. Method: Relevant studies were identified using electronic searches on ASSIA,…
Descriptors: Participatory Research, Inclusion, Adults, Intellectual Disability
Kocman, Andreas; Weber, Germain – Journal of Applied Research in Intellectual Disabilities, 2018
Background: The current body of research on job satisfaction of people with intellectual disability is based on highly diverse measures, originating both from the general population and people with intellectual disability. This heterogeneity represents a possible confounder. Best-practice approaches for the assessment of job satisfaction are hence…
Descriptors: Intellectual Disability, Job Satisfaction, Severe Intellectual Disability, Best Practices
Weise, Janelle; Fisher, Karen R.; Trollor, Julian N. – Journal of Applied Research in Intellectual Disabilities, 2018
Background: Generalist mental health professionals are inadequately equipped to meet the rights of people with intellectual disability. A better understanding of the attributes of effective professionals may assist in the development of workforce capacity in this area. Methods: Twenty-eight family/support persons of people with intellectual…
Descriptors: Mental Health Workers, Allied Health Personnel, Intellectual Disability, Focus Groups
Kaehne, Axel – Journal of Applied Research in Intellectual Disabilities, 2016
Background: The study reports the findings of an evaluation of Project SEARCH UK. The programme develops internships for young people with intellectual disabilities who are about to leave school or college. The aim of the evaluation was to investigate at what rate Project SEARCH provided employment opportunities to participants. Methods: The…
Descriptors: Program Evaluation, Models, Best Practices, Foreign Countries
Duc, Jacqueline K.; Herbert, Anthony Robert; Heussler, Helen S. – Journal of Applied Research in Intellectual Disabilities, 2017
Background: Paediatric palliative care is a nuanced area of practice with additional complexities in the context of intellectual disability. There is currently minimal research to guide clinicians working in this challenging area of care. Method: This study describes the complex care of children with life-limiting conditions and intellectual…
Descriptors: Child Health, Children, Intellectual Disability, Chronic Illness
Larson, James R., Jr.; Juszczak, Andrew; Engel, Kathryn – Journal of Applied Research in Intellectual Disabilities, 2016
Background: This study compared the effectiveness of computer-assisted instruction to that of one-on-one tutoring for teaching people with mild and moderate cognitive disabilities when both training methods are designed to take account of the specific mental deficits most commonly found in cognitive disability populations. Method: Fifteen…
Descriptors: Computer Assisted Instruction, Tutoring, Comparative Analysis, Instructional Effectiveness
Hall, Allison; Bose, Jennifer; Winsor, Jean; Migliore, Alberto – Journal of Applied Research in Intellectual Disabilities, 2014
Background: Although United States employment policies have increased support for people with disabilities working in community settings, the unemployment rate for this population remains very high, particularly for people with intellectual or developmental disabilities. Research shows that job developers (direct support professionals who assist…
Descriptors: Job Development, Family Involvement, Supported Employment, Mental Retardation
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